Marie Curie - Volunteer Research Voices Group Member - Home Based UK

Unpaid role, expenses paid

Actively Interviewing

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Job description


Why we need your help

Marie Curie set up the Research Voices Group in 2013 to make sure we’re engaging meaningfully with people in our research activities who have personal experiences of living with terminal illness or who have cared for someone with a terminal. Our aim is to enable members of this group to contribute at all stages of our research and policy work and in a variety of research projects that we fund. 

All you need to join is personal experience of living with terminal illness, caring for someone with a terminal illness or of bereavement. You’ll also be interested in supporting research in these areas. We would welcome volunteers from diverse backgrounds and who have lived experience in the past few years.  As part of the group, volunteers will help the Research and Policy teams to better understand the views of people living with a terminal illness, supporting people who have a terminal illness or of bereavement and help inform Marie Curie’s decisions on research funding,dissemination and campaigning activities.

This is a great opportunity to play an important role in helping to improve the future provision and quality of end-of-life care. It is also a chance to learn about the research and policy work in the sector.

What we would like your help with

Your role will include some of, but is not restricted to, the following tasks. You will be able to choose what you get involved with and how.

  • providing your opinion on research proposals that we’re planning to fund
  • helping to identify key questions for palliative and end of life care research
  • advising on research projects, for example as a member of a research steering committee
  • talking about research at external events and conferences
  • helping our team to plan and facilitate key events and workshops
  • sharing your experience at policy-making forums, speaking at conferences or attending Government events
  • reviewing posters submitted for the Annual Marie Curie Palliative Care Research Conference
  • reviewing grant reports and offering feedback on findings and achievements to grant holders
  • being a member of a committee such as the Marie Curie Research Funding Committee

What skills or experience will be useful

  • An interest in improving end-of-life care and in research and its evaluation
  • Desire to understand and engage with national and local decision makers to drive change
  • Good communication and organisational skills
  • Ability to read and comment on research summaries
  • Confidence in taking part in discussions in a committee situation
  • Respect for different opinions
  • A willingness to take an active part in meetings
  • To use your skills and experience gained through your professional or home life to support the work of the group
  • Access to phone or internet would be particularly useful

What we can offer you

  • The opportunity to help us improve palliative and end of life care both within and beyond Marie Curie’s services
  • Opportunities to enhance your skills and gain useful experience
  • Induction, training, support and supervision in your role
  • Reward and recognition for your time including out-of-pocket expenses
  • Support from the Marie Curie research and policy teams and fellow members of the group
  • The opportunity to share your experiences to improve care and support for others

What we ask of you

  • To provide two references from non-family members and other relevant documents related to the role
  • To keep to all the charity’s policies and guidelines
  • To complete an induction and any training relevant to the role
  • The group meets bi-monthly, mostly on-line and occasionally in person.  Any other time you choose to give is up to you.(home-based), with occasional visits to MC Head Office, Vauxhall, London

Diversity and inclusion

Marie Curie is committed to being a diverse and inclusive charity. We aim to demonstrate support for all of our staff and volunteers, valuing each individual’s contribution regardless of age, gender, gender identity, sexual orientation, marital status, civil partnership status, disability, nationality, race, religion or belief.  We are committed to providing equal opportunities to our staff and volunteers and to taking steps to ensure our staff and volunteers are protected from discrimination.


Every day of your life matters – from the first to the last. When you volunteer for Marie Curie, you understand that better than ever. We’re a passionate, committed and diverse team of more than 4,400 staff and  6,500 volunteers, here for people living with any terminal illness, and their families. We offer expert care, guidance and support, to help them get the most from the time they have left. 

Marie Curie is committed to its values, which underpin our work.  We take stringent steps to ensure that the people who join our organisation through employment or volunteering, are suitable for their roles and are committed to safeguarding all our people from harm. This includes our staff, volunteers and all those who use or come into contact with our services. We are dedicated to creating not just a safe place to work but also a supportive and rewarding one.

Marie Curie is committed to a world where everyone can thrive and fulfil their potential. We are devoted to the social justice imperatives and organisational benefits of full diversity, inclusion and equity in the workplace, and are a Stonewall champion. We actively encourage and welcome applications from candidates of diverse cultures, perspectives and lived experiences.

We reserve the right to close this vacancy early.

More about Marie Curie

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Posted on: 24 October 2023
Closing date: 22 January 2024 at 23:59
Tags: Policy/Research, Business Development

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