The British Porphyria Association

Who we are

The BPA is committed to advocating for, supporting and educating porphyria patients, relatives and medical professionals, so as to improve the quality of life for those living with the different types of porphyria. We promote disease awareness and the advancement of research into new therapies.

Patients often experience exceptionally negative effects on their physical health, family and social relationships, financial stability and psychological and emotional wellbeing. By providing families with the tools and resources to be informed about their condition, we can help to improve the lives of those affected.

Through our primary aims of Advocacy, Support, Education and Research, we address critical needs within the porphyria community through annually planned activities/events through themes of UNDERSTAND, CONNECT, TAKE CONTROL & SHARE.