£22 per hour
Contract, Part-time
Job description

Project Manager
Axial Spondyloarthritis International Federation (ASIF) is seeking a Project Manager to manage and strengthen ASIF’s growing portfolio of international projects.  This is a hands-on role, it is not an IT based Project Manager role.

Working with a steering group (Trustees, members and/or other stakeholders) to manage the design, delivery and review of small portfolio of projects.  This may include gathering experts to develop the scope of a project, gathering information from ASIF’s members, commissioning and managing technical providers, organizing and annotating stakeholder meetings, planning marketing and communications and project launch events, dissemination of information and writing reports for sponsors.  The post may involve some overseas travel.

About us
ASIF is an international membership organization representing patient associations around the globe specializing in the support of patients with Axial Spondyloarthritis (axSpA).  Currently we have 47 member associations in 41 countries.  ASIF’s role is to increase awareness of axSpA and knowledge of the disease around the world.

About this role
Founded in 1988, ASIF has been run by its Trustees for many years. Now it is growing.  ASIF  registered as a UK Charity in 2017 and contracted its first member of staff three years ago.  ASIF is now developing, in partnership with corporate partners and members, some exciting projects which will promote awareness and improve the quality of life for patients with axSpA worldwide.

We are seeking a Project Manager to work on a short-term renewable contract, starting with 22.5 hours per week, with the possibility to increase in the future if enough income is generated.

Trustees and members are very involved in managing ASIF’s projects.  The post-holder will need to forge good relationships with many stakeholders worldwide.  Meetings are held virtually and are often outside normal office hours.

ASIF is constantly developing and looking at opportunities to create effective global campaigns and because of that, the role and the portfolio of projects could change.  The post-holder must be responsive to change and flexible in their approach.


The projects
IMAS or the International Map of Axial Spondyloarthritis, is a project that is up and running and is now moving into a second phase.  It is a survey of patients that was created to explore how axSpA affects patients’ relationships, work, daily activities and mental health.  The survey highlighted long delays to diagnosis and suboptimal management of axSpA.  The survey was expanded to 12 European countries and the results of that phase were published in 2019.  Now the survey is going global and the results of that phase are expected to be ready in the next year or so.  ASIF is taking a more pivotal role in the management of IMAS going forward and it will be the Project Manager’s role to represent ASIF’s interests on the management team and to drive this very exciting project forward. 

Delay to Diagnosis (D2D).  We have long been aware that there is a delay to diagnosis, the IMAS survey highlighted that it is an average of 7 years internationally.  It is this delay to diagnosis that is the focus of ASIF’s new project.   ASIF is developing a project that will aim to make a global case for change.  We need to outline the benefits of reducing the delay to diagnosis, focusing on the benefits to patients and to governments, healthcare providers and policy makers.  The project sub-committee plans to expand on the international data available by finding out more about the similarities and differences between countries.  We will then develop a document and materials that can be disseminated worldwide.  You will need to be comfortable working with some ambiguity whilst this project is developed towards its aim by the steering sub-committee.

Application process
Please submit your CV with a 2-page covering letter explaining how you meet the requirements of the job description.  Applications to be received by email by the end of Friday 21 August 2020.  Interviews will be held by online meeting on 1 or 2 September 2020.

Details of the role
Reports to:  Executive to the Board

Term:  1 year initially 3 days per week, with potential to expand (dependent on funding).  Two-month probation period. 

Days per week:   3 days per week (22.5 hours).  There is no need to work fixed working days, hours will need to be sufficiently spread over the week to enable appropriate response times.  There will need to be an amount of flexibility because the post-holder may need to attend online meetings at hours and on days that suit the Trustees and other stakeholders.  Hours can be spread over the week and averaged over time as work demands (some weeks may be busier than others).

Location:  Home based.  Occasional meetings in London/Europe and possible travel worldwide if the project requires it – not normally for more than one week at a time.

Fees:   £22 per hour.   This is a self-employed position. The applicant will be responsible for providing their own workspace and office equipment and managing their own tax affairs.  Other expenses eg travel and subsistence when travelling on charity business will be claimable on discussion with the Executive to the Board.

Start date:  As soon as possible.  Ideally mid-September 2020. 

Key tasks

  • Develop, implement and review project plans
  • Understand and represent the vision of all partners
  • Working with Trustees, stakeholder sub-committees, define the project scope/s
  • Co-ordinate, run and record project meetings, and associated papers
  • Commission external work as required and agreed
  • Build and manage relationships with and influence a range of stakeholders
  • Work with steering committee and stakeholders to design dissemination
  • Manage project risks
  • Manage budgets
  • Develop and implement a communications (dissemination of materials) and marketing strategy
  • Report regularly to the Executive to the Board and Trustees
  • Prepare reports for sponsors
  • Undertake other tasks as reasonably required

About you
We are looking for a self-motivated, organized individual with the skills, attitude, and experience to drive ASIF’s projects forward with enthusiasm and motivation.  Ideally you will have significant experience working in a comparable role in the charity or healthcare sector.  You will need to be confident working in a collaborative way with steering groups, sponsors, patients, trustees, members, and other stakeholders.  An effective communicator.  Working closely with ASIF’s Trustees and the Executive to the Board you will develop project plans and manage them towards their conclusions.  You will have a strong understanding of and commitment to healthcare improvement and improving the patients’ journey.


Essential Requirements:


  • Degree or equivalent experience


  • Significant experience in a comparable role
  • Excellent knowledge of techniques for planning, implementing, and monitoring projects
  • Good understanding of healthcare quality improvement principles/patient advocacy and approaches and marketing
  • Significant experience of working in partnerships/collaborations
  • Budget management experience
  • MS Office applications and videoconferencing
  • Ability to convey complex ideas in a compelling manner


  • Exceptional written and verbal communication skills – needs to be fluent in English
  • Strong creative thinking and problem-solving skills
  • Ability to build relationships and collaborate with a range of international stakeholders – and generate trust and credibility
  • Ability to balance multiple and conflicting priorities and use good judgement so that problems are spotted in advance and solutions identified quickly
  • Ability to maintain a professional and confident approach
  • Diplomatic and flexible
  • Self-motivated and proactive


  • Willingness to travel globally as required


More about Axial Spondyloarthritis International Federation
Axial Spondyloarthritis International Federation

ASIF is an international membership organisation representing patient associations around the globe specilizing in the support of patients with... Read more

Refreshed on: 16 August 2020
Closed date: 21 August 2020
Job ref: Two references will be required
Tags: Project Management, Advocacy

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