Addressing health inequalities is at the centre of what the Breaking Down Barriers project is all about.
Do you have the skills and passion to join the Breaking Down Barriers project team?
Inspiring organisations to grow and develop their outreach work, connect and liaise between organisations, individuals, families and members of the community and help develop plans to ensure families have the same equal access to health and social care services.
If you have a passion for making a difference to organisations who make a tangible difference to the lives of families living with genetic conditions, then we would like to hear from you.
Breaking Down Barriers
Breaking Down Barriers (BDB) is a network of patient organisations, support groups and community networks working together to develop supportive and inclusive services for individuals and families affected by genetic conditions. Addressing health inequalities is at the centre of what we do and working at grass roots level, we are identifying ways to improve engagement with people from ethnic minority communities and helping to shape services to become inclusive and accessible.
BDB was set up in 2016 with funding from the Sylvia Adams Charitable Trust and has recently received additional funding from the National Lottery. BDB facilitates organisations to work together; to share good practice, develop action plans and review learning and engagement. Many of the individuals and families supported by the BDB network experience multiple barriers to accessing mainstream services. Patient organisations, support groups and community networks are often best placed to offer unique support, enabling and empowering people to make informed choices and helping to bridge the gap between services.
BDB is led by the National Development Manager with strategic direction and support from an Advisory Board and guidance from The Sylvia Adams Charitable Trust.
Purpose of the role
This new role is central to supporting member organisations to develop their BDB projects to have the most impact in engaging families. The post holder will inspire organisations to grow and develop their outreach work, connect and liaise between organisations, individuals, families and members of the community and help develop plans that will have a measurable impact. If you have a passion for making a difference to organisations who make a tangible difference to the lives of families living with genetic conditions, then we would like to hear from you.
Experience of working with children, young people, families and community organisations is essential, Work in the health service, education or social services is desirable.
We would expect you to have excellent communication skills and the ability to work collaboratively with organisations and other stakeholders.
Two references and an enhanced DBS check will be required
Specific Areas of Responsibility
- Raise awareness of BDB by attending meetings, linking with communities, presenting at events and conferences and identifying suitable opportunities for publicity
- Support the development of member organisations as requested by their management teams, and agreed by the Project Lead
- Support in the planning and delivery of meetings and events to increase the engagement with families from ethnic minority communities and enabling them to access appropriate services
- Support the development of plain language documents and translated information
- Provide or organise an interpreting service for individuals and families who do not speak English as their first language if required
- Develop and support organisations to develop good practice resources to enable them to increase their reach into communities
- Manage internal and external communications effectively using a range of channels including social media
- Contribute to research and bids to further the impact of the project
- Promote patient and public involvement and support individuals and groups to take part in research and the development of services
General Areas of Responsibility
- The post-holder will be expected to further the aims and objectives of Alström Syndrome UK and to co-operate fully with policies and procedures of Alström Syndrome UK
- The post-holder will be expected to act in accordance with Alström Syndrome UK's Equal Opportunity policies
- The post-holder will be expected to assist with any reasonable duty at the request of the Chief Executive and the Project Lead
- The post holder will be home based and is expected to be able to work flexibly dependent upon the needs of the project and the charity
The responsibilities above form the core of the role; however, the employee may be asked to undertake additional activities from time to time.
The confidential nature of the work means that employees working for Alström Syndrome UK must maintain the strictest security in relation to documentation and ensure that confidentiality is maintained always, in accordance with relevant Data Protection and associated legislation.
This role will require an enhanced Disclosure and Barring Service check
Health & Safety
The post holder is expected to make themselves aware of and comply with Alström Syndrome UK’s Health & Safety Policy
This role profile is designed to identify principle responsibilities. The post holder is required to be flexible in developing the role in accordance with changes within Alström Syndrome UK’s management agenda and priorities.
The person appointed will be expected to have the essential experience, skills and abilities listed below. Items under the heading desirable will be valuable but those candidates who do not have these should not be deterred from submitting an application.
Knowledge, experience, skills and abilities
- Experience of working with children, young people, and/or families
- Experience of working with community organisations
- An understanding of at least one ethnic minority culture
- Excellent communication skills, oral and written
- Ability to prioritise when faced with competing work demands
- Ability to work on own initiative
- The ability to encourage and empathise with newly diagnosed individuals and families
- The ability to learn new skills and be guided by other professionals working in the field. Able to challenge.
- Willingness to undertake some work during unsociable hours
- Willing and able to travel long distances and to unfamiliar areas which may involve occasional overnight stays
- Ability to develop good working relationships with support group representatives, colleagues, professional workers and the public.
- Previous professional or personal experience of genetics and/or complex health conditions
- Have a strong desire to improve the experiences and accessibility of services for people living with genetic and/or complex conditions
- Genetic counselling experience
- Interpreting experience
- Experience of working in a health, education or social care setting
- Experience of working in a mentoring or advocacy role
- Experience of patient and public involvement advisory panels
- General knowledge of the generic issues affecting support groups
- Knowledge of relevant voluntary organisations and statutory agencies
- Previous experience of project work
- Experience of working from home
- Experience of writing reports
- Previous professional experience of marketing, in particular social media.
- Good knowledge of digital and print-based materials
- A minimum qualification, such as NVQ Level 3 in Health and Social Care or equivalent
CLOSING DATE IS MIDDAY ON THE 4th MAY 2021
Interviews will be held during the week commencing 10th May 2021 and due to the pandemic, interviews will take place via Zoom.
The client requests no contact from agencies or media sales.