About SMA UK

Welcome to Spinal Muscular Atrophy UK

SMA UK is a national charity committed to providing support and services to those impacted by Spinal Muscular Atrophy - a rare and complex genetic condition. We are also active in funding research into SMA, involved with advocacy for access to drug treatments, and raising public awareness. SMA UK was established in April 2018 as a result of a merger of SMA Support UK (formerly The Jenifer Trust founded in 1985) and the SMA Trust (founded in 2013).



We are registered with the Charity Commission (No. 1106815) and comply with the Charity Commission Code of Practice.

Our promises to you…

  • We respect your privacy and look after your information
  • We are committed to a policy of zero tolerance of abuse and neglect
  • We support anyone affected by any form of SMA. We encourage anyone, affected by SMA or not, to support our work
  • We are honest, open and careful about how we spend the money we are given
  • We are respectful, reasonable and accountable
  • We aim to communicate well with the people we support and the people who support us
  • We carefully recruit, train and look after our staff and volunteers

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