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Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.

We’re seeking committed new trustees to help guide a small but ambitious charity supporting children and young people with cerebral palsy, ensuring our funds deliver meaningful, life-changing impact.

Our Board is made up of a small, committed group of trustees who bring a mix of professional expertise and personal connection to our cause. Together, we oversee a grant-making charity that has a long heritage and a clear ambition: to increase our income and ensure we can support more children and young people with cerebral palsy in meaningful, practical ways.

Like many small charities, our challenge is balancing strong governance with growth. We are financially stable and well run, but we want to think more strategically about our future: how we prioritise funding, how we grow awareness and income, and how we ensure every grant we make delivers real, lasting benefit for families. The new trustee will play an active role in shaping these conversations and helping the Board move confidently from steady state to sustainable growth.

The role is hands-on and collaborative. Trustees are expected to attend four board meetings a year, contribute thoughtfully to discussion and decision-making, and engage between meetings when specific issues arise. Depending on interest and experience, the new trustee may also be invited to take a lead role in an area of work or join a small working group, for example around fundraising development, investment oversight, or grant assessment.

This is an opportunity to influence how limited charitable funds are used where they matter most. Trustees are directly involved in decisions that enable children to access therapy, specialist equipment, and support that may not otherwise be available. For someone who wants to make a tangible difference, this is a role where your contribution can be clearly seen in the lives of the children and families we support.

The Board values open discussion, shared responsibility, and a supportive culture, making this an especially rewarding role for someone who wants their time and judgement to have genuine impact.

The Sutton Trust is at a pivotal moment in its development. For nearly three decades, we have been the UK’s leading voice on social mobility, working tirelessly to break the link between socio-economic background and life chances. Today, that mission is as urgent as it has ever been. Despite pockets of progress, social mobility in the UK remains low by international standards, with deep inequalities in education, access to professions, and regional opportunity continuing to limit life chances and economic potential.

We are seeking a Trustee with policy expertise who shares our commitment to fairness, evidence, and long-term change. We value diversity of thought and experience, and we are keen to hear from those who can help us navigate an evolving political landscape and leverage our research to challenge systemic barriers, ensuring our voice remains the most influential in the national drive to transform social mobility.

Duties and Responsibilities of a Trustee

Policy Responsibilities

• Providing oversight for the charity’s research and advocacy, ensuring the Trust’s work is mission-aligned, evidence-based, and intellectually rigorous
• Supporting the Board in discharging their collective duties around planning, risk and compliance, particularly in areas such as horizon scanning for upcoming legislative changes, political shifts and shifts in social trends affecting the Trust as well as specific regulations around political neutrality
• Leveraging their professