£20,000 - £25,500 per year
Contract, 3 years, Part-time
Job description

Hours                         22.5 hours per week (normally worked across three days per week)

                                    Flexible working with core hours of 10:00 till 15:00 with remaining hours to be worked around these


Remuneration          £20,000 per annum pro rata (up to £25,500 depending on experience)


Type of contract:      Fixed term contract for 3 years (with possibility for a permanent role)


Location                    Remote worker based at home and visiting locations in the North West of England


Report to                    Patient Services Manager


Work closely with    Anyone affected by leukaemia, myelodyplastic syndromes (MDS) or myeloproliferative neoplasms (MPN). This includes patients, family and friends. Consultant haematologists, nurses, support group facilitators and volunteers.






Leukaemia Care is the UK’s leading leukaemia charity.  For over 50 years, we have been dedicated to ensuring that everyone affected receives the best possible diagnosis, information, advice, treatment and support.


We are here for everyone affected by leukaemia and related blood cancer types – such as myelodysplastic syndromes (MDS) and myeloproliferative neoplasms (MPN).


We provide information, advice and support for anyone affected, this includes patients and their friends and families too. We raise awareness of the issues impacting people affected by leukaemia, MDS and MPN, and campaign to fix them.  We are driving early diagnosis, raising public awareness, improving services and ensuring access to effective treatments.


How do we do this? We have a wide-range of services aimed at patients and their loved ones from diagnosis and beyond. Our support services range from nurse-led helplines, support groups and free-of-charge medical information to access to paid counselling, grants for those feeling the financial strain of a diagnosis and providing buddies so people always have somebody to talk to who have experienced something similar to them. We encourage you to have a read of our website and find out all the ways we support from diagnosis and beyond.


Crucial to our work is raising awareness of leukaemia as a blood cancer and the importance for early diagnosis. Leukaemia can be difficult to spot as the symptoms are similar to many other common conditions. Unfortunately, most people are not aware of the signs of leukaemia and this leads to diagnosis being delayed, which can worsen outcomes for patients.


As well as working to educate the general public through our #SpotLeukaemia campaign, we are working closely with our colleagues working in front line medical services to ensure they have the most up-to-date information on diagnosing leukaemia. We know that by raising awareness and working to educate health care professionals, we can save lives and improve outcomes.





This is an excellent opportunity if you wish to develop your career in patient support and services. Any necessary training will be provided for the successful candidate. You should be proactive, enthusiastic and excited about becoming part of a team looking to develop and implement the charity’s plans for the patient service team.


You will provide a regional presence on behalf of Leukaemia Care. The focus is on managing all activities within your region (e.g., support groups), identifying local opportunities; raising awareness of our services with healthcare professionals caring for leukaemia patients and individuals affected by leukaemia.


This will be primarily in hospital haematology outpatient clinics and on haematology wards but may also be at cancer centres and Macmillan pods.


You will be required to travel to our office in Worcester to attend any necessary training sessions. Use of own car is essential for this role with travel expenses paid.  A laptop and mobile phone will be provided, along with patient resources and conference equipment.



Duties and responsibilities


By working with the Patient Services Manager


  • Develop and implement Leukaemia Care patient services initiatives which underpin the strategic plan.
  • Work with the Patient Services team to support those affected by leukaemia, MDS and MPN.


Manage Regional Activities


  1. Manage all activities within your region (e.g. support groups) – with direct responsibility for regional KPIs.
  2. Represent Leukaemia Care at our in person and online support groups ensuring members are aware of our services and how to access them.
  3. Work with the wider Patient Services team to plan support groups in advance (e.g. venue, speakers, logistics, catering).
  4. Provide support to existing support group facilitators who may be haematology nurses or volunteers who are themselves patients.
  5. Identify and evaluate the need for a new support group and facilitate their set up – these could be online, in person or a hybrid.
  6. Encourage support group members to become involved in our Spot Leukaemia campaign (particularly in September for Blood Cancer Awareness Month).


