Healthcare trustee volunteer roles in edinburgh

This is an opportunity to become Chair of a Charity which has recently celebrated its 10th anniversary. If you are someone who is looking to make a “real difference” for mothers/birthing people and their families facing one of the most challenging and unexpected periods of their lives, then we would like to hear from you.  We are also looking for a Chair who can lead and “harness” the range of skills present within our existing Board members, who come with a range of experience.

Now into our second decade as a charity, it is exciting time to join Mummy’s Star as the Chairperson. We have broadened the conversation about cancer and pregnancy nationwide, and internationally too despite our small stature. We now must sustain what we have built and help take the charity to that next level where we can elevate the voices of those we support, so that their needs are not only understood, but are also prioritised and used to inform policy and planning.

Are you passionate about social media and can lead a small team? We're looking to recruit a Lead Volunteer for our Social Media Team. We’re looking for someone who has a passion for promoting a small charity supporting a rare condition and has the ability to support a volunteering team as well as plan and use platforms and tools for social media including Canva, Google Drive and other digital platforms.

The Social Media Team develops and promotes Burning Nights CRPS Support’s communications online, using social media platforms as widely as possible, in order to maximise our impact and to inspire actions in the public, healthcare professionals, communities and businesses. The promotion of our activities will raise awareness of Complex Regional Pain Syndrome (CRPS) and provide support and empowerment to the CRPS community. Communications will also run in line with Burning Nights CRPS Support's campaigns strategy/plan.

This is a flexible volunteering opportunity, which means your commitment can be balanced around your lifestyle - being part of a team to ensure that communications to our community and supporters are up to date and timely.
You will provide leadership for your team and support the development of a communications plan for the charity.

Key Tasks and Objectives
You will lead and support an overarching communications strategy, direction and plans for Burning Nights CRPS Support's Social Media/online communications, create engaging content, supervise the team and encourage high standards.
Tasks may include:

• Managing the Social Media campaigns across social media, which includes overseeing engaging content, writing and editorial, design and artwork from The Social Media Team.
• Help develop social media campaigns and day-to-day activities.
• Prepare graphics for sharing across channels.
• Monitor the impact of social media campaigns; Analyse, review and report on effectiveness of campaigns in an effort to maximize the charity’s reach.
• Scheduling and posting social media content.
• Capture and report on monthly data from across all social media platform.
• Lead on Social Media meetings or the social media section of Comms meetings.
• Work with the whole Comms & Marketing Team including the Lead Communications & Marketing Volunteer to provide relevant content for their teams to use on social media, providing training/coaching where appropriate.
• Develop, manage content and maintain social media objectives and targets.
• Supporting the Social Media Team to ensure our social media platforms are regularly updated.
• Supporting with the development, preparation and implementation of Burning Nights CRPS Support's Social Media strategy in conjunction with the overall Comms strategy.
• Encouraging others to comment on our posts and share them with others, to ensure that our communications reach a wide range of stakeholders and diverse audience.
• Increasing the numbers of followers and engagement across our social media channels - Facebook, Instagram, LinkedIn, YouTube, Pinterest, TikTok and X, using appropriate tools and utilising relevant channels to reach diverse audiences.
• Monitor, analyse and report on the performance of social media channels/activities using tools like Metricool, Buffer and Google Analytics, feeding back monthly to the Lead Comms Volunteer and the trustees, using the data to inform future activities.
• Keep up to date with the charity and healthcare sectors, events and news, and suggest content to promote through our social media feeds.
• Support new volunteer Social Media Team members ensuring they understand their role or assign them their role.
• Act responsibly with data held by Burning Nights CRPS Support that you may access as part of your role, adhering to guidelines and policies and reporting any concerns or possible breaches to Burning Nights CRPS Support's Data Protection Officer/Lead.

Key Skills or Qualifications

• Experience of using social media platforms, other online tools and Communications to generate interest in a charity, business or project.
• Experience of managing a team and projects.
• The ability to inspire people to act and get involved internally and externally.
• Ability to transform small snippets of information into interesting and engaging stories suitable for social media platforms.
• Good IT skills, including Google Drive, Canva, Buffer, Word and Excel.
• Experience of managing multiple campaigns, with excellent organisational and time management skills, delivering effective targeted outcomes.
• Be proactive and show initiative, with the ability to volunteer unsupervised.
• Genuine interest in supporting a small charity and a passion for campaigning for a healthcare charity.
• Be motivated and enthusiastic with proven experience and is passionate about social media and marketing, and producing tangible results.
• Good interpersonal skills dealing with people sensitively and respectfully from a wide range of backgrounds
• Strong strategic development, project management and articulate communication skills.
• Good attention to detail and accuracy, with succinct writing and proof-reading skills
• Able to establish and maintain effective working relationships with other volunteers and staff.
• Excellent organisational and time management skills with the ability to prioritise and structure work schedules.
• Ability to be innovative and creative.
• Ability to be flexible and have a 'can do' approach.
• Friendly, approachable manner - able to build rapport with a range of partners and staff, and provide a collaborative team environment.
• Confidence in communicating on Zoom or by email.

