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Chief Executive, Cavernoma Alliance UK
Home-based within the UK
28 hours (including some evening and occasional weekend work)
Actual salary: £35,840 to £38,079
Equivalent full-time salary: £48,000 to £51,000
Cavernoma Alliance UK is a well-established UK charity supporting people affected by cavernoma, a rare condition involving clusters of abnormal blood vessels in the brain or spinal cord.
Founded in 2005 by people with lived experience of cavernoma, we provide peer support, trusted information, awareness raising and research advocacy for the cavernoma community. We also work closely with leading neurologists, neurosurgeons and researchers across the UK to help improve clinical care, information and research for people affected.
We are now looking for a new Chief Executive to lead and be an ambassador for the work of CAUK. This is a meaningful and varied role in a small charity where your contribution will be visible. It would suit someone looking for a senior charity role with real purpose, flexibility and a close connection to the community they support.
You will be joining an organisation with a supportive Board of Trustees, a staff team that cares deeply about the community we serve, highly committed volunteers, and strong clinical and research partnerships.
We are in the second year of our five-year strategy, ‘Together For a Cure - 2025 to 2030’, and are making good progress across our priorities. The current Chief Executive is leaving after three and a half years in post to take up a new opportunity, and the charity is in a positive and stable position.
A major focus for the role over the coming years will be supporting delivery of a five-year UK-wide clinical trial starting in August 2026. This study could potentially identify the first medication treatment for cavernoma.
Alongside this, the role will focus on maintaining sustainable income, supporting high quality peer-led services through our Head of Volunteering and Member Services and volunteer team, and continuing to grow CAUK’s reach and awareness, particularly online.
We would particularly welcome applications from people with previous charity management experience, whether within a small charity or in a more senior role within a larger organisation. We are also open to applicants who can demonstrate a strong understanding of the charity sector through trustee, professional or voluntary experience.
This is a home-based role with flexibility, although there will be occasional travel across the UK, typically every 1 to 2 months, including meetings in London.
If you would like an informal conversation about the role before applying, we would be happy to arrange this with the current Chief Executive and/or Chair of Trustees.
Key dates
Applications open: 27 May 2026
Closing date: 9am, 22 June 2026
Stage 1 interviews will be held virtually during the last week of June.
Stage 2 interviews will be held in person shortly afterwards.
How to apply
To apply, please read our Recruitment Pack carefully and then complete our online application form using the link below. You will also need to email your CV to us using the contact details provided in the Recruitment Pack.
Please note that applications submitted without both a completed application form and CV will not be considered.
We are unable to accept enquiries or applications from recruitment agencies.
To have a cure for cavernoma that people living in the UK can access.



The client requests no contact from agencies or media sales.
Thrive’s vision is that gardening is actively encouraged as part of personal health and wellbeing management and Social & Therapeutic Horticulture (STH) services are available wherever people live.
Working across multiple income streams, the postholder will support the development and delivery of high-impact fundraising campaigns, compelling cases for support, and meaningful donor communications. With a strong focus on Regular Giving growth and supporter stewardship, the role plays an important part in strengthening long-term financial sustainability.
This is a proactive role requiring strong content development skills, attention to insight and performance, and the ability to contribute to continuous improvement in fundraising systems and processes.
For more information, please download the Information Pack. For an informal conversation about the role, please email recruitment in the first instance.
For further information and full JD please refer to the attachment below.
#Fundraising #Fundraising Planning # Fundraising officer #Funding #Fundraising oppurtunities
To apply, please email recruitment with your CV and a written statement explaining how you meet the person specification, how you meet Thrive values and what you will bring to Thrive.
Peer Support Officer
Hours: Full-time 34.5 hours per week over 5 days
Location: Hybrid working (a minimum of 40% working in the office in Leeds)
Salary: £30,812.94 - £34,011.72
Contract: Fixed Term for 12 months (with possibility of extension)
DBS: An enhanced check will be required
About Us
At Epilepsy Action, we are inclusive, ambitious, supportive, and committed to creating a world without limits for people with epilepsy.
