CB21, Cambridge
Circa £50,000 per annum
Permanent, Full-time
Job description

Alzheimer’s Research UK is the UK’s leading dementia research charity dedicated to diagnosis, prevention, treatment and cure. Backed by our passionate scientists and supporters, we’re challenging the way people think about dementia, bringing together the people and organisations who can speed up progress, and investing in research to make life-changing breakthroughs possible.

By working at Alzheimer’s Research UK, you will be part of an organisation that has been recognised nationally as an outstanding place to work. In 2020, we were listed 39th in the prestigious Sunday Times 100 Best Not-for-Profit Organisations to Work For.  We were also awarded a 2-star accreditation by Best Companies, recognising outstanding levels of workplace engagement and were listed in the 75 Best Companies to Work For in the East of England.

The Research Informatics Team are responsible for leading the coordination of the Early Detection of Neurodegenerative Diseases (EDoN) initiative. EDoN is a growing and exciting collaboration with more than 13 organisations. This partnership will create a digital toolkit and machine learning models to enable the detection of specific dementia causing diseases decades before overt cognitive symptoms become apparent. The EDoN coordination group led by the Research Informatics Team, provides support to the EDoN initiative and its partners in the following areas: project management, policy and ethics, communications, capacity building, governance and legislation.

The Senior Research Informatics Programme Manager will lead, manage and coordinate the activities across the Research Informatics Team to support the EDoN initiative and its partners to achieve their goals.  Reporting into the Head of Research Informatics, the Senior Research Informatics Programme Manager will help to lead the coordination of technology projects related to early detection, lead the operations of the EDoN coordination group, facilitate the engagement across the EDoN initiative and guide the success of the development and adoption of the EDoN toolkit for early detection

Main duties and responsibilities of the role:


  • Contribute to the strategic direction and operational aims of the EDoN initiative, by identifying solutions and making recommendations.  Support the collective decisions made and act as a key advocate to implement and embed the agreed activities.
  • Identify and communicate emerging issues of significance and propose solutions to key stakeholders.
  • Work closely and collaboratively with Teams across ARUK to maximise the potential of all activities relating to EDoN.
  • Support the EDoN Implementation Teams (Hubs), especially the Digital Hub with the evaluation, development and adoption of technology, platforms and applications for capturing, managing and visualising complex data.
  • Work with the three Hubs and technology providers to set the strategy, roadmap, and feature definition for the development of the EDoN toolkit.
  • Work with the Research Informatics Engagement Manager to identify and facilitate strategic collaboration opportunities for the EDoN initiative, especially with technology providers.
  • Work with the Research Informatics Project Manager to ensure the implementation teams deliver on time, within scope and budget.
  • Work with the key stakeholders to identify and mitigate risks and develop and promote a strong governance framework.

Best Practice

  • Apply best practices in business analysis/user-centred design processes, including user stories and task modelling, user journey mapping, usability and feasibility testing, stakeholder management to ensure working groups successfully discover and meet user and stakeholder goals.
  • Drive processes for effective engagement, including facilitating internal and external workshops/meetings, coordinating training, and networking activities to support EDoN data science activities.
  • Apply best practices in project management processes, to coordinate and support delivery across internal cross-functional teams.

Team Management

  • Provide strong leadership and support to the Research Informatics Team, through coaching, mentoring and developing individuals to deliver an effective and efficient service across the charity.  Carry out performance appraisal meetings and effectively promote team building and collaborative working to deliver the strategic and operational plans.
  • Responsible for inputting into and translating the Research Informatics Team strategy and for executing the operational plans for the team.
  • Accountable for the strategic/operational performance of the Research Informatics Team.
  • Responsible for identifying third party needs for the Research Informatics Team and following risk, compliance and procurement procedures.

Relationship Management

  • Represent the Research Informatics Team internally and externally, supporting the Head of Research Informatics to maintain excellent working relationships with internal teams and external partners.


  • Deliver engaging presentations and messaging.
  • Represent ARUK at external events such as at national and international conferences. 


  • Provide support with the annual operational planning, budgeting and reforecasting process, ensuring that actual expenditure delivers within budgeted targets.
  • Continuously develop professional knowledge and expertise, attending relevant meetings and conferences to ensure up to date knowledge is relevant to the role.
  • Undertake any other relevant duties and projects delegated by the Head of Research Informatics in line with the responsibilities of the post.

What we are looking for:

  • Doctorate in technology or biomedical research, or equivalent experience
  • Excellent analytical, organisational and communication skills
  • Excellent skills supporting and coaching colleagues
  • Excellent skills delegating work and empowering direct reports
  • Proven work experience in project management and coordination, ideally for clinical, data or technology projects
  • Experience in designing and delivering digital products, such as software applications, toolkits, and IoTs/wearables
  • Proven skills in workshop facilitation/moderation
  • Experience fostering and strengthening strategic collaborations in the context of public-private partnerships
  • Experience of leading and managing a team
  • Exemplary leadership skills with both practical and short/long term strategic vision; ability to build relationships and inspire confidence and respect at all levels; strong team player.
  • Excellent communicator – able to build rapport and demonstrate strong influencing, negotiation skills and decision-making skills; excellent listening skills, receptive to feedback and demonstrates flexibility, curiosity, and an ability to learn.
  • Ability to explain complex information to all stakeholders.
  • Ability to write and present comprehensive reports to the relevant stakeholders.
  • Demonstrates and encourages ownership and responsibility; drive/motivation - has a “can-do” attitude and is committed to delivering results and strives for continuous improvement.
  • A good blend of strategic and analytical thinking; innovative personality; able to see the bigger picture and set future direction.
  • Strong ethical standards and a high level of personal integrity.

Location: Granta Park, near Cambridge.

Salary: Circa £50,000 per annum, plus benefits

Please download the Vacancy Pack for more details.

The closing date for applications is the 6th October 2020, with interviews to be held on the 14th October 2020, via Microsoft Teams. Please indicate in your cover letter if you are unable to attend on this date.

To be considered, please create an online account using our Online Recruitment System which can be accessed through our Job Vacancies Page. You will be able to attach a CV and covering letter to your application, track your application and view other vacancies that may be of interest.

To view further details about this role and the benefits of working for us please visit the Alzheimer’s Research UK website.

More about Alzheimer's Research UK
Alzheimer's Research UK

Who We Are

Alzheimer’s Research UK is the UK’s leading dementia research charity. We fund innovative res... Read more

Refreshed on: 26 September 2020
Closed date: 06 October 2020
Job ref: SRIPM/20/12
Tags: Policy/Research, Project Management