London, Greater London
Permanent, Full-time
Job description

Job Title:                   Volunteer Manager

Reports to:  Head of Policy, Public Inquiry and Programmes

Location:                  Central London (London Bridge) with overnight, residential and weekend working expected.

Salary:                       £36,000

Contract:                  Permanent

Hours:                       37.5hrs per week

About the Charity


We are the only UK-wide charity for all those affected by a genetic bleeding disorder; a community of individuals and families, healthcare professionals and supporters.  

For almost 70 years we have campaigned for better treatment, been a source of information and support, and raised the awareness of bleeding disorders.   

Our Vision, Mission and Aims


Anyone affected by a genetic bleeding disorder has the opportunity to live a fulfilled life.


· Inform

· Advocate

· Empower


· Everyone affected by a bleeding disorder has equality of opportunity

· Everyone affected by a bleeding disorder has the opportunity to connect with others in the    community  

· Everyone affected by a bleeding disorder has the knowledge to feel empowered

We do this by: 

  • Raising awareness about bleeding disorders  
  • Providing information and support throughout our members lives.  
  • Influencing and advocating on health and social care policy and access to treatment 

More than 30,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of The Haemophilia Society is free and open to all. 

Our peer support through local groups around the UK, online community, and members events offer friendship and a listening ear when needed, as well as enabling people to share their views and experiences. By bringing people together for information and support at events tailored to support members throughout their lives, we amplify their voices to reduce isolation and influence government, welfare and health care policy.  

Our community are at the heart of everything we do – we work collaboratively with members and health professionals to ensure we make decisions influenced by their valued input and direction. 

As bleeding disorders are rare, many people will never encounter The Haemophilia Society; we are largely invisible beyond the communities we serve. We have to work doubly hard to raise both awareness and understanding of bleeding disorders and vital funds needed to give those affected the services they deserve and need to live the best life they can.  

Purpose of Post

This is an exciting new role enabling us to build upon our current volunteer activity and develop a robust and structured volunteering policy and process. In this role you will build on the work we already do with our volunteers and local groups around the UK and ensure we can recruit and involve volunteers in an extensive range of activities which are engaging and highly valued, whilst being supported and developed in the role. We hope to enhance our volunteers experience, the service delivery of the organisation and the support we offer our community. If you are a talented and committed to developing an organisation and passionate about volunteer development we would love to hear from you. We value the huge commitment made by our volunteers and want to ensure our volunteers have the best possible experience with us.

Our peer support through local groups around the UK, global family network, and online community, offers friendship and a listening ear when needed, as well as enabling people to share their views and experiences. As part of the ongoing development of the organisation we are keen to expand and advance our network of local groups in order to improve our national reach and empower members to take a more active volunteer role in organising and shaping local events that meet their needs. A significant part of the role will be to lead on the work of developing our local group network working with the support of colleagues across The Society as well as supporting our programmes to develop and manage volunteers on our new helpline.

About the Post

As our Volunteer Manager, you will be part of the Policy and Programmes team, supported by the Head of Policy, Public Inquiry and Programmes, you will be responsible for the development, delivery and management of our new volunteer programme. This will include working with colleagues to identify volunteering opportunities, all aspects of safeguarding and administration, writing of policy documents, creation and delivery of volunteer training, recognising and supporting volunteers.  

You will be working closely with the Events and Programme Manager to recruit, develop and manage volunteers to deliver a new helpline service and the fundraising team to support the recruitment of fundraising volunteers.

You will be the key link with the current local groups to help them progress and plan activity in a sustainable way as well as proactively encouraging and assisting in the creation and set up of new groups. The role includes running the local groups forum, supporting and training members to ensure they have the capabilities to run a successful group, working with our communications team to look at new ways to engage local groups and visiting groups to understanding the needs of the groups and developing policies which align with the overall organisation’s values.


Volunteer management:

  • Working with the Head of Policy and Programmes, in line with the strategic plan develop a robust volunteering policy and programme for the organisation.
  • Work with other members of staff to understand and create valued volunteering opportunities and facilitate the aligning of skills and roles available.
  • Develop and deliver a structured volunteer training programme and recognition scheme.
  • Provide leadership to volunteers to ensure a coordinated approach to the provision of our work across the UK.
  • Work closely with the Events and Programmes Manager to recruit, train and manage volunteers to run our new Helpline.
  • Work with Policy and Programme staff to develop our Ambassador and Youth Ambassador Programmes.
  • Work with the fundraising team to develop a fundraising volunteer programme.

Local Group Coordination

  • Work with Officers of our current local groups to identify level of capacity of each group, working with local members create a development plan for each of the groups and support their progress ensuring a sustainable level of activity and support.
  • Working with the Head of Policy, Public Inquiry and Programmes review the policy and guidelines for working with local groups ensuring all governance and working practices are robust, events planned are risk assessed and include safeguarding procedures.
  • Examine the UK local groups structure and identify areas where local groups could be developed. Recruit local members and support the initial start and advance through to a development plan.
  • Develop the local groups forum as a vehicle to upskill members, provide a structured feedback mechanism and to enhance links between groups and the overall organisation.
  • Work to engage local groups to get involved in the organisation’s events and link into the volunteer programme.
  • Monitor and keep records of local groups officers, ensure they meet governance guidelines, are signed up to the local groups procedures and any activities align with the policies and strategy of the organisation, including safeguarding and GDPR.

Financial Management

  • Develop and manage the volunteering and local group development budget; ensuring effective budget preparation, planning, monitoring and review.
  • Produce reports and papers on the volunteering and local groups programmes as required for a range of audiences including the Head of Policy and Programmes and Chief Executive.


  • Ensure safeguarding policy and practice is updated and implemented across the organisation for the volunteer and local group programmes.
  • Ensure robust risk management is in place for the volunteer and local group programmes.
  • Ensure the appropriate dissemination of information through a range of channels including print, phone, face to face and online to inform and engage members in the volunteer and local group programmes.
  • To support membership development, ensuring we engage with our community combining an efficient, effective, and welcoming approach.
  • Be an effective member of the team, recognising, respecting and promoting the different roles and diversity of the individuals in the team and presenting a positive impression of the team and the organisation.
  • Undertake any other tasks that may be requested.
  • The post-holder must be prepared to travel throughout the UK and to work varying hours including evenings and weekends as required. This post requires extensive travel evening and weekend work.

Person Specification


  • Proven ability in successfully developing volunteering policy and designing and implementing a structured volunteering programme.
  • Demonstrated ability in effective recruitment, training, development and management of volunteers and associated roles.
  • Proven ability to work with communities across a wide range of age and levels of ability, together with a warm, outgoing and engaging approach.
  • Proven ability to negotiate and reach compromise in a manner which inspires confidence and respect from others.
  • Demonstrated ability to work with remote groups and working in collaboration to create development plans.
  • Proven ability to work in a complex environment and demonstrate ability to design and manage projects to delivery within time and cost.
  • A good knowledge of data protection and safeguarding with an understanding of the processes involved in their application.
  • Understanding of equal opportunities, access and inclusion and the ability to incorporate these into all aspects of work.


  • Experience of working within a membership or patient/family support environment.
  • Knowledge and experience of working on issues surrounding long term medical conditions gained from working in a healthcare, statutory or voluntary sector role.
  • Experience in safeguarding children and adults.
  • Experience of managing volunteers working on a helpline.

How to Apply

To apply please send a cover letter and up to date CV, highlighting your achievements to date and outlining your suitability for the post.

The closing date for this post is Thursday 26th September 2019

Interviews will take place on 9th and 10th October and will be held in Central London.

Our other benefits are:

  • 25 days holiday (including 3 days over Christmas) plus public holidays
  • Flexible working applications considered having passed the probation period (six months)
  • TOIL
  • Generous pension
  • Life and income protection insurance

We look forward to hearing from you.


More about The Haemophilia Society
The Haemophilia Society

We are the only UK-wide charity for all those affected by a genetic bleeding disorder; a community of individuals and families, healthcare prof... Read more

Posted on: 10 September 2019
Closed date: 26 September 2019
Tags: Advice, Information, Volunteer Management