Remote
£40,000 per year
Permanent, Full-time
Job description

The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease. We provide information and advice to families, friends, and healthcare professionals.

Reporting directly to the Chief Executive, the Policy and Public Affairs Manager will use their skills and expertise to influence decision-makers to help the charity make a positive change for families affected by Huntington’s disease.

We are moving to a new strategic period and this post will be pivotal in helping achieve our future vision.

We are looking for someone to:

  • Lead on policy and influencing work across a range of areas including access to mental health services, access to new medicines, care pathways, employment discrimination and insurance and benefits.
  • Develop and implement a policy and public affairs strategy which supports the organisation’s wider strategic goals.
  • Research and draft policy positions in a range of priority areas ensuring these are based on research, patient experience, clear analysis and strong arguments – and keep these up to date.
  • Represent the charity at external meetings and position Huntington’s disease in alignment with government policy priorities.
  • Develop and maintain relationships with key policy stakeholders across the government, NHS, NICE, OHID, Association of British Insurers, DWP and Armed Forces, as well as any other relevant bodies and organisation’s across England and Wales.
  • Horizon scan and proactively maintain awareness of policy and political developments or announcements and update colleagues
  • Develop relationships with interested parliamentarians and work with them to shape the government’s health and social care agenda.
  • Develop and maintain relationships with pharmaceutical partners.

This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.

We offer great benefits including 25 days annual leave plus public holidays, a pension scheme with 3% employer contribution, a tax-free working from home allowance, a Medicash scheme, a flexible working approach, a supportive and positive working environment and fantastic learning and development opportunities.

We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. The completion of this form is voluntary.

The Huntington’s Disease Association follows Safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a DBS check for enhance disclosure before joining the charity.

Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.

To apply, please email us your CV and cover letter detailing your relevant skills and why you want the position to [email protected] hda. org. uk. Applications submitted without a cover letter will not be considered.

Closing date for applications is 5pm on Wednesday 13 June 2022.

Interviews will be held on Thursday 23 June 2022.

Application Instructions

To apply, please email us your CV and cover letter detailing your relevant skills and why you want the position. Applications submitted without a cover letter will not be considered.

Refreshed on: 02 June 2022
Closed date: 13 June 2022 at 17:00
Job ref: HDA-PPA-1-2022
Tags: Campaigning, Policy/Research

The client requests no contact from agencies or media sales.