Head of professional status volunteer roles in Edinburgh

We’re looking for a new Brand, Communications and Creative Trustee who can use their skills to support our growing charity. In early 2026, CLAPA relaunched with a new brand identity. This role will ensure that our team are supported in brand and content strategy and making the most of the new brand for growth and engagement.

The Brand, Communications and Creative Trustee will participate in all areas of the charity’s governance with a special interest in brand strategy, content, communications and creative to support with the Board’s understanding and interpretation.

The Board of Trustees is responsible for the overall governance and strategic direction of the charity, developing CLAPA’s aims, objectives and goals in accordance with the governing document, legal and regulatory guidelines. You would be joining our board at an exciting time, as we continue to implement our 5-year strategy for 2025-2030.

About CLAPA

The Cleft Lip and Palate Action (CLAPA) is the national charity for people affected by cleft lip and palate in the United Kingdom.

CLAPA supports people affected by cleft to take control of their journey, connect with others, and use their voices to impact the future of care. Our vision is that no one affected by cleft lip and palate in the United Kingdom will go through their journey alone.

This is an exciting moment for us at SICK!, and we are thrilled to invite passionate, forward-thinking individuals to join our Board.

With our unwavering focus on mental and physical health, disability, inequality, and social change, our work has never been more relevant. We are proud of the growing impact we’re making locally and globally, and this is being recognised by our partners and funders who are investing in our long-term vision for the future.

Including Arts Council England who have committed to investing in our work as a National Portfolio Organisation 2023-2028.

In 2026, we present the latest iteration of SICK! Festival - with Beat One taking place throughout May.

Central to this is our Creative Resuscitation (CPR) model, which shifts us from a biennial, month-long festival to a year-round rhythm of seasonal “beats”. This structure is designed to disrupt unsustainable cycles, deepen relationships, and embed community voice and public outcomes across everything we do.

This festival, under SICK!’s new leadership, marked a pivotal moment in our journey as we deepen our commitment to engaging with pressing societal issues and sparking meaningful conversations.

We are looking to recruit new trustees, including but not limited to, with skills and professional qualifications in finance/accountancy, experience in communications or development and fundraising.

As an organisation, we are committed to ensuring our Board reflects the diversity of the communities we serve. We are actively encouraging applications from people facing racism, those who identify as LGBTQIA+, individuals from lower socio-economic backgrounds, and those with disabilities. We would also welcome applications from people with connections to Moston, Harpurhey, and Charlestown.

Join us and play a crucial role in shaping the future of SICK! as we continue our mission to challenge

perceptions, inspire action, and bring about real change.

We look forward to hearing from you.

About us

My Life Films is an award-winning charity that uses film and TV to enrich and support the lives of people living with dementia and their carers. My Life TV is our specialist on-demand streaming service, specifically designed to meet the cognitive needs of people living with dementia, for use within care settings and at home.

My Life TV is carefully curated to enable people living with dementia to feel stimulated and connected to the world, improving their mental health and supporting their essential care. 

Our high-quality content includes interactive shows like quizzes, singalongs, drawing and chair yoga; calming content, including animal and nature programmes and slow TV; a wide range of reminiscence programmes, from the 1960s onwards, and much more. 

Since launching in 2021 we work with highly respected content partners, as well as producing our own programming, in partnership with trusted organisations in the dementia care field, and more widely. The Alzheimer’s Society, BFI, Royal Parks, Museum of Brands, BBC Archive and National Trust are just some of the partners we are proud to work with.

We have ambitious plans to scale up its use, so we can reach and support as many people living with dementia as possible.

About the role

Stepping in at the helm of a well-established Board, and working closely with the highly experienced Executive Director, our new Chair will lead My Life Films through its next phase of growth and impact.

The new Chair will review and reinvigorate the charity’s governance, ideally including a board audit, as well as challenging and interrogating the group’s strategic plan.

This role will suit potential candidates who are ready to step-up to chair a not for profit organisation. This means they are likely to bring current or previous board experience as a non-executive or trustee. Candidates may have experience in the care sector, health sector, charity or foundation, possibly an organisation involved in supporting people living with dementia. This experience could enable candidates to draw on networks in the care, health, charity, voluntary sectors, social enterprise or foundation. It will be important that the new Chair can demonstrate a personal passion and commitment to improving the lives of people living with dementia.

The Chair will also help guide the Executive in optimising the existing model, developing new opportunities by helping expand networks and making introductions when necessary. They will act as a critical friend to Executive Director, coaching and challenging as required and providing leadership and strategic direction to the Board.

They will hold the organisation to the highest ethical standards, ensuring compliance with all regulatory requirements and that My Life Films is run in the best interests of its stakeholders.

The Board of Trustees is the governing body of the charity and is collectively responsible for its success. All trustees must take decisions in the interests of the charity.

My Life Films has a trading subsidiary – MLF Productions Limited – and it is expected that the Chair of My Life Films will also Chair the trading company.

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Selection Criteria

When applying, we ask candidates to highlight any areas of expertise they can bring in the areas identified below.

• Skills and Experience –

Governance / leadership

• Any experience of operating at Board level in the voluntary, public or private sector preferably with a knowledge of the Social Care sector.

• Understanding of good charity governance, including trustees’ legal duties, financial oversight and risk management.

• Experience of chairing effective meetings and facilitating inclusive, robust discussion and decision-making Experience of fundraising, advocacy, campaigning, or working with regulators, commissioners or major funders.

Strategy and finance

• Ability to think strategically, interrogate complex information and focus the Board on priorities, impact and long-term sustainability.

• Strong financial literacy and ability to scrutinize budgets, management accounts and risk registers (not necessarily as a finance professional).

People leadership

• Track record of leading senior individuals or teams; able to coach, support and hold to account a CEO

How to Apply

If you are interested in the role, Maana Ruia a trustee with My Life Films and a member of Enter The Boardroom Community would be happy to fix up a time to talk to you. 

Please submit your application to Julian Freeston  The application should comprise a Cover Letter detailing your suitability and desire for the role (no more than two pages) and an up-to-date CV (no more than four pages).

The application deadline is 5pm, 29th May 2026