23

Voluntary Advocacy Volunteer Roles in Berkshire

Job Alerts On

No alerts left

Get job alerts sent straight to your inbox.

*Please enter a valid email

You haven't selected any filters. To create a tailored job alert, select your filters first.

Oh no!

By clicking 'Create alert' you agree to the Terms and Conditions applicable to our service and acknowledge that your personal data will be used in accordance with our Privacy and Cookie Policy and you will receive emails and communications about jobs and career related topics.

You will now get the latest from this search sent to your inbox.

Verify your email address and start receiving the latest job recommendations. Sign in or create an account to start managing your alerts.

A job alert for this search or a similar search term already exists. You can manage your job alerts by clicking here:

Medics4RareDiseases, Remote
Unpaid role, expenses paid
Posted 1 day ago Quick Apply
Planning Aid for London, Remote
Unpaid role, expenses paid
Posted 1 week ago Quick Apply
It Gets Better UK, Remote
Unpaid role, expenses paid
Posted 1 week ago
Purple Field Productions Limited, Remote
Unpaid role, expenses paid
Posted 1 week ago Quick Apply
Closing in 7 days
Pecan, Remote
Unpaid role, expenses paid
Posted 2 weeks ago Quick Apply
Closing in 3 days
The British Society for Rheumatology, Remote
Unpaid role, expenses paid
Posted 2 weeks ago
Page 1 of 2
Remote
Unpaid role, expenses paid
Voluntary
Job description

Responsible to: Chair of Trustees 

Start date: November/December

Who We Are

M4RD is a UK charity that is advancing rare disease training for medical professionals. The aim of our work is to help reduce diagnostic delay and improve patient experience for those impacted by rare conditions.

We work with an extensive network of patients, carers, advocates and advocacy groups to deliver training to medical schools, foundation schools, royal colleges, hospitals and trusts.

The charity is small and consists of a friendly group of staff and Trustees. The work can be intense but is very rewarding, as the charity responds to the needs of the rare disease political landscape.  

Please take a look at the M4RD website for more information on our team, and our work. You can also find more details on this position here.  

Why Join Us

At M4RD we are not just talking about change; we are making it happen - as evidenced by the attitude change towards rare disease training in healthcare driven by M4RD for the last five years. By becoming a Trustee, you will play a vital role in shaping the future of healthcare for people with rare conditions. Working with a dedicated team committed to systemic change in medical education, you will bring skills, experience, and knowledge that will support M4RD in achieving their objectives. 

Open Trustee Positions

We are expanding our board and seeking individuals with specific expertise to help us achieve our mission. Our new Trustees will be passionate about supporting the charity to deliver its objectives, and have skills and/or experience in one or more of the following areas:

  • Income generation 

  • Lived experience of a rare condition 

  • Healthcare education 

  • Clinical practice 

  • Lived experience of health and/or social inequality

  • Lived experience of societal marginalisation

Key Responsibilities

  • Ensuring the organisation pursues its stated objects (purposes), as defined in its governing document, by supporting the development of - and agreeing - a long-term strategy

  • Ensuring that the organisation complies with its CIO constitution, charity law, company law and any other relevant legislation or regulations

  • Ensuring that the organisation applies its resources exclusively in pursuance of its charitable objects for the benefit of the public

  • Ensuring that the organisation defines its goals and evaluates performance against agreed targets

  • Safeguarding the reputation and values of the organisation

  • Ensuring the effective and efficient administration of the organisation, including having appropriate policies and procedures in place

  • Ensuring the financial stability of the organisation

  • Protecting and managing the property of the charity and ensuring the proper investment of the charity’s funds

  • Following proper and formal arrangements for the appointment, supervision, support, appraisal, and remuneration of the Chief Executive

Why this Role is for You

  • You are passionate about the landscape of rare disease.

  • You have the skills and experience M4RD is looking for.

  • You are prepared to challenge systemic inequities within healthcare and medical education.

  • You are ready to make a long-term commitment to improving the lives of people impacted by rare disease. 

Time Commitment: The expected time commitment is:

  • 4 online Trustees meeting per year;

  • 1 face to face strategy meeting or event; and 

  • Some ad hoc committee work. 

However, we are also keen to invite those who are passionate about the charity's work and able to support in other areas.

Please take a look at the Job Description for more details on this role. 

We look forward to hearing from you!

Application resources
Posted by
Medics4RareDiseases View profile Company size 6 - 10
Posted on: 19 September 2024
Closing date: 09 October 2024 at 17:30
Tags: Policy,Training / Learning,Advocacy,Health / Medical,Strategy

The client requests no contact from agencies or media sales.