This is a brand new role for Alopecia UK giving someone an opportunity to be at the forefront of pushing forward the research agenda for a very under researched autoimmune condition and carve out Alopecia UK’s niche within this area. The role is home based but will involve some national and international travel.
Alopecia UK Research Workstreams
In recent years we have increased the way we fulfil our Research Aim. We hope to bridge the gap between researchers and the alopecia community, as we feel that both are helpful to each other. We have always supported researchers in finding participants for studies, however in recent years we have also started to fund research, develop a ‘Research Pots Grant Scheme’, have set up our very first Research Committee, and are starting to think more about developing patient advocacy and data collection. In 2017, we merged with another charity called Autoimmune Alopecia Research UK and this has spring boarded our research efforts. As a result of this we also have ongoing relations with an alopecia biobank based at the University of the West of Scotland and are keen for this to continue.
As our engagement in research has grown it has also outstripped the current staff resource and as a result needs its own, more focussed, staff member who can ensure provision is working as effectively as it can within safe structures and frameworks.
Current funds can support Year 1 costs for this Research Manager role. This is as a result of Charity funds which have been restricted to the Research Aim only. We hope for this role to become a permanent fixture within the Charity, with further expansion and development of the Research Aim to come in future years. Further funding, however, will be dependent on the success of this initial twelve-month period and sustained Charity income.
The new 2019 roles give the Charity its first step into a more structured Management system as we start to divide the Charity Aims into its corresponding projects and staff teams.
This is a brand new role and as such we are looking for a dynamic individual who will work hard, both independently as well as within the Core Team, have lots of ideas and plenty of enthusiasm and determination for success. The role requires exemplary written and verbal communication skills.
As the Charity grows and the role develops there is potential for the Research Manager to become a full-time position within the Charity.
Post: Research Manager
Based at: Home-based. This role will include some national and international travel as well as regular (approximately once every eight weeks) travel to West Yorkshire or Manchester for Team Meetings.
Hours: Part time (22.5 per week)
Salary: £30,829.50 (Pro rata based on 37.5 hour week)
Contract: Fixed Term for 12 months (further funds may be available pending success of role)
Responsible to: Charity Development Manager, Alopecia UK
- 28 days holiday (pro rata including bank holidays)
- Flexible working hours as agreed by manager
- NEST Pension Scheme
This post is subject to a Disclosure and Barring Services check
Primary Purpose of the Role:
Management, progression, sustainability and development with regard to the delivery of the Alopecia UK Research Aim.
Grant Scheme Implementation and Development
- Co-ordinate and deliver full application process to the highest standard including:
- Robust and appropriate application process
- Advertisement and promotion of the Research Pots Grant Scheme
- Co-ordinate the marking and scoring of papers by the Research Committee to establish candidates for ‘Committee’s Choice’ and ‘Patients’ Choice’ voting processes
- Facilitate voting processes to establish final candidate for each grant
- Manage contract process and funds transfer with new Research projects
- Communicate directly with applicants, grant-holders, and the wider alopecia research community regarding Alopecia UK grants and funding opportunities
- Develop new Grant Schemes
- Establish appropriate collaborative relationships for potential joint funding schemes
Liaison with funded Research Projects and providing a layperson feedback loop
- Monitor progress of funded projects and ensure timely submission of interim and final reports and compliancy with Terms and Conditions
- Maintain an ongoing relationship with funded projects and work with them to be able to feed progress back to the AUK Team as well as the alopecia community by way of blogs and news items for the website written in an easy to understand way for a non-research audience
Develop Patient Advocacy Programme
- Implement an appropriate Patient Advocacy Programme, establishing ‘Patient Experts’ and providing support to them as needed to participate in various Patient Engagement Opportunities, both externally as well as internally within the Charity
- Navigate the UK research networks to find opportunities for improved patient engagement
- Liaise with pharmaceutical (and other) companies to develop working relationships and ensure that we maximise Patient Engagement Opportunities
Research Team and Research Committee: Administration, Co-ordination of meetings and feedback
- Support the Chair of the Research Committee in briefing the AUK Board of Trustees on research-related matters
- Administration and organisation related to the Charity’s Research Committee and meetings, for example meeting organisation and minute taking
Up to date alopecia knowledge base & data collection to identify new alopecia research areas
- Searching and accessing online research publications for articles relating to alopecia and sharing relevant information with the Research Committee/Research Team
- Development of innovative data collection schemes
- Utilise any data collection schemes to better inform research development
Supporting and Working with Researchers
- Promotion and development of the alopecia biobank
- Complete suitability checks prior to promotion of research studies to the alopecia community for participation
- Identify UK research needs and any ways that Alopecia UK can help meet those needs to both improve and support alopecia research
- Use Patient Advocacy and the Research Committee in a way that helps identify further areas for research whereby the Charity can start to commission research
Other Professionals and organisations
- To develop and maintain networks with other agencies to promote services
- To develop appropriate partnerships and working relationships with external bodies and organisations
- Represent Alopecia UK in national and international meetings and summits with other external bodies, including other alopecia-focussed organisations
- Promote the work of Alopecia UK at external national and international meetings and scientific conferences
- To ensure that project income and expenditure falls within budget and ensure financial accountability
- Help develop funding streams as outlined in our Fundraising Strategy for ongoing delivery of projects
- Undertake such other duties commensurate with the post as and when required.
- Looking to the future and thinking about how the research aim within the Charity can grow and develop as well as the job role
- To actively participate, sharing knowledge and expertise, within the Alopecia UK Team, attending and participating in team meetings and project meetings as required
- To participate in regular supervision sessions
- To attend Alopecia UK activities as required (e.g. Big Weekend)
- Participate in relevant training and development identified in conjunction with Line Manager
- Promote in a positive way the work of Alopecia UK
- Provide support and cover for staff, at times of pressure or annual/sick leave, when appropriate
- To maintain the confidentiality of the service.
- To adhere to Alopecia UK Policies and Procedures
Please visit our website for the full Recruitment Pack which includes the Person Specification.