London, Greater London
£31,000 per year with some out of hours working (inc. London weighting)
Contract, 18 months, Full-time
Job description

Involvement is a valuable activity providing the opportunity and platform for experts by experience (people with lived experience) to share their perspectives and opinions.  The Involvement workstream at the Trust underpins the overall strategy that people living with CF and their families are central to the Trust’s mission, that their lived experience and insights inform and influence the work of Trust (project proposals, literature, messaging, campaigning).  Beyond the work of the Trust, the Involvement workstream acts as a conduit between external organisations and the CF community.  There is a specific element of involvement required for clinical trials and research, which is also reflected in this role.

Each division within the Trust has a responsibility to involve CF community members in the proposal, development and delivery of their work.  It will be the responsibility of the Involvement Coordinator to support and promote the Involvement workstream, supporting colleagues to identif involvement opportunities, to plan and facilitate involvement activity, provide the conduit between external organisations and the CF community and capture feedback and impact to demonstrate how involvement is embedded across the organisation.  To reflect the importance and prevalence of dedicated involvement in research and clinical trials, 40% of the funding for this role is provided by the Trust’s flagship programme, the Clinical Trials Accelerator Platform to support this key element of the programme.

*Occasional National travelling will be required upon Coronavirus restrictions

Benefits include 30 days annual leave, flexible working and opportunities for learning and development.

The Cystic Fibrosis Trust welcomes applications from candidates from all backgrounds and particularly from people with cystic fibrosis, disabled people, and Black, Asian and minority ethnic (BAME) and LGBTQI candidates.


Interviews expected:  Week commencing  1st November

Full time 35 hours per week plus excellent benefits and flexible working
18 months fixed-term contract with possibility of renewal

More about The Cystic Fibrosis Trust
The Cystic Fibrosis Trust

About us

The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimite... Read more

Refreshed on: 02 October 2021
Closed date: 10 October 2021
Tags: Admin, Policy/Research