Our policy team is determined to keep dementia a government priority and to work with policymakers to ensure the UK is a place where world-leading research can thrive. To make sure this work reflects the views of people affected by dementia, we’re seeking volunteers to help shape these efforts.
Sounding Boards will be a way for your voice to be heard and valued. Your experiences, ideas and opinions could be vital for important projects, such as our policy work to help prepare the NHS for future dementia treatments.
What will a Sounding Board member do?
· Be a voice to help sense check items of work such as consultation responses, and to offer insight into future issues and programmes of work.
· Help shape the direction of policy work and new projects.
· Share their experiences of being affected by dementia, either personally or as a carer or family/friend.
How much time will I have to commit? We are looking for people who attend as and when required to a Policy Sounding Board in London . We will be aiming to hold a Sounding Board every 3-4 months.
Sounding Boards will usually last 2-3 hours with comfort breaks and refreshments offered. Travel expenses are covered and help can be given in planning and booking travel, but please remember to incorporate any travel when considering your attendance at one of our Sounding Boards.
What are we looking for?
Ideally you’ll have the following:
· Direct or indirect experience of dementia.
· Good listening skills.
· Willingness to represent people living with dementia and make a difference.
· Confidence to share your personal experiences and ideas.
· Friendly and willing to work with the policy team.
· Interest in patient centred approaches.
· Interest in the current political landscape.
· Interest in medical research/life sciences and the National Health Service.
· A passion for the work of Alzheimer’s Research UK.
What are the personal benefits?
In return, by becoming involved with our Policy Sounding Boards, you’ll benefit from:
· Opportunities to share your experiences, ideas and opinions on policy issues which affect people living with and affected by dementia.
· Support to understand the policy issues you will be involved with.
· Your voice being heard to shape our current policy work and future direction of work.
· Opportunities to build personal confidence and develop your communicative skills.
· Connecting with a wider community affected by dementia.
· Reimbursement of reasonable out of pocket expenses such as travel, food, and carer support. Accommodation will be booked, and expenses covered in advance on behalf of you as and when required.
· Your experience being valued as part of a worldwide movement to defeat dementia.
Why volunteer with us?
Whether you’re living with the condition yourself or have a loved one with dementia, we’d love for you to get involved as a Sounding Board volunteer.
Our volunteers tell us that volunteering is fun and rewarding, and it helps them meet new people and have new experiences. But most importantly, it’s their way to help challenge the way people think about dementia. Many of our volunteers have been affected in one way or another by dementia. Often, they’ve cared for a friend or family member with Alzheimer’s disease. Volunteering for Alzheimer’s Research UK is their way of being part of the community whose mission is to bring about the first life-changing dementia treatment.
When you volunteer with Alzheimer’s Research UK, you’re helping us make breakthroughs possible.
Our promise to you
When you become an Alzheimer’s Research UK volunteer, we’ll always treat you with respect, consideration and appreciation. We’ll listen to what you have to say and ask you what you think. We’ll make sure you’re always working in a friendly and encouraging atmosphere. And of course, your health, safety and welfare are our top priority.
We’ll be there to support you every step of the way, and we’ll make sure you know exactly what you’re doing. To keep you up to date with what’s happening in our volunteering community, we’ll send you our regular newsletter and e-newsletter.
Please visit our website via the link below where you will find more information and contact details for us should you wish to know more. You cn also apply by clicking on the 'Apply Now' button and completig a short application form. A member of the team will then contact you to take progress your application.