Service Awareness


  1. Build relationships with healthcare professionals in your region – e.g. consultant haematologists, clinical nurse specialists and haematology nurses - in order to promote the charity’s services for patients and healthcare professionals.
  2. Promote our healthcare professional training - such as nurse forums and our Nurse Academy.
  3. Identify and evaluate the need for a Leukaemia Care hospital support worker in your region, working with the Patient Services Manager to implement.
  4. Represent Leukaemia Care at our patient and carer conferences and at non-Leukaemia Care events (at the request of the Patient Services Manager).
  5. Check our patient information booklets are displayed within in haematology outpatient clinics, hospital Haematology wards, cancer centres and Macmillan pods in order to promote the charity’s services for patients and healthcare professionals.
  6. Take orders for Leukaemia Care patient information booklets as necessary and forward to the office for dispatch.


Work with the Leukaemia Care Staff


  1. Liaise with the Communications teams to identify patient stories to help raise external awareness of the charity and our services.
  2. Liaise with the Patient Advocacy Team in identifying campaigning and advocacy issues presented by patients and carers.
  3. Work with the Communications Team to identify and develop content for the Patient Advocacy pages of the Leukaemia Care website.
  4. Work with the Communications Team in identifying and developing content for Leukaemia Matters magazine, website and other Leukaemia Care publications.
  5. Liaise with the Volunteer Coordinator on any volunteers located within their region ensuring they feel supported in their role




  1. Work with the team to organise a schedule, plan and calendar for each event and activity
  2. Liaise with the Communications team to develop communication and promotional materials
  3. Assist with enquiries over the phone and by email


Analysis and Impact


  1. Analyse the impact of our activities and effective methods, using agreed metrics
  2. Report on the progress of the activities internally, including recommendations and areas of improvement
  3. Understand and consider where each project fits within the wider programme of work




  1. Provide regular reports on your work and against your KPIs to your line manager.
  2. Represent Leukaemia Care at external events (at the request of the Patient Services Manager).





In addition to the specific duties and responsibilities outlined in this job description, all Leukaemia Care employees should be aware of their specific responsibilities towards the following:


  • Uphold the values of the charity and to not behave in a manner that is likely to bring the charity into disrepute.
  • Adhere to all health and safety and fire regulations and to co-operate with the charity in maintaining good standards of health and safety.
  • Demonstrate a commitment to ongoing learning and development and to participate in any training relevant to the role.


This job description is not exhaustive. It acts as a guide and may be amended to meet the changing requirements of the charity at any time after discussion with the post holder.






  • Degree (2.1 or 1st) and/or relevant professional qualification/experience



  • Healthcare background
  • Community Support.


How assessed:

  • CV and interview



Skills or Competencies



  • Excellent organisational and time management skills
  • Excellent communication, presentation and listening skills
  • Committed to supporting patients, carers and family members
  • Ability to work unsupervised
  • Able to carry out office administration tasks as part of role
  • Full UK driving license



  • An understanding of blood cancers


How assessed:

  • CV and interview






  • Highly IT literate (MS Office, Teams, GoogleDocs, Zoom)
  • Local services that may be relevant to blood cancer patients



  • Leukaemia, myeloproliferative neoplasms, myelodysplastic syndromes and the impact of a diagnosis
  • Scientific Experience
  • Knowledge of hospital frameworks
  • Cancer patient support
  • Raisers Edge database


How assessed:

CV and interview



Previous experience



  • Working remotely from home or in the community
  • Sales/promotion of services



  • Working in the charity sector, or with cancer patients and their families
  • Using the Raiser’s Edge database
  • Liaising with healthcare professionals


How assessed:

CV and interview



Personal qualities



  • A good team player – able to link in and work well with a range of people within the organisation
  • Ability to manage own workload
  • Able to work flexibly to meet the needs of the role with sufficient notice
  • High levels of motivation, when working alone or with a team
  • Ability to problem solve
  • Ability to learn quickly


How assessed:

CV and interview





More about Leukaemia Care

Living better with blood cancer

Leukaemia Care is a national blood cancer support charity. We are dedicated to ensuring that... Read more

Posted on: 11 November 2021
Closed date: 11 December 2021
Tags: Advice, Information, Support Worker

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