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Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.

"We are looking for 3 candidates to join our volunteer enhanced professional development programme and gain real world experience in your chosen field). While we only have 3 vacancies available through this programme, other options are available if your skills match our criteria".

QuilomboUK is looking for a PR & Marketing Assistant, who would love to join a growing organization. Quilombo UK works with the objective to promote different arts, sports, and cultures to encourage an intercultural understanding between different communities and societies; To promote cultural awareness in the community and educate, regardless of nationality or origin, about race diversity and mutual respect; To promote good health and wellbeing; and run a community organisation with a strong focus on individuals, the community and society.

This role offers a great opportunity for the right person who is looking to; gain experience in marketing; develop their skills and management experience; or just simply ‘give something back to their community’. The role provides you flexibility and autonomy at work. Where necessary specific training will also be provided to help you develop and grow your skill set.

As a PR & Marketing Assistant at Quilombo UK, you will play a vital role in providing general marketing support while actively engaging in various marketing tasks to contribute to the overall success of our initiatives. This position offers opportunities for personal and professional development within the different units of Marketing, including Social Media, Images, Video, and Website. Your responsibilities will encompass a wide range of tasks, from data collection and report compilation to active participation in campaign organization and development. You will also be actively contributing to real-life marketing projects and playing a key role in planning, developing, and implementing effective marketing strategies. This role requires a proactive and creative individual who will promote our organization through various channels, manage social media presence, contribute to innovative marketing programs, and engage in comprehensive market research.

This role is perfect for an enthusiastic and creative individual who is eager to gain hands-on experience in various aspects of marketing, from strategic planning to social media management.

Main tasks:

• Working on real life marketing projects

• Planning, developing and implementing marketing strategies.

• Promote the organisation through Social Media channels , and through maintaining and updating information about the organisation. 

• Managing the organisation’s social media pages by posting updates and responding to comments and messages

• Submitting ideas for marketing programmes/campaigns designed to enhance and grow the company’s brand

• Organising marketing campaigns

• Creating, organising and delivering presentations 

• Conducting market research and analysing participants’ reports, questionnaires and surveys. 

• Using social media and website analytics to find out the effectiveness of ongoing campaigns and understand the way users interact with the site and social media posts. 

• Contribute to staff meetings, and other internal meetings with views and suggestions.

• Analyze information to provide actionable insights and recommendations to the Directors

• Receive and interpret briefings from the Directors, ensuring a comprehensive understanding of organizational objectives

• Develop and deliver clear and concise communication to internal and external stakeholders

• Translate briefings into actionable outcomes, coordinating with various teams and individuals

·

Training and support available:

• Social media

• Canvas

Skills:

Essential

• Strong written and verbal communication skills.

• Attention to detail

• Flexibility and willingness to learn new skills

• Problem-solving, planning and creative-thinking skills

• Time management and prioritisation abilities

• Tactical understanding of all primary social media platforms

• Knowledge and understanding of online and offline marketing tactics

• Good Teamworking skills

• Strong organisational skills

• Numerical skills, which includes analysing and compiling spreadsheets

• Social Media skills.

• Office based skills (Word, Excel, PowerPoint)

• Adheres to the organisation’s key objectives 

• Delivering quality work in a timely manner

• Self-driven

• Ability to multi-task and adhere to deadlines

Desirable

• Committed to working with the community with a passion for helping others less fortunate. QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

• Good Knowledge of market research techniques and database

• Previous experience working in an office environment, dealing with administrative tasks or using a product database.

When needed:

Willing to volunteer at least 12 hours a week, for a duration of 16 weeks as part of a Personal Development Program (PDP).

QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

"We are looking for 3 candidates to join our volunteer enhanced professional development programme and gain real world experience in your chosen field). While we only have 3 vacancies available through this programme, other options are available if your skills match our criteria".

