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Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis?
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.
We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.
The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.
1. Treasurer
We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.
In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board.
2. Young Trustee
- Recent personal experience of the impact of living with endometriosis whilst at school
- Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
May 2026 - Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
- Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.
3. Endometriosis UK Trustee
- Personal or professional experience of diversity and inclusion issues
- Currently living in Northern Ireland, Scotland or Wales
- Charity Trustee experience
- Charity Senior Management experience
- HR expertise
- NED experience
- Experience of grant making / philanthropy
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Registered Charity
21 - 50
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control
The client requests no contact from agencies or media sales.
Thank you!
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. We are looking for a new Treasurer to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis UK is the largest UK charity for those with endometriosis. Endometriosis UK works to:
• Provide support to those with endometriosis and their families and friends
• Provide clear, objective information about the condition and its treatments
• Raise awareness amongst health professionals and the general public about the condition
• Support research into endometriosis.
This is an unpaid role. Reasonable pre-agreed travel expenses will be paid.
Time commitment:
• Five meetings a year, including preparation for meetings, reading papers etc; and attendance at an annual strategy day and AGM (held on the same days as Board meetings).
• Trustees have the opportunity to take part in Board sub-groups and project groups to develop aspects of the organisations’ work. Current sub-groups include the Finance Committee and Diversity & Inclusion Sub-Group. Trustees are also invited to attend Endometriosis UK events.
We are recruiting for one new treasurer to join the board. We are particularly looking for:
• Personal or professional experience of diversity and inclusion issues
• Marketing and digital marketing
• Communications and social media
• Campaigning and achieving change
• Experience of working in Primary Care
• Charity finance experience
• Currently living in Northern Ireland, Scotland or Wales
Personal experience of living with, or having a close family member with, endometriosis, is vital on our Board. Whilst we look favourably on applications from those in the endometriosis community, we already have Trustees with first hand lived experience and new trustees do not need to have endometriosis.
We also particularly welcome applications from trustees from a range of backgrounds and experiences as part of our commitment to diversity.
The role will start at a Board meeting on 28th November 2026, when our current Treasurer reaches the end of their 6-year term of office. Prior to the roles starting, the incoming Treasurer will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
Registered Charity
21 - 50
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control
The client requests no contact from agencies or media sales.