As we achieve the goals in our 2024 – 2030 strategy, we are excited to welcome you to our passionate, supportive and committed team.
We understand the importance of a work life balance, and that's why we have a number of ways to support our people to achieve this. By operating a flexible and supportive approach, we empower people to work in a way that suits them that also meets the need of the charity.
If you are interested in building a career you can be proud of in an inclusive and ambitious organisation, we might have the role for you!
About the Role
Join our Peer Support team and help bring people together through shared lived experience, connection, and understanding. We are dedicated to providing supportive, high-quality, and person-centred services that empower people to live well with epilepsy.
Through our 1:1 peer support service, Talk and Support groups and online events, we create safe and welcoming spaces where people living with epilepsy can connect, share experiences, and access meaningful support.
If you are passionate about making a positive impact, enjoy supporting others, and can build meaningful connections in a remote environment while communicating with empathy and professionalism, we’d love to hear from you. We have an exciting opportunity for you to join our team as a Peer Support Officer.
At Epilepsy Action we recognise the power of collaboration and teamwork, so our team members with hybrid contracts can expect to work a minimum of 40% at our office in Leeds. On average this is 2 days a week, normally on Mondays and Thursdays, for full-time employees. The expectation to collaborate face-to-face is driven in part by your role and the activities you need to do which may vary from time to time, so you will need to work in a flexible way to help us create a world without limits for people with epilepsy
Your Role
As a Peer Support Officer, you will play a key role within our Services team, helping to deliver compassionate, high-quality peer support for people living with epilepsy across the UK.
In this varied and rewarding role, you will:
This is an exciting opportunity for someone who is passionate about community support, volunteer engagement, and making a positive difference in people’s lives.
What You Bring
This is an exciting opportunity for an enthusiastic individual to be involved at the heart of service delivery. We are looking for someone who is:
We are looking for someone who has:
Interested?
If you are interested in what you have read so far, you can submit your application via our online portal. Click apply and you will be redirected there.
Being an Inclusive Organisation
We want everyone in our community regardless of their backgrounds, identities, abilities, or circumstances, to feel valued and respected to participate fully. We know that inclusivity isn’t about numbers; it’s about embracing diversity and ensuring that everyone's voice is heard, needs are met, and contributions are acknowledged.
We recognise that each person’s experiences shape how they think and having diverse representation across the organisation is fundamental to achieving our ambitions.
Despite this, we are not as diverse as we would like and we actively encourage applications from people from all backgrounds and cultures, particularly those from ethnic minority backgrounds who are currently under-represented.
We are also proud to be a Disability Confident Leader. This means we encourage applications from disabled people, and we are committed to interviewing disabled applicants who demonstrate through their application that they meet the essential criteria in the person specification. We want to support you to perform your best so if you require any reasonable adjustments, please let us know.
Closing Date: Monday 22nd June 2026 @ 9am
Informal Chat: Week commencing 29th June 2026
Interviews: 6th & 7th July 2026
Recruitment process: We believe that having an informal chat before the formal interview process allows us and you to have an open and honest conversation about the role, our organisation culture and what attracted you to apply. This is why as part of this process we will be inviting people to a 30 minute online chat with a member of our team before inviting shortlisted candidates to formal interview.
The recruitment process will include a panel interview and a presentation task.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are looking for a warm, organised and proactive Membership and Individual Giving Manager to help us deepen relationships with our members and supporters.
EDS UK is the leading UK charity dedicated to supporting people living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We provide trusted information, community connection and advocacy, for better recognition, diagnosis and care. Our members and supporters are at the heart of everything we do.
This role is central to building a sustainable income base that allows EDS UK to continue providing vital support, information and advocacy for people living with EDS and HSD.
As part of a small team, you’ll enjoy a varied role that blends hands-on delivery with strategic thinking. You’ll lead our membership scheme, grow regular giving, and ensure every supporter feels valued, understood and connected to our mission. You’ll bring empathy, clarity and creativity to supporter communications, recognising the diverse needs of our community.
