Lipodystrophy UK

Who we are

Lipodystrophy comprises a group of rare conditions characterised by a lack of subcutaneous fat (normal fat storage under the skin). Lipodystrophy can be generalised (total fat loss) or partial (partial fat loss) and familial (inherited) or acquired (not inherited). The inability to store fat under the skin causes fat to be stored in places such as the muscles and liver which leads to severe metabolic complications including insulin resistance, diabetes, dyslipidaemia, heart disease, kidney disease, fatty liver disease and many others. Currently, there is no cure for Lipodystrophy and only the secondary complications can be managed/treated. Lipodystrophy affects approximately 1-5 in 1 million people across the world. 

Lipodystrophy UK is a dedicated UK charity set up to support people affected by Lipodystrophy. Our mission is to raise awareness of Lipodystrophy, support those who may be affected by Lipodystrophy and advocate for excellent clinical care and scientific research into these conditions.