The Lead Nurse for Neonatal Palliative Care Project aims to improve neonatal palliative care to ensure that babies and their families receive the best possible care at the most challenging time of their lives.
An emerging specialism, neonatal palliative care emphasises the comfort of the baby and quality of life for the family, however long their time together may be. It improves the experience and outcomes for families during a time of crisis, specifically when their baby is not expected to survive, or when a baby has multiple complex health needs with an uncertain future.
The project is jointly funded by The True Colours Trust, CW+ and Chelsea and Westminster NHS Foundation Trust. The project is led by Alex Mancini, the country’s first National Lead Nurse in Neonatal Palliative Care.
The project provides neonatal staff working in hospitals and hospices with the training and knowledge to identify babies who need palliative care, and to provide the best possible palliative care to those babies and their families.
Phase 1 of the project began in London in 2015 and following a successful pilot, Phase 2 began in 2021. Phase 2 has branched out of London and is now running in three regional neonatal Operational Delivery Networks (ODNs). The project is continuously evaluated to learn lessons about what works and to assess impact. Subject to the evaluation and success of Phase 2 and to securing further funding, the ambition is to launch Phase 3 in January 2024.
We are looking for an experienced Project Manager to work alongside the Lead Nurse to ensure the smooth implementation of Phase 2, and to assist with plans for a potential Phase 3 which will see the project roll out across the UK. This is an initial fixed-term two-year post, with the potential to extend for a further five years, should funding be secured for Phase 3.
The post holder will work alongside the National Lead Nurse for Neonatal Palliative Care in all aspects of the delivery of the Neonatal Palliative Care Project with a particular focus on implementation, training uptake, logistics, targets, and timelines for Phase 2.
This will include maintaining, reviewing, and streamlining processes, IT systems and communications for online training; coordination with the Independent Evaluator on the project evaluation and reporting; and regular team meetings, and reporting to the three project funders. The post holder will also play a key role in designing and planning Phase 3.
It is a varied and rewarding role with a mix of day-to-day project management and future planning. The post holder will need to be highly organised, have excellent IT skills and be equally comfortable taking on both demanding and routine tasks, bringing the same high quality to all areas of the role.
AIM OF THE ROLE
The post holder will be responsible for the project management and smooth delivery of the Neonatal Palliative Care Project. They will work with the Lead Nurse to ensure that the project is delivered on time, to budget and to target, and that its progress and evaluation is reported to the project team and funders.
KEY WORKING RELATIONSHIPS
Internal stakeholders, including National Lead Nurse for Neonatal Palliative Care, Independent Evaluator, Director of Major Projects at CW+, Head of Development at CW+, Trust Executive and Trust Advisor at The True Colours Trust, Deputy Chief Nurse at Chelsea & Westminster Hospital NHS Foundation Trust, Finance team at CW+, Communications team at CW+.
External stakeholders, including regional hospitals and hospices, neonatal and palliative care community, and national organisations.
MAIN RESULTS AREAS
- Smooth, effective, and efficient delivery of the project, on time and to budget
- Ensure project is properly planned, resourced, supported and managed by working with appropriate internal stakeholders and support teams
- Effective contacts management to facilitate the scheduling of training and other events, and stakeholder communications.
- Build strong working relationships with project team and internal/external stakeholders
- Timely, accurate and thorough project reporting
- Support the creation and delivery of an effective communication strategy for the work
- Ensure effective systems (IT, contacts management, reporting etc) are in place to support future roll out across the UK
Main Duties and Responsibilities:
Programme and Project Management, including and not exclusively
- Supporting the logistics for the delivery of weekly training sessions including reviewing current systems and streamlining, where appropriate
- Managing communications with training attendees
- Managing the personal data of all attendees and participating hospitals and hospices across the regions
- Coordinating with Independent Evaluator to continually monitor and evaluate the project
- Managing the branding and communications for the project, based on agreed parameters
- Working with CW+ Communications Team to manage press enquiries for the project, ensuring the Lead Nurse remains the focal point
- Managing the project budget and financial reporting
- Producing 6-month reports on project progress for submission to funders and trustees
- Supporting the Lead Nurse in managing relationships with key external stakeholders across the neonatal palliative care community, and participating hospitals, clinics and hospices across regions
- Working with project team and funders to plan the long-term strategy and delivery of the next phase of the project
- Assisting the Lead Nurse in organising events as required, virtual or in person, including training sessions, stakeholder meetings and conferences
- Understand the sensitivities of working with long-established and knowledgeable groups of stakeholders
- Build strong relationships with clinical and general management professionals through effective communication and engagement
- Keep up to date with best practice, new breakthroughs, research, policy, reports and media in neonatal palliative care
- Understand the clinical landscape for neonatal palliative care and its history and challenges
- Share key research, policy, new and other relevant developments with the project team
Post: Neonatal Palliative Care Project Manager Department: CW Innovation
- Evidence of ongoing professional development.
