N1, London
£34,000 per year
Contract, 1 year, Part-time
Job description

Sarcoma UK exists to support everyone affected by sarcoma. This role will further enable and ensure the voice of the sarcoma community guides the strategic objectives of the charity and is represented throughout all the organisation’s work. 

The Patient Involvement Co-ordinator will create and implement a dynamic patient involvement and engagement strategy that puts everyone affected by sarcoma at the centre of our work. The role will work with all teams across the organisation, as well as externally with patients and their support networks.


Job Description

Salary:              £34,000 p.a. (pro rata)

Hours:              Part-time (22.5 hours per week)

Contract:          Fixed term (one year)

Location:          Home and office-based (Old Street, London N1)

Reports to:       Policy and Public Affairs Manager


  • Up to 5% matched contribution to Sarcoma UK pension scheme
  • Sarcoma UK life insurance scheme
  • 25 days holiday entitlement per annum plus bank holidays and the working days between Christmas and New Year
  • Interest-free season ticket and bicycle loan

Job purpose

To develop, administer and support Sarcoma UK’s patient involvement to maximise the impact of the charity’s objectives.

Duties and key responsibilities

Sarcoma UK’s patient involvement programme

  • To develop and implement effective patient involvement processes across all areas of the organisation.
  • To maintain a database of those with a direct personal connection to sarcoma who want to be involved in the work of the charity.
  • To work with colleagues from across the charity to create involvement opportunities and ensure these are inclusive and accessible for everyone affected by sarcoma.
  • To support the Communications team in ensuring the website maximises interest and accessibility for patient involvement.

Patient management

  • To grow the Patient Involvement Network and ensure that this dedicated group of supporters remain engaged with the charity.
  • To support engaging communications about opportunities within Sarcoma UK, working with the Communications team.
  • To be the main point of contact for the members of the Sarcoma UK Patient Involvement Network.


  • To support the implementation of the new organisational strategy and ensure patient input.
  • To support new projects from across the organisation which involve patients.
  • To attend Sarcoma UK events and take part in Sarcoma UK’s wider work.
  • To organise patient-focused events where necessary.
  • To travel occasionally to meeting and events. Occasional weekend or evening work may also be required and time off in lieu will be given.
  • To undertake other appropriate duties as necessary for the efficient operation of Sarcoma UK.





More about Sarcoma UK

Sarcoma UK is a national charity that funds vital research, offers support for anyone affected by sarcoma cancer and campaigns for better treat... Read more

Refreshed on: 24 November 2021
Closed date: 03 December 2021
Tags: Admin, Advocacy

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