PWSA UK

Who we are

PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline a comprehensive information hub, a regional network of peer support groups with a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.

Our culture and values

Our Vision
Our Vision describes PWSA UK’s long term ambitions for the future, and the reason we exist. We believe that our vision is ultimately achievable and we want it to inspire and challenge:

Overcome the challenges of Prader-Willi syndrome
Our Mission Statement
To ensure every member of the PWS community has access to high quality care, opportunity and support, and to promote awareness, build knowledge and further research in order to overcome the challenges of PWS.
Our Values
People with PWS shape our day to day working and are at the core of everything we do.

Everyone at PWSA UK undertakes to constantly aspire to work with those affected by PWS with integrity, objectivity, accountability, openness, honesty and clear leadership, in order to underpin the ethical base of the Association.

Equality, diversity and inclusion policy

We are committed to encouraging and promoting equality, diversity and inclusion for all staff and job applicants, and eliminating unlawful discrimination. We aim to create a working environment in which all individuals are able to make best use of their skills, free from discrimination or harassment, and in which all decisions are based on merit.

The principles of non-discrimination and equality of opportunity also apply to the way in which staff treat visitors, clients, customers, suppliers and former staff members.