Unique - Rare Chromosome Disorder Support Group

Who we are

As you navigate the world of rare chromosome and gene disorders, we want you to know that you are not alone.

At Unique, we understand genes and chromosomes. That’s why we offer accurate and accessible medical information.

Unique is an open, supportive community for people who are looking to learn, share lived experiences and connect with others.

We work with everyone whose life has been touched by rare chromosome or gene disorders. Whether you’re someone living with a condition, a parent or carer, an educator, a social worker, a doctor or a scientist – whoever you are, Unique is here for you!

We are here to support and celebrate people living truly unique lives.

We are Unique… and so are you. This is a journey we can make together.