Fundraising officer volunteer roles

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.

The Position

We are looking for a Grants Officer who can support us with diverse tasks that include looking for grants opportunities, project development, proposals writing, and liaising with potential partners and donors. In this role you’ll be a key contributor to the continued existence of Second Tree, which is dependent on grants to survive, and to the creation of new projects and partnerships. To do this successfully, you'll need to employ meticulous time-management and organisation skills, as juggling multiple tasks with competing deadlines is common in this role.

The role will include:

• Researching and identifying new grant opportunities on a weekly basis

• Summarising relevant grant opportunities and suggesting how to best respond and comply with them

• Researching information and data necessary for grants and grant reporting

• Supporting the design of new projects

• Supporting with proposal writing

• Maintaining necessary records, files, reports, databases, and resource materials for the Grants team

• Working with the wider Second Tree team to ensure that all project proposals align with organisational, and programme strategies

• Establishing and maintaining connections with funding bodies

You should be able to:

• Professionally communicate in English (verbally and in writing)

• Read, comprehend, interpret, summarise and follow proposal guidelines

• Work to tight deadlines with flexibility and a problem-solving attitude;

• Conduct thorough, high-quality, independent research

• Work both independently and as part of a team

• Manage and prioritise projects effectively to meet team and proposal deadlines

The ideal candidate will have:

• Working knowledge of project management techniques such as LFA

• Knowledge of and experience with grant-giving bodies and other external funding sources (e.g. European Commission)

• A strong sense of logic while building an argument

What We Offer:

• A nurturing and collaborative working environment. We work hard to help our team members grow, investing in personal and professional development.

• Accommodation in a shared house

• Transportation to/from work

• After completion of a three-month trial, if you commit long-term, a small monthly expenses refund

In certain periods of the year, demand is extremely high, and the shared houses might be full. If you have the means to pay for your own accommodation, please let us know. We would still be happy to host you if space is available. However, in a situation where the shared houses are full, this would allow us to offer an opportunity to someone that cannot afford to pay rent.

Have experience leading a team of this type?

Consider applying to become a Grants Coordinator. Whether your experience lies in the humanitarian sector or elsewhere, we are looking for people with expertise that can drive us forward as an organisation.

Looking for an internship?

If, because of your degree or for any other reason, you would like to have your period at Second Tree credited as an internship, just apply to the vacancy that you’re interested in and mention this. We have agreements with several universities across Europe, and in many other cases, these agreements can be developed on an ad hoc basis.

NOTE: If you require a visa to stay in Greece for the minimum ten-week commitment, please know that as a Greek NGO, we are unable to sponsor your visa.

Kaleidoscope Trust is a UK-based international charity working for a future where LGBTI+ people everywhere can live free, safe and equal lives. For more than 13 years, we have worked in partnership with governments, activists and community organisations to provide funding, capacity building, research and advocacy support to grassroots movements across the Commonwealth and beyond. In the UK, we work across politics, diplomacy and civil society to ensure LGBTI+ rights remain a central part of the UK’s foreign policy and are championed within international institutions.

We are operating at a defining moment for global LGBTI+ rights. Across many countries, hard-won freedoms are being challenged by increasingly organised anti-rights movements, shrinking civic space and growing political hostility. Yet this period also demands ambition, resilience and solidarity. Having navigated a period of significant challenge, Kaleidoscope Trust has emerged with renewed strategic focus, strengthened partnerships and a clear commitment to supporting LGBTI+ organisations on the frontlines of change.

This next chapter includes the work of our Global LGBTI+ Rights Commission, bringing together research, advocacy and convening power to better understand and respond to the global rollback of rights. We continue to believe progress is possible when communities, governments and civil society work together – and we are looking for a Chair who shares that belief and can help lead Kaleidoscope Trust through this critical period.

We are now looking for a new Chair to lead our Board at this pivotal moment. Our Chair is responsible for ensuring that the board operates effectively and oversees a clear strategic direction for the charity, providing ambassadorial leadership as needed and constructive, supportive partnership with our CEO, Alex Farrow and our Senior Leadership Team. But critically, they will be a calm voice and fierce advocate as we navigate this rapidly shifting landscape. 

We’re looking for someone familiar navigating complex human rights systems with the ability to foster high performing governance that enables our team to build connections and to recalibrate for best impact. The successful person will have prior Chair or non-executive experience, or at a minimum sustained Director-level board exposure. They will be an enabling, facilitative leader able to foster robust debate and decision-making, they will be comfortable advocating for the rights of LGBTI+ people and supporting our charity to remain financially sustainable and adaptive to evolving risk.

It’s important to us that as a Board, we represent the people that we are working to support. We know that diverse boards are the most effective, they can think creatively and hold each other to account, therefore we are particularly looking for applications from trans people, women, People of the Global Majority, people without a degree, working class people and people of faith.

Download the candidate pack for the full role profile and assessment process, and for a conversation about the opportunity, please contact Tanya Stevens at our search partner All Leaders.

This is a voluntary, hybrid position requiring attendance at several board meetings per year at Kaleidoscope’s London offices, several online sub-committee meetings, with wider remote advisory support totalling 10-15 days per year. The Chair commits to a three year term, which is once renewable. Travel expenses for interviews and board commitments will be covered as required. Discussions regarding access needs are welcome. 

The closing date for applications is midday on Tuesday, 23 June. 

Our trustees and non-executive directors play a vital role in making sure that the group achieves its core purpose. They oversee the overall management and administration of the charity. They also ensure that there is a clear strategy and that our work and goals are in line with our vision.

Just as importantly, they support and challenge the CEO and executive team in the exercise of their delegated authority and affairs, to enable Thrive Social Housing and Emerging Futures CIC to grow and thrive, and through this, achieve our mission.

The Board operates under the leadership and guidance of the chair and works in partnership with the chief executive officer and the executive team.

Board members are expected to always act in the best interests of the organisation and its stakeholders, and to use their background knowledge and skills to work with the chair and other board members to ensure that the Board, supported by its committees, carries out its responsibilities effectively and lead from the top in demonstrating our culture, values and behaviours.

Board members have a collective responsibility. This means that trustees always act as a group and not as individuals.

Becoming a Trustee with Brigantia Learning Trust is an opportunity to make a meaningful, lasting difference. Trustees are central to our mission. You will be part of a committed group helping to shape the future of education across our academies. You’ll work alongside passionate professionals, community leaders, and educators to ensure that every learner thrives, regardless of background, barriers, or circumstance. This is a chance to support transformative work, promote fairness, and be part of creating excellence together. 

As a volunteer Trustee, we are committed to ensuring your time with us is meaningful and rewarding. As a Trustee, you will receive:

• A personalised induction and ongoing CPD
• Mentoring from experienced Board members
• Access to Trust-wide networks and national conferences
• Opportunities to build your governance experience
• Strategic engagement with our Executive Team
• The chance to shape young lives and strengthen communities.

Trustees play a critical leadership role to ensure the Trust meets its charitable purpose and remains focused on the communities it serves. As a member of the board, you will:

• Set and safeguard the ethos and strategic direction
• Monitor performance and hold the CEO to account
• Represent the voice and needs of our diverse communities
• Oversee financial and legal compliance
• Ensure decisions are made with equity, integrity and purpose.

We are building a Board that reflects the richness and diversity of the communities we serve. We welcome people from all walks of life who care about education and social justice.

• A shared belief in our mission and values
• Integrity, curiosity, and strategic thinking
• A sense of civic duty and community commitment
• Willingness to learn and grow as part of a team

We ask for: 

• 4–6 Board meetings per year
• Participation in at least one committee or working group
• Occasional attendance to school or Trust events (encouraged)

Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis? 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.

Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.

We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.

The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.

1. Treasurer

We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.

In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board. 

2. Young Trustee

• Recent personal experience of the impact of living with endometriosis whilst at school
• Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
  May 2026
• Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
• Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.

3. Endometriosis UK Trustee

• Personal or professional experience of diversity and inclusion issues
• Currently living in England, Northern Ireland, Scotland or Wales
• Charity Trustee experience
• Charity Senior Management experience
• HR expertise
• NED experience
• Experience of grant making / philanthropy

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.