QuilomboUK is looking for a PR & Marketing Assistant, who would love to join a growing organization. Quilombo UK works with the objective to promote different arts, sports, and cultures to encourage an intercultural understanding between different communities and societies; To promote cultural awareness in the community and educate, regardless of nationality or origin, about race diversity and mutual respect; To promote good health and wellbeing; and run a community organisation with a strong focus on individuals, the community and society.

This role offers a great opportunity for the right person who is looking to; gain experience in marketing; develop their skills and management experience; or just simply ‘give something back to their community’. The role provides you flexibility and autonomy at work. Where necessary specific training will also be provided to help you develop and grow your skill set.

As a PR & Marketing Assistant at Quilombo UK, you will play a vital role in providing general marketing support while actively engaging in various marketing tasks to contribute to the overall success of our initiatives. This position offers opportunities for personal and professional development within the different units of Marketing, including Social Media, Images, Video, and Website. Your responsibilities will encompass a wide range of tasks, from data collection and report compilation to active participation in campaign organization and development. You will also be actively contributing to real-life marketing projects and playing a key role in planning, developing, and implementing effective marketing strategies. This role requires a proactive and creative individual who will promote our organization through various channels, manage social media presence, contribute to innovative marketing programs, and engage in comprehensive market research.

This role is perfect for an enthusiastic and creative individual who is eager to gain hands-on experience in various aspects of marketing, from strategic planning to social media management.

Main tasks:

• Working on real life marketing projects

• Planning, developing and implementing marketing strategies.

• Promote the organisation through Social Media channels , and through maintaining and updating information about the organisation. 

• Managing the organisation’s social media pages by posting updates and responding to comments and messages

• Submitting ideas for marketing programmes/campaigns designed to enhance and grow the company’s brand

• Organising marketing campaigns

• Creating, organising and delivering presentations 

• Conducting market research and analysing participants’ reports, questionnaires and surveys. 

• Using social media and website analytics to find out the effectiveness of ongoing campaigns and understand the way users interact with the site and social media posts. 

• Contribute to staff meetings, and other internal meetings with views and suggestions.

• Analyze information to provide actionable insights and recommendations to the Directors

• Receive and interpret briefings from the Directors, ensuring a comprehensive understanding of organizational objectives

• Develop and deliver clear and concise communication to internal and external stakeholders

• Translate briefings into actionable outcomes, coordinating with various teams and individuals

·

Training and support available:

• Social media

• Canvas

Skills:

Essential

• Strong written and verbal communication skills.

• Attention to detail

• Flexibility and willingness to learn new skills

• Problem-solving, planning and creative-thinking skills

• Time management and prioritisation abilities

• Tactical understanding of all primary social media platforms

• Knowledge and understanding of online and offline marketing tactics

• Good Teamworking skills

• Strong organisational skills

• Numerical skills, which includes analysing and compiling spreadsheets

• Social Media skills.

• Office based skills (Word, Excel, PowerPoint)

• Adheres to the organisation’s key objectives 

• Delivering quality work in a timely manner

• Self-driven

• Ability to multi-task and adhere to deadlines

Desirable

• Committed to working with the community with a passion for helping others less fortunate. QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

• Good Knowledge of market research techniques and database

• Previous experience working in an office environment, dealing with administrative tasks or using a product database.

When needed:

Willing to volunteer at least 12 hours a week, for a duration of 16 weeks as part of a Personal Development Program (PDP).

QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

White Ribbon Alliance UK are seeking passionate and dedicated individuals to join as Trustees. In this role, you will be instrumental in governing our charity and ensuring we achieve our mission to promote maternal health and rights. Trustees serve for a term of three years, with the possibility of renewal at the end of the term. We are looking to fill the positions of General Trustees, Board Chair, Treasurer, and Compliance Officer. Your strategic vision, commitment, and ambassadorial efforts will be vital in driving our organisation forward and making a significant impact on the communities we serve. Below is the role description and instructions on how to apply.

Statutory Duties of a Trustee 

Trustees share ultimate responsibility for governing the charity and directing how it is managed and run. This includes: 

• Ensuring that the organisation pursues its stated objects (purposes), as defined in its governing document, by developing and agreeing a long-term strategy. 

