£26,000 - £28,000 per year
Permanent, Full-time
Job description
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

Our Information and Advocacy Service coordinates our support for families, providing advice and practical support to enable individuals to access the services, benefits and equipment they are entitled to. As part of our support we also connect individuals with others affected by these rare conditions through our peer support networks.

The Information & Advocacy Officer in Wales would ensure that service users receive a high quality of support and will assist them to access the statutory funding they are entitled to. The Wales Advocacy & Information Officer will join a team that makes a real difference to the lives of the people living with muscle-wasting conditions in Wales. The role will be home based, but there will also be a requirement to attend outpatient clinics within hospital trusts across the region, and to support those living across the UK through the helpline. You will work with statutory organisations, clinicians, social and health professionals to ensure that people with muscle-wasting conditions get the care and support they need to have a good quality of life.


The successful candidate should have:

  • Experience of casework, advocacy and promoting the rights of individuals  
  • Experience of working in partnership with other groups
  • Understanding of the issues and the needs of people with disabilities

Expectations in the role

  • To develop the care and support services in order to reach more people living with muscle-wasting conditions, and their families, in the region
  • To support the development of the charity’s advocacy and welfare service in the region, by taking on individual advocacy cases
  • To ensure service users receive high quality support at all times; through the Helpline and Support Services
  • To identify volunteers and support the Volunteer Engagement Manager to recruit and empower volunteers to manage and lead local Muscle Groups and peer support groups
  • To work closely with the Policy and Campaigns team to represent the work of the charity in the Welsh Assembly
  • To support with the development of the charity’s information factsheets to provide comprehensive information for families and individuals affected by a muscle-wasting condition

Please download the job description to see full role responsibilities.

About us

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 70,000 children and adults in the UK.


We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, health cash plan and an employee assistance programme.


This role is home-based within Wales.

In order to apply, please click on the Apply Now button and send your CV with a covering letter detailing why you are best suited for the role.

Please note interviews likely to be held on 12 August via Microsoft Teams.

*Unfortunately due to the high volume of applications we receive we will only contact candidates that are shortlisted for interview. Therefore if you do not hear from us within 2 weeks of the closing date please note your application has been unsuccessful.

More about Muscular Dystrophy UK
Muscular Dystrophy UK

Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK.  We bring together people affe... Read more

Refreshed on: 31 July 2021
Closed date: 08 August 2021
Tags: Advice, Information, Advocacy

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