The Ataxia Telangiectasia Society

Organisation type Registered Charity Company size 6 - 10

About us

Who we are

The AT Society is the only UK charity dedicated to supporting people affected by ataxia telangiectasia (AT), a rare, progressive genetic condition. 

Our purpose is to enhance the quality of life and care for individuals with AT, while also advocating for research advancements and a potential cure. We do this by: supporting and funding high-calibre AT research; facilitating the development and implementation of clinical trials; offering specialist information, support, and care to address the complexities of living with AT; advocating for the representation of those impacted by AT; increasing awareness about AT; striving for improved, well-coordinated health and social care services in all sectors. 

Our culture and values

We are dedicated to ensuring people affected by AT can live the best lives possible, and are supportive, empowering, respectful and professional in all we do. We are collaborative, working in partnership with AT experts in the UK and across the world to maximise influence, awareness and knowledge. Where we come up against barriers, we seek agile and innovative solutions to ensure we can be there for those who need us.

Equality, diversity and inclusion policy

We are committed to creating a workplace where everyone is treated with dignity, fairness and respect. We actively promote equality of opportunity and are committed to preventing discrimination, harassment, victimisation and bullying in all aspects of employment, including recruitment, pay, training, promotion, performance management and day-to-day working practices.

Our policies and procedures are designed to ensure that employment decisions are based on skills, experience, performance and organisational need, regardless of age, disability, gender reassignment, marriage or civil partnership status, pregnancy or maternity, race, religion or belief, sex, or sexual orientation.

We foster an inclusive culture where diversity is valued and where employees feel able to contribute their perspectives, raise concerns and access support without fear of prejudice or disadvantage. We provide managers and staff with guidance on equality, diversity and inclusion, and we encourage open dialogue to help identify and remove barriers to participation and progression.

Any concerns regarding discrimination or unfair treatment are taken seriously, investigated promptly and addressed appropriately. We regularly review our employment practices to promote fairness, support inclusion and ensure compliance with equality legislation and best practice.

As an organisation dedicated to supporting people affected by disability and rare disease, we recognise the importance of inclusion both within our workforce and in the communities we serve. We strive to ensure that our employment practices reflect these values and provide equitable opportunities for all.

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The Ataxia Telangiectasia Society Unpaid role, expenses paid Remote
Closing 15 January 2027