• Ensuring compliance with the governing document (constitution or articles of association), charity law, company law and other relevant legislation or regulations. 

• Ensuring that the organisation applies its resources exclusively in pursuance of its charitable objects, for the benefit of the public. 

• Ensuring that the organisation defines its goals and evaluates performance against agreed targets. 

• Safeguarding the good name, reputation, and values of the organisation. 

• Ensuring the effective and efficient administration of the organisation, including appropriate policies and procedures. 

• Ensuring the financial stability of the organisation. 

• Protecting and managing the property of the charity and ensuring the proper investment of its funds. 

• Following proper arrangements for the appointment, supervision, support, appraisal and remuneration of senior staff. 

• Scrutinising board papers, leading discussions, and providing independent, creative judgement on key issues.

• Offering advice and guidance on new initiatives, risks, or opportunities. 

Ambassadorial Contributions 

In addition to their statutory duties, Trustees are requested to use their specific skills, knowledge, networks, or experience to strengthen the board’s work according to their skills, capabilities, interests and available time. This includes: 

• Promoting the charity's mission and values: Trustees should consistently advocate for the charity's goals and principles in various settings, ensuring that the organisation's message is clearly communicated. 

• Representing the charity at external events: Trustees should attend and participate in meetings, conferences, and other events on behalf of the charity, acting as its official representatives. 

• Engaging with media: Trustees should be prepared to speak to the media about the charity's work, providing insights and information that highlight the organisation's impact and importance. 

• Leveraging personal and professional networks: Trustees should use their connections to support the charity's objectives, whether by opening doors to potential supporters, funders, collaborators, or influencers. 

• Cultivating strategic partnerships: Trustees should engage with stakeholders across healthcare, academia, government, and civil society to build and maintain relationships that benefit the charity. 

• Supporting fundraising efforts: Trustees should actively participate in fundraising activities, helping to secure the resources needed for the charity to achieve its mission. 

By fulfilling these responsibilities, trustees play a crucial role in enhancing the visibility and impact of the charity, ensuring its continued success and growth. 

 Skills and Capabilities Requirements 

Trustees are expected to bring both governance capability and a willingness to champion the charity externally. Essential qualities include: 

• A commitment to the organisation’s mission and values. 

• Willingness to devote the necessary time and effort. 

• Strategic vision and the ability to see the “big picture.” 

• Good, independent judgement and the confidence to speak one’s mind. 

• Ability to think creatively and contribute fresh ideas. 

• Understanding and acceptance of the legal duties, responsibilities, and liabilities of trusteeship. 

• Ability to work effectively as part of a diverse team. 

• Commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership. 

Desirable (but not essential): 

• Strong personal and professional networks, with the willingness to leverage them on behalf of the charity. 

• Experience in advocacy, fundraising, or public speaking. 

• Understanding of the wider charity, health, or social justice sectors in which White Ribbon Alliance UK operates. 

 Time Commitment 

• Statutory duties for general trustees: 6-8 days per year. 

• Statutory duties for Chair, Treasurer, and Compliance Officer: 10-12 days per year (inclusive of general trustee duties). 

Equity, diversity and inclusion

Equity and inclusion are central to White Ribbon Alliance UK’s purpose and how we work. We recognise that maternity harm, discrimination, and exclusion are produced by systems, and that governance must reflect the people most affected by those systems.

We strongly encourage applications from people who:

• Have lived experience of sexual and reproductive health and rights issues

• Are Black or from racially minoritised communities

• Are LGBTQ+, disabled, or neurodivergent or otherwise marginalised by society

• Come from communities underrepresented in charity governance

We value lived experience and community knowledge as expertise. You do not need to fit a traditional Board profile to be a strong Trustee.

We are committed to creating an inclusive and accessible recruitment process. If you require any adjustments to apply or to take part as a Trustee, we will work with you to put these in place.

Remuneration 

This is a volunteer position. Expenses incurred as part of fulfilling the role will be reimbursed.