About us
Who we are
The Huntington's Disease Association is the only organisation across England and Wales offering support to people affected by Huntington's disease. Huntington's disease is a life-limiting, genetic disorder that causes the breakdown of nerve cells in the brain. This leads to symptoms affecting three main areas, movement, behaviour and cognition.
The Huntington’s Disease Association was established in 1971 as a specialist service to help people and families seriously affected by Huntington’s disease. We raise awareness of Huntington’s disease across the general public and allied health and social care professionals. We offer practical advice and support, training to health and social care professionals and fund research into the disease. We want a better life for anyone affected by Huntington's disease.