Remote
£33,000 per year
Contract, 1 year, Full-time
Job description
 
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

This is a brand new, exciting opportunity within myaware to manage our existing and future research funding programme and develop our partnership working with organisations associated with the healthcare and treatment development for those living with myasthenia. This could include NHS Trusts, research centre, pharmaceutical companies and other charitable organisations. 

The role

As Research and Partnerships Officer you will be responsible for processing all research funding applications in line with myaware’s research funding policy. Working closely with the CEO, myaware medical/scientific committee and our legal team to ensure completion of all necessary legal requirements. You will work with successful grant/project leaders to ensure timely grant/project progress reporting and cultivate and maintain excellent working relationships and regular communications with myaware’s research funders including the families/executors of legators. This role will also include opportunity to host or represent myaware at important research meetings and events.

This role is pivotal in ensuring that the needs and challenges of our members are represented within the wider healthcare community, to increase vital awareness with the opportunity to develop the way in which myaware advocates on behalf of its members. Key tasks will include involvement in projects relating to the development of new myasthenia related medications and treatments and member consultation. 

Who are we looking for?

You will have experience of working within the healthcare/research/pharmaceutical sectors with a PhD in Life Sciences or similar. A keen interest in or a knowledge/understanding of grant administration. We are a looking for an innovative self-starter to join our small national team of 20 staff. You must be an excellent communicator, with experience of using databases, ability to meet deadlines and work on your own initiative. if this sounds like you, we would love to hear from you.

Who are we?

Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist benefits advisor and telephone or Skype counsellor. 

Myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 12,000 people currently living with myasthenia in the UK. 

Benefits

  • Generous holiday allowance
  • Perkbox account (global benefits and rewards platform)
  • Group Life Assurance after 6 months of service 
  • NEST workplace pension scheme
  • Free inhouse staff counselling
  • Free inhouse staff benefits and welfare advice 
  • Investment in your personal and professional development

This role is initially a one-year fixed term contract, with the possibility of extension 

Candidates should submit their CV and covering letter by 5pm on Monday 11th July 2022.

Refreshed on: 04 July 2022
Closed date: 11 July 2022 at 17:00
Job ref: RPO0622
Tags: Policy/Research, Advocacy

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