Paris, Arrondissement de Paris
€40,000 - €45,000 per year
Permanent, Full-time
Job description

The Campaign and Digital Communications Senior Manager (CDCSM) develops the marketing, communications and digital strategic plan and is responsible for the design and implementation of the operational plans for the global awareness campaign Rare Disease Day. The CDCSM will also drive the decision process for the messaging, co‐created with the 60 national patient organisation partners leveraging the analysis from a recent strategic campaign review. The CDCSM will achieve a more robust outreach and engagement, coupled with new media relation reaching more than 300 million people living with a rare disease globally. Finally, working with the international advocacy team, the CDCSM will produce advocacy toolkits and materials aimed to inform and capacity build patient advocates.
Motivated to work at an NGO and committed to our cause, the CDCSM will also contribute to marketing, international media and digital strategy across the organisations’ websites, events, programs, social media and publications, working closely with the Communications Senior Manager and the Web Technology Manager.
The CDCSM reports to the Strategic Communications and Marketing Director and is part of the larger Awareness, Public Engagement and Events team.
The position is recruited for EURORDIS’ Paris Office (Brussels and Barcelona offices to be considered).

EURORDIS‐Rare Diseases Europe is a unique, non‐profit alliance of over 900 rare disease patient organisations from over 70 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.  

Since 2008, EURORDIS has led patients and patient groups globally to raise awareness for people living with a rare disease and their families via the communications campaign for Rare Disease Day (the last day of February each year). Up from 16 countries participating in 2008, 2020’s edition saw thousands of events taking place in over 100 countries. EURORDIS coordinates national partners to determine campaign core messaging, to translate and disseminate the campaign. EURORDIS is responsible for producing adaptable visuals and videos which are freely accessed by thousands of patient groups and other stakeholders interested in improving the lives of people living with a rare disease.  

The outreach campaign has the ambition to trigger change for people living with a rare disease and to link to the broader advocacy efforts of rare disease patients emphasising equity in human and social rights alongside healthcare needs for people living with a rare disease and their families.  

The campaign benefits from public, patient association and private funding.  This position comes at an exciting time with potentially new funding for the program which would enable us to scale up the Rare Disease Day. A key component of this role will be implementing any new grant objectives.

Key tasks and responsibilities

Awareness campaign, social media and digital marketing

Patient advocacy capacity building tools

Campaign outreach and communications

EURORDIS communications

See the attached job description for full details.

Skills and experience

  • Minimum Bachelor’s degree and 6‐8 years’ professional experience in communications and marketing for a global organisation or brand (within the health, public affairs or NGO sector a plus).
  • Experience building and executing international or global marketing campaigns, communications plans, measurement tools and digital strategies in a complex ecosystem.
  • Experience working with a major international awareness campaign highly desirable
  • Experience in community and public engagement, engaging participation of multiple partners and actors
  • Experience managing communication or campaign budgets and suppliers including marketing agencies and graphic designers.
  • Creative with a passion for creating visual elements. Experience in producing video campaign elements a plus
  • Autonomous, proactive and highly driven
  • Sensitive to working for a cause and with genuine interest in understanding the challenges of people living with a rare disease and their families.
  • Enthusiastic and flexible team player with skills including: managing meetings, presenting, reporting to management, co‐creating with national partners, strategic planning, verbal and written communication, organisational and time management abilities
  • Ability to work with several operational team members and patient organisation partners with varying backgrounds and levels of English understanding.
  • Proficiency in Microsoft office suite but also well‐trained in photoshop, video software and other graphic design or photo tools.
  • Fluent English speaker with excellent written and oral communication skills in English is a must (excelling in persuasive and influential writing)
  • Good level in French desirable; other European language(s) a plus
More about EURORDIS-Rare Diseases Europe
About
EURORDIS-Rare Diseases Europe

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 850 rare disease patient organisations from 70 countries that work ... Read more

Posted on: 23 June 2020
Closed date: 24 July 2020
Tags: Communications, PR, Marketing

The client requests no contact from agencies or media sales.