Key Benefits

• Voluntary Experience: Gain practical real-world experience working in social media management.
• Supportive Team: Collaborate with a passionate team working on projects.
• Personal Development: Develop your skills in social media marketing, content creation, and community engagement.
• Portfolio content for future job applications.
• Opportunity to contribute to a meaningful cause.

Training and Support

• Full induction to our organisation, as well as check-ins, ongoing training, supervision and support from the Communications & Marketing Lead Volunteer, Volunteer Co-ordinators, Trustees and the Volunteer Team.
• Relevant and ongoing training for your volunteer role.
• Regular updates on charity activities.
• Support, advice and guidance from Charity team.
• After 3 months volunteering, all volunteers are eligible for additional training courses (reasonable cost).
• Out-of-pocket expenses, approved in advance will be reimbursed.

Summary: Driving medical communication and patient-led research agenda for a complex medical condition 

Description: You could make a real difference to the lives of patients and doctors struggling with a rare disease. That's what we do at Mast Cell Action - a charity dedicated to supporting the Mast Cell Activation Syndrome (MCAS) patient community and improving the evidence base for the disease.

We work hand-in-hand with doctors and patients to develop materials that truly make a difference. And with the help of our medical advisory panel, we're constantly improving our activities to better serve our community.

But we're not done yet. We're looking for someone with a genuine interest in this area, with medical, health, NHS, and research experience to join our team. You'll be responsible for developing and executing our strategy to engage with the medical community, research organisations, NHS policymakers, and our community as a whole.

You'll lead multiple projects, collaborating with doctors to better understand and define our community, as well as initiating and executing new projects. And with your expertise, you'll ensure that all our communications are evidence-based and informative.

So, if you're passionate about making a real difference, come and join us at Mast Cell Action. Together, we can create a brighter future for patients and doctors alike.

You will lead a team of passionate volunteers and interns, working closely with our Operations Director to drive our mission forward. One of your key responsibilities will be to nurture and grow our Medical Advisory Panel, working hand-in-hand with supportive doctors and medical institutions. You'll be the face of the charity, representing us in all our interactions with these key stakeholders.

You’ll report directly to our trustee board, ensuring that all of our activities are aligned with our overall strategy and goals.

We're looking for a dynamic individual who can inspire and motivate their team to achieve great things. If you're passionate about healthcare and have experience working with medical institutions, this is the perfect opportunity for you. So why not join us at Mast Cell Action and help us make a real difference in the lives of patients and doctors?

What impact will they have?

At Mast Cell Action, we know that communicating, engaging, and educating the medical community and policy makers is crucial if we want to improve support for MCAS patients. And that's where you come in.

As our communications expert, you'll play a pivotal role in advancing patient care over time. You'll work closely with doctors, medical institutions, and policy makers to raise awareness of MCAS and advocate for better support for patients.

By effectively communicating the importance of MCAS and engaging with key stakeholders, you'll help improve patient outcomes and quality of life in the long run.

If you're passionate about making a real difference and have experience in healthcare communications, this is the perfect opportunity for you. 

About the volunteer 

What skills should they have

We are looking for a volunteer who has experience in the NHS and medical/research environment. If you're someone who can assess a situation and develop a clear strategy to achieve the desired outcome, we want to hear from you.

As our ideal candidate, you're an effective communicator who can engage with doctors and produce written and visual materials that really make an impact. You're also a team player who can work effectively as part of a multidisciplinary team.

Managing projects and team members is second nature to you, and you're able to keep everyone on track and motivated. And with your awareness of the political and economic landscape in the area of complex diseases, you can navigate through any obstacles that come your way.

If you're passionate about making a real difference in the lives of patients with complex diseases and have the experience we're looking for, we want you on our team at Mast Cell Action.

Skills

Medical related background 

Medical writing skills

Project management 

Team management 

Analytical and conversant with research methodologies

Where and when

Work remotely, flexible hours 

Meetings in London 

Trips to medical conferences around uk

Reasonable Expenses covered.

Location: Worldwide

Term: Voluntary – Unpaid (reasonable travel expenses can be claimed)

Closing date: 31st July 2025

Inspired by the Islamic faith and guided by our values, we envisage a caring world where communities are empowered, social obligations are fulfilled, and people respond as one to the suffering of others.

