Voluntary Grants Fundraiser

VOLUNTARY GRANT FUNDRAISER

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by leukodystrophy. Leukodystrophies are rare genetic disorders that mainly affect the white matter of the central nervous system, (ie the brain or spinal cord). They affect people of all ages and backgrounds, most notably children. Leukodystrophies are usually degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan.

Established in 2004, we are recognised by the NHS and global stakeholders as the "go to" organisation for those affected by these devastating conditions in the UK.

Like many other small charities, we have grown organically from an informal support group to the recognised voice for leukodystrophy patients and their families. To fulfil our charitable objectives, we need to increase and sustain our grant income levels.

Could you spare a few hours a week to help us?

ABOUT THE ROLE

Working with our Trusts and Grants Fundraiser, we are looking for volunteers, preferably with experience of grant fundraising, to:

• research potential grant making trusts for relevance to our specific objectives
• send applications using existing templates
• update our systems with details of applications

This is a wonderful opportunity to develop your existing skills within a unique arena, learn about the difficulties facing those with rare disease, and give vital and tangible support to sufferers of leukodystrophy.

We need your help to give hope and support to people affected by leukodystrophy.

ABOUT YOU

Candidates should be able to demonstrate the following:

• an interest in Alex TLC and the work that we do
• basic understanding of the complexities of leukodystrophy
• excellent written skills
• excellent computer skills, particularly Microsoft Word and Excel
• excellent organisational and administrative skills
• access to a laptop/computer, internet and printing facilities
• a basic understanding of (or keen interest in) grant fundraising

This is a remote role with an ideal commitment of at least two hours per week.

Unfortunately, we're unable to consider applications from non-UK residents. 

Alex TLC is committed to promoting diversity.