- Qualification in a recognised project management discipline such as PRINCE2
- Experience of applying structured approaches to project management
- Managing a project across multiple organisations
- Budget management
- Reporting to senior stakeholders
- Contacts management
- Events organisation
- Experience of working within the NHS
- Experience of working within a charity
- Working in a remote team
Skills and Abilities
- Excellent organisational and coordination skills.
- IT skills including Zoom conferencing, Microsoft Excel, PowerPoint.
- Excellent attention to detail.
- Excellent interpersonal and influencing skills.
- Highly numerate with well-developed analytical skills and the ability to assimilate data and information to identify key issues.
- Excellent communication skills with the ability to produce clear and concisely written papers and presentations.
- Ability to work autonomously and independently and drive projects proactively.
- Able to deliver at pace and meet tight deadlines.
- Able to demonstrate tact and diplomacy when working with others
- Delivering verbal reports and project scopes to external audiences
- Communicate across a number of clinical, operational and corporate areas to achieve desired results
- Ability to communicate, influence and manage upwards
- Understanding of project process and practice
- Understanding of clinical services or the healthcare sector
- Understanding the complexities of neonatal palliative care
- Highly motivated self-starter.
- Flexible and innovative approach to problem solving.
- Strong team player with the ability to enthuse and influence others.
- Sensitive to the emotional issues of neonatal palliative care and able to display a tactful and appropriate demeanour.
- Willingness to travel between sites as required.
- Committed to a diverse and inclusive workplace.
- An excellent eye for detail.
- Equally comfortable taking on both demanding and routine tasks, bringing the same high quality to all areas of the role.
About the funders
CW+ is the official charity of Chelsea and Westminster Hospital NHS Foundation Trust, we provide care to a community of over one million people with two hospital sites and a cluster of satellite clinics across London and the home counties. We are consistently one of the top ranked hospital trusts in the UK, and with accreditation as a Global Digital Exemplar we are an emerging leader in healthcare innovation.
We continually strive to deliver exceptional patient care and experience in a world-class clinical environment – and we believe we have the people, partners, infrastructure, and proven track-record to rethink, reimagine and reshape patient care in an evolving NHS.
The True Colours Trust is an independent funder working in the UK and Africa. Its work is focussed on:
- Improving access to palliative care for babies, children and young people in the UK
- Enabling disabled children and young people to live their lives to the full
- Improving access to pain relief and palliative care in Africa.
True Colours’ approach recognises the importance of:
- Long-term commitments
- Listening to those with lived experience
- Partnerships, feedback and real collaboration.
True Colours has been working on these issues since 2002. The Trust is working towards a time when everyone, wherever they live and whatever their age, is able to access good palliative care and disabled children and young people are able to live their lives to the full.
Chelsea and Westminster NHS Foundation Trust
Chelsea and Westminster Hospital NHS Foundation Trust provides care to a community of over one million people. The Trust is consistently one of the top ranked and top performing hospital trusts in the UK, with two hospital sites (Chelsea and Westminster Hospital and West Middlesex University Hospital) and multiple satellite clinics operating across London and the home counties.
The Trust is one of the largest A&E providers in the UK, treating over 325,000 patients each year. It is also one of the largest providers of women and children’s care in the country, delivering on average a baby every 45 minutes. In addition to these core services, the Trust is home to many specialist programmes including a world-renowned Burns Service, which is the leading service for London and much of the South East, and the biggest HIV and sexual health programme in Europe, which has been at the forefront of the worldwide fight against HIV and AIDS for the past 30 years.
The Trust aims to deliver exceptional patient care and an outstanding patient experience in a world-class clinical environment. To support this ambition, CW+, the Trust’s charity, generates investment and facilitates partnerships to support our hospitals and clinics in their efforts to save and improve the lives of people in our local community and beyond.
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