This is a fantastic opportunity for someone who wants to make a tangible difference every day and help shape the future of EDS UK’s supporter experience.
The client requests no contact from agencies or media sales.
Challenge Events Coordinator
Contract: Permanent
Hours: Full-time, 35 hours per week, Monday – Friday.
Location: SIA House, Milton Keynes. We offer hybrid working with the expectation of three days per week in the office.
Salary: £36,090 per annum
Thank you for your interest in joining our special charity!
About Us
The Spinal Injuries Association is committed to a singular vision: a fulfilled life for everyone affected by spinal cord injury.
Everyone has a right to live a fulfilled life and that means the life they choose, a life that has the same opportunities as everyone else. We are the expert guiding voice for life after spinal cord injury.
About the Role
The core purpose of the challenge events coordinator role is to plan and deliver a portfolio of established challenge events to generate income, engage our supporters and raise awareness of SIA’s wider work. Working closely with the philanthropy and events manager, this role will help to grow, diversify, and sustain fundraising income as part of the wider business development team, feeding into the 2030 strategy.
SIA’s vision is a fulfilled life for everyone affected by spinal cord injury with the aim to double the number of members accessing our network of services – this role connects companies and individuals with our work providing a platform to engage the public with our cause. The plays a key part in developing innovative, cost-effective, fundraising opportunities that will appeal to supporters, ensuring they are financially, actively, and emotionally engaged with SIA.
SIA delivers an array of challenge events including the London Marathon, accessible adventure challenge, overseas bike ride and superhero triathlon alongside support for individuals who choose to support SIA through their own sponsored challenge. We continually review and update our portfolio of events to ensure we offer a range of appealing, inclusive and innovative events. The challenge events coordinator will play a vital part in developing and shaping our future events with the guidance of the philanthropy and events manager.
As challenge events coordinator, you will work with individual and corporate supporters as an ambassador for the cause securing support for the events you deliver. Relationship management is a key part of the role specifically,
Benefits:
Closing date: 15 June 2026, 9am
Interview date: Tuesday 23 June 2026 at SIA House, Milton Keynes
Interested?
If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.
At SIA, we value diversity. We are committed to providing an inclusive and supportive environment as we believe diversity fosters a more innovative, creative, and caring culture.
We are striving to create a culture that fully represents all the communities we serve. We are an equal opportunity employer, and all applicants will be considered for employment regardless of race, age, ethnicity, religion, sexual orientation, gender, gender identity, family or parental status, or disability status.
No agencies please.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Fundraising Manager — £35,000–£40,000 | Hybrid / Somerset / Bristol | Permanent | 35 hrs (flexible)
Thrive has been at the heart of Somerset's communities for 100 years. Village agents supporting isolated older people. Diverse communities programmes. Fuel poverty campaigns. Real, local, human work — delivered across every corner of the county.
This centenary year, Thrive is building its next chapter. A new chief executive has reset the strategic direction. Community energy is building. And the organisation has made a clear decision: it wants a sustainable fundraising base that isn't dependent on statutory contracts alone.
This role is the cornerstone of that ambition.
This isn't a maintenance hire. It's a builder's role.
The Fundraising Manager will lead across community fundraising, individual giving and trusts and foundations — with community and individual giving as the primary focus. The tools are in place. The mission is compelling. The stories are extraordinary. Thrive already has the reach, the relationships and the centenary momentum. What's missing is the right person to build the pipeline and turn that momentum into lasting income.
The target: 2,000 active supporters by year end, with a clear pathway to converting them into regular givers over time.
What you'll be doing:
What we're looking for:
What Thrive offers:
This role will suit you if:
You want to be a Head of Fundraising one day. You're frustrated by being siloed. You want breadth, autonomy and the chance to build something that matters — in a place where the mission is real and the communities are real.
This role is being recruited exclusively through Raise + Recruit, an independent not-for-profit executive search adviser. All enquiries are handled in complete confidence.
For a confidential conversation, contact John Austin — no obligation, no lengthy application process at this stage.
Review the full pack here https://thrive-candidate-brief.vercel.app/
The client requests no contact from agencies or media sales.