Long Covid UK

Who we are

Long Covid UK is a national charity set up by and for people living with or affected by Long Covid. Our mission is to reduce the impact of Long Covid and improve the lives of all those affected by driving long-term, systemic change.

Registered as a charity in 2022, we grew out of an online peer support group set up by people experiencing ongoing symptoms following a Covid-19 infection. From the early days, its members became advocates, pushing for recognition and support. Through our online and in-person groups we now support over 70,000 people with Long Covid. We are the Secretariat to the All-Party Parliamentary Group on Long Covid, participate in the Covid-19 Inquiry alongside other Long Covid charities, and are an active member of the Overlapping Illnesses Alliance. Most of our team are personally affected by Long Covid.

Our research work stream champions and supports research that deepens understanding of Long Covid, amplifies the lived experience of people affected, and helps drive evidence-informed improvements in care, support and recognition.

Our culture and values

Our Values

• Peer-led: Warm, genuine, compassionate, empathetic and approachable
• Inclusive: Diverse, equity-oriented and open-minded
• Expert: Professional, lived-experience informed, evidence based and knowledgeable
• Driven: Motivated, tenacious, passionate and determined 
• Collaborative: People-centred, partner-oriented, open, fair and holistic
• Dependable: Trustworthy, safe and respected

Equality, diversity and inclusion policy

We are committed to fostering an inclusive and diverse environment where everyone is treated with dignity and respect. We provide equal opportunities for all, regardless of age, disability, gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, sex, or sexual orientation. We actively encourage applications from all individuals of all backgrounds, particularly those with lived experience of Long Covid.