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WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.
Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.
About us
We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.
What are we looking for?
We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work. As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.
We are keen to recruit people with skills and knowledge in one or more of the following areas:
● Business development and income generation
● Human resources and people management
● Fundraising and philanthropy
● Media, communications and public relations
● Reproductive choice techniques and ethics
● Research in genetics or rare conditions.
What will you be doing?
Trustees play a key role in leading and supporting the charity. We ask them to:
● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)
● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)
● Attend the one-hour Annual General Meeting in autumn each year
● Consider joining one of our sub-committees, with up to four online meetings each year.
The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities.
Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.
We will provide full induction for successful candidates.
All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.
The client requests no contact from agencies or media sales.
Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis?
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.
We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.
The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.
1. Treasurer
We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.
In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board.
2. Young Trustee
3. Endometriosis UK Trustee
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Do you want to co-ordinate vegan volunteering?
As an Organiser, you would be the caretaker of your local area. This is the more time-intensive role but so rewarding! Tasks would be emailed to you directly every month by our Volunteering Coordinator, who would be your main point of contact here at The Vegan Society. It would then be your job to send out the task to Advocates in your local area and get feedback from them. You'll also be able to ask your Advocates for help with any stalls and lobbying. Every Organiser receives an outreach pack, including a table runner, leaflets and banners. We make sure you are fully supported with an Organisers' WhatsApp group for socialising and ideas. We also have a monthly gathering on video.
What does the Organiser role involve?
Every month, you will be sent a collection of tasks to choose from. We create these from our programme of campaigns. You would be the point of contact for Advocates in your area, sharing these tasks and coordinating activities, such as stalls and lobbying councillors. We will provide you with a campaign toolkit and be in regular contact with you to ensure you have everything you need. You will also be invited to our private Facebook group and WhatsApp chat.
We would expect you to provide any updates from your group and give feedback on each task. It's vital that we measure the impact that we are having, in terms of positive conversations and leaflets handed out. You can also give us ideas you have for future outreach tasks or campaigning. Many Organisers find a huge sense of satisfaction, improvement in self-esteem and enjoy the social side of volunteering in this role.
You will also be responsible for welcoming new Advocates in your area. We will let you know when somebody new applies, and you will help them to get involved with any activities. As the main contact for Advocates, this role does require some awareness of safeguarding and data protection procedures and policy. There will be full training on your role in this, as well as a handbook and ongoing guidance and support.
What training and support is available?
There will be a full induction to the role, with a gradual introduction of new tasks and responsibilities. To start with, we will provide an initial training session to cover the basics of community organising, communication skills and event planning. This will be done remotely from wherever you are. Along with this, we will provide a full pack of resources that covers a range of work that we do.
From there, there will be regular conversations and reviews, where we can discuss other training requirements. Staff are always available to Organisers for any questions, via phone or email.
What skills would be useful in doing this role?
How much time do I need to invest?
You should be able to commit around two days a month to carry out actions, and this is usually spread out across the month. We also expect timely responses to emails. When a new Advocate applies to work with you, we would like them to be contacted within seven days via email.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Why we want you
As a community engagement volunteer you and your fellow branch members will create a range of activities to help spread the word about SSAFA within your community to ensure that that our Armed Forces community know that SSAFA are here to help and that we need the public’s support to continue offering our services.
This role is diverse and allows for you to focus on the areas that you have skills or interests in. The role has flexibility and can work around your other commitments.
Below are some examples of possible activities you can take on or be a part of as a SSAFA Community Engagement Volunteer.
What you will be doing
The skills you need
What's in it for you
Disclaimer
SSAFA is committed to safeguarding and promoting the welfare of all those involved in our work and expects volunteers to share this commitment.
Our vision A society in which the Armed Forces, veterans and their families can thrive.
The client requests no contact from agencies or media sales.