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WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.
Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.
About us
We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.
What are we looking for?
We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work. As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.
We are keen to recruit people with skills and knowledge in one or more of the following areas:
● Business development and income generation
● Human resources and people management
● Fundraising and philanthropy
● Media, communications and public relations
● Reproductive choice techniques and ethics
● Research in genetics or rare conditions.
What will you be doing?
Trustees play a key role in leading and supporting the charity. We ask them to:
● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)
● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)
● Attend the one-hour Annual General Meeting in autumn each year
● Consider joining one of our sub-committees, with up to four online meetings each year.
The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities.
Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.
We will provide full induction for successful candidates.
All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.
The client requests no contact from agencies or media sales.
Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis?
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.
We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.
The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.
1. Treasurer
We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.
In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board.
2. Young Trustee
3. Endometriosis UK Trustee
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control


The client requests no contact from agencies or media sales.
The e-Assessment Association Ltd. (eAA) is seeking committed and experienced members to join its Board of Directors and help shape the future of e-assessment.
Following the Association’s incorporation as a company limited by guarantee in 2025, the Board plays a critical role in providing strategic leadership, governance and oversight, ensuring the eAA continues to deliver positive impact for members and the wider assessment community.
Three Director positions will become vacant in September 2026:
Two Ordinary Director roles, to be filled by Ordinary Members
One Organisational Director role, to be filled by an Organisational (Sponsor) Member.
Directors are appointed for a three-year term, as part of the eAA’s annual rotation system, which balances continuity with fresh perspectives.
The Role of a Director
Directors collectively support the delivery of the eAA’s objectives, including professional support for the sector, positive advocacy for technology in assessment, the development of good practice, and awareness-building across the global assessment community.
The role involves:
Always acting in the best interests of the Association
Contributing to Board discussions, decision-making and strategy
Providing constructive challenge and assurance
Contributing in practical ways where appropriate
The expected time commitment is approximately 4–6 hours per month, including Board meetings and preparation.
A Skills-Led Recruitment Approach
The eAA Board operates on the principle of collective capability. No individual Director is expected to cover every skill or area of expertise.
Recruitment is therefore skills-led and informed by the Board’s Skills Matrix, which identifies areas of strength, gaps and emerging risks at a collective level. Each recruitment round focuses on strengthening priority capability areas, ensuring the Board remains effective, balanced and future focused.
Applicants are encouraged to be open and proportionate when describing their skills and experience, focusing on how they would complement the existing Board.
How to Apply
Applications and nominations are submitted via an online form.
The application form includes:
Key Dates
Nominations close: 26 June 2026 (12 noon GMT)
Interviews: 16 or 17 July 2026
Outcome announced: September 2026
Appointment start date: 25 September 2026
Application process
All applications are reviewed by the Nominations Committee, which:
Verifies eligibility and completeness
Reviews applications against the agreed skills priorities
Invites shortlisted candidates to meet a selection panel
Takes up references
Makes recommendations to the Board
The Board makes the final appointment decisions, and all applicants are informed of the outcome.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Head of Marketing and Communications (Volunteer Role)
Organisation: The Lysene Foundation
Location: Remote (global)
Time Commitment: Approx. 8 hours per month
About the Lysene Foundation
The Lysene Foundation is a start‑up charitable organisation inspired by the micronation known as the Principality of Lys — a creative community rooted in the classical arts, architecture, and beauty of the French Renaissance, Baroque, Beaux‑Arts, and the age of Humanism and Enlightenment.
We believe in a new Renaissance for Europe and the wider world. Our mission is to bring the cultural and community spirit of Lys to life through accessible public programmes, including community events, educational initiatives, exhibitions, publications, artistic opportunities, and more.
All activities and resources are open to the public without restriction.
The Opportunity
We are seeking a visionary and strategic Head of Marketing and Communications to build and lead our global communications function. This is a senior volunteer role ideal for someone who enjoys shaping brand identity, crafting compelling narratives, and establishing a strong public presence for a cultural organisation at an early stage.
You will design and launch our marketing and communications strategy, develop our brand voice, and oversee all public‑facing messaging across digital, print, and community channels. As we grow, you will build and lead a dedicated communications team.
This is a rare opportunity to define the public identity of a cultural foundation from the ground up.
Key Responsibilities
Develop and implement the foundation’s global marketing and communications strategy.
Establish a clear, compelling brand identity aligned with our mission and aesthetic values.
Oversee all external communications, including website content, newsletters, press releases, and social media.
Create and manage content calendars, campaigns, and storytelling initiatives.
Lead the development of marketing materials, visual assets, and promotional resources.
Build and manage a communications team, including future volunteer writers, designers, and social media leads.
Develop media relationships and seek opportunities for press coverage and partnerships.
Ensure consistent, high‑quality messaging across all platforms and programmes.
Monitor performance metrics and continuously refine communications strategies.
Work closely with senior leadership to support organisational goals and public engagement.
What We’re Looking For
Experience in marketing, communications, branding, PR, or digital media.
Strong understanding of content strategy, audience engagement, and storytelling.
Excellent writing, editing, and communication skills.
Ability to create structure, processes, and systems in a start‑up environment.
Strategic thinker with a hands‑on, proactive approach.
Passion for arts, culture, education, or heritage is a bonus.
A collaborative, supportive leadership style.
What You’ll Gain
The chance to build a global marketing and communications function from the ground up.
Senior‑level leadership experience within a growing cultural foundation.
The opportunity to shape brand identity, public voice, and long‑term impact.
A creative, mission‑driven environment where your ideas genuinely matter.
A meaningful role that strengthens your CV and professional profile, with a reference after a minimum of 6 months commitment to our Foundation.
Time Commitment
Approx. 8 hours per month, fully remote, with flexibility around your schedule.
How to Apply
Please submit your CV and a short statement explaining why you’re interested in this role and what you would bring to the foundation.
We Are Lys
We Are The Lysene Foundation
Offering accessible educational programmes, exhibitions, publications, & artistic opportunities that increase public understanding of Renaissance arts
The client requests no contact from agencies or media sales.
Kaleidoscope Trust is a UK-based international charity working for a future where LGBTI+ people everywhere can live free, safe and equal lives. For more than 13 years, we have worked in partnership with governments, activists and community organisations to provide funding, capacity building, research and advocacy support to grassroots movements across the Commonwealth and beyond. In the UK, we work across politics, diplomacy and civil society to ensure LGBTI+ rights remain a central part of the UK’s foreign policy and are championed within international institutions.
We are operating at a defining moment for global LGBTI+ rights. Across many countries, hard-won freedoms are being challenged by increasingly organised anti-rights movements, shrinking civic space and growing political hostility. Yet this period also demands ambition, resilience and solidarity. Having navigated a period of significant challenge, Kaleidoscope Trust has emerged with renewed strategic focus, strengthened partnerships and a clear commitment to supporting LGBTI+ organisations on the frontlines of change.
This next chapter includes the work of our Global LGBTI+ Rights Commission, bringing together research, advocacy and convening power to better understand and respond to the global rollback of rights. We continue to believe progress is possible when communities, governments and civil society work together – and we are looking for a Chair who shares that belief and can help lead Kaleidoscope Trust through this critical period.
We are now looking for a new Chair to lead our Board at this pivotal moment. Our Chair is responsible for ensuring that the board operates effectively and oversees a clear strategic direction for the charity, providing ambassadorial leadership as needed and constructive, supportive partnership with our CEO, Alex Farrow and our Senior Leadership Team. But critically, they will be a calm voice and fierce advocate as we navigate this rapidly shifting landscape.
We’re looking for someone familiar navigating complex human rights systems with the ability to foster high performing governance that enables our team to build connections and to recalibrate for best impact. The successful person will have prior Chair or non-executive experience, or at a minimum sustained Director-level board exposure. They will be an enabling, facilitative leader able to foster robust debate and decision-making, they will be comfortable advocating for the rights of LGBTI+ people and supporting our charity to remain financially sustainable and adaptive to evolving risk.
It’s important to us that as a Board, we represent the people that we are working to support. We know that diverse boards are the most effective, they can think creatively and hold each other to account, therefore we are particularly looking for applications from trans people, women, People of the Global Majority, people without a degree, working class people and people of faith.
Download the candidate pack for the full role profile and assessment process, and for a conversation about the opportunity, please contact Tanya Stevens at our search partner All Leaders.
This is a voluntary, hybrid position requiring attendance at several board meetings per year at Kaleidoscope’s London offices, several online sub-committee meetings, with wider remote advisory support totalling 10-15 days per year. The Chair commits to a three year term, which is once renewable. Travel expenses for interviews and board commitments will be covered as required. Discussions regarding access needs are welcome.
The closing date for applications is midday on Tuesday, 23 June.
The client requests no contact from agencies or media sales.