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About us
Who we are
The Tuberous Sclerosis Association (TSA) is the only UK charity dedicated to supporting and representing people living with Tuberous Sclerosis Complex (TSC), a rare genetic condition that affects around 1 million people worldwide.
TSC causes growths to develop in different organs around the body. Common problems from TSC can include epilepsy, autism, learning difficulties and kidney problems. TSC affects each person differently, even within a family.
The TSA is here for everyone in the TSC community, including individuals living with the condition, families and entire communities. We help through:
- Support for the community: We support individuals and families affected by TSC, through our dedicated support team, up-to date information and annual flagship events
- Research: We fund world-class research into the causes, management and treatment of TSC
- Campaigns: We work to influence NHS policy to ensure that people affected by TSC get the care that they deserve
- Support for professionals: We expand the knowledge and expertise of health, social care and education professionals that help people affected with TSC
