Sebastian's Action Trust

Who we are

Sebastian’s Action Trust was founded in 2004, inspired by the last wish of Sebastian, a remarkable nine-year-old boy who lost his life to cancer.

Sebastian wanted to create a place where families living with life-limiting childhood illness could come together, find support and simply enjoy time as a family. That wish became the heart of our charity, and it continues to shape everything we do today.

We support children and young people with life-limiting and life-threatening childhood illness, and the families who love and care for them. Because when a child is facing an uncertain future, the whole family feels it.

From our home at The Bluebells and through our wider community work, we offer families:

• Restorative breaks and family experiences - time away from the stresses of treatment, appointments and everyday pressures.

• Emotional and practical support – including counselling, guidance and someone to turn to when things feel overwhelming.

• Opportunities to connect – with other families who understand, helping to reduce isolation and build a sense of community.

• Moments that matter – from ordinary days together to special experiences and memories that families can carry with them.

We can’t change a child’s diagnosis or take away the uncertainty families are living with. But we can offer a place to rest, people who understand, and opportunities to spend precious time together. Because no family should have to face this journey alone.

Our culture and values

Our culture and values

At the heart of Sebastian’s Action Trust is a simple truth: families facing the unimaginable deserve time together, understanding and support that wraps around them.

Our values shape how we work, how we make decisions and how we support not just our families, but our colleagues, volunteers and communities around us.

We look after today and protect tomorrow 

We use resources responsibly, make informed decisions, speak up early, and act in ways that support safety, quality, and the long-term health of the organisation and the families we serve. 

We empower one another 

We build trust by sharing information openly, supporting each other and the families we work with to grow - encouraging ideas, and creating a culture where people feel confident to try, learn, and improve. 

We build community and connection, with families at the heart 

We create warm, professional relationships, collaborate across staff and volunteers, listen deeply to families, and ensure their experiences guide how we shape our support within safeguarding and organisational boundaries. 

We are committed to exceptional standards 

We take pride in our work, maintain ambitious standards, follow safe and agreed ways of working, and continually look for opportunities to develop and improve. 

Equality, diversity and inclusion policy

We are committed to equality of opportunity and to providing a service and following practices that are free from unfair and unlawful discrimination. Our aim is to ensure that no applicant or member of staff receives less favourable treatment on the grounds of age, disability, gender reassignment, marriage and civil partnership, pregnancy or maternity, race, religion or belief, sex or sexual orientation, or is disadvantaged by conditions or requirements which cannot be shown to be relevant to performance. It seeks also to ensure that no person is victimised or subjected to any form of bullying or harassment.