We provide lasting routes out of poverty, empowering people to transform their lives and serving all communities without prejudice.

As an independent faith-based humanitarian and development organisation, Islamic Relief Worldwide (IRW) has been serving humanity for 41 years. With an active presence in over 40 countries across the globe, we strive to make the world a better and fairer place for the three billion people still living in poverty.

Since we were founded in 1984, Islamic Relief has grown into one of the world’s largest relief and development charities, touching the lives of over 120 million people.

Islamic Relief Worldwide (IRW) is seeking to appoint 1 (one) individual to join our International General Assembly (IGA).

Following appointment to the IGA, independent members are eligible for nomination to the BoT after 1 year as an IGA independent member.

Appointments on the BoT are for a 4-year term limit.

The IGA is the highest body of the new Islamic Relief Worldwide governance structure and consists mainly of representatives elected by Islamic Relief family members across five continents, creating a body that is truly globally representative.  It is from the IGA that IRW draws its trustees.

We would like to hear from exceptional applicants with considerable experience and specialist knowledge in a range of professional backgrounds: law, accountancy, audit, humanitarian programming, PR/communications, marketing or fundraising, IT, charity financial policy and strategy, shariah compliance. Those selected will play a vital role in IRW’s strategic work and in helping us respond to key challenges.

As a member of the IGA, it is expected you will be fully committed to the organisational objectives of IRW, sharing our vision, mission and values.  You will be expected to attend meetings and be willing to devote the necessary time and effort to the role and to act in the best interest of IRW’s work and its rightsholders.

The Role

Key responsibilities:

• Participate in the oversight of  the organisation in accordance with its statutory obligations, making sure that IRW satisfies its regulatory and legal requirements as a charity
• Act in a manner which supports the organisation in meeting aims and objectives as set out in IRW governing documents, and in ensuring IRW long-term security
• Focus on strategic planning and governance when setting IRW priorities and objectives
• Participate in the approval of annual plans, strategies and budgets

• Support the financial stability of the charity and contribute to its effective and efficient administration, reviewing and approving financial strategies and monitoring income and expenditure, to ensure the organisation is in good financial health
• Promote IRW’s vision, mission and values and demonstrate IRW’s values in all of the IGA’s work.

About You

We are seeking exceptional candidates with a breadth of leadership experience who can enhance the strategic development of IRW and have the following skills and qualities:

• A deep commitment and passion for IRW’s faith inspired values, vision and mission
• An understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship  
• Considerable professional experience and specialist knowledge in one or more of the following – law, accountancy, audit, humanitarian programming, PR/communications, marketing or fundraising, IT, charity financial policy and strategy, shariah compliance
• Strategic vision and critical thinking skills
• Skills in problem solving and conflict resolution
• Legislative and operating framework for charities/voluntary and community sector organisations, especially an understanding of Charity Commission requirements
• A good understanding of the context IRW operates within
• Excellent communication and interpersonal skills; enjoys teamwork
• Willing to be an ambassador for IRW
• Demonstrates past public conduct, statements and behaviour that are in line with IRW’s values and expectations of the role

If you are interested in these roles, please review the information pack before applying.

How to apply:

To make your application for the IGA position, please visit the link for instructions.

The deadline for applications is: 31st July 2025.

PLEASE NOTE: Only shortlisted candidates will be contacted. Applications without a cover letter will not be accepted.

Pre-appointment checks:

Any appointment with Islamic Relief will be subject to the following checks:

• Enhanced screening clearance
• Receipt of satisfactory references including the Inter-Agency Misconduct Scheme Reference
• DBS (Disclosure and Barring Service) check
• Personal social media review

Our values and commitment to safeguarding

IRW is committed to preventing any type of unwanted behaviour at work including sexual harassment, exploitation and abuse, lack of integrity and financial misconduct; and committed to promoting the welfare of children, young people, adults and beneficiaries with whom IRW engages. IRW expects all staff and volunteers to share this commitment through our code of conduct. We place a high priority on ensuring that only those who share and demonstrate our values are recruited to work for us.

The post holder will undertake the appropriate level of training and is responsible for ensuring that they understand and work within the safeguarding policies of the organisation.

The term will be subject to satisfactory references and appropriate screening checks, which can include criminal records checks. IRW also participates in the Inter Agency Misconduct Disclosure Scheme.

In line with this Scheme, we will request information from every applicant’s previous employers about any findings of sexual exploitation, sexual abuse and/or sexual harassment during employment, or incidents under investigation when the applicant left employment.

By submitting an application, the job applicant confirms his/her understanding of these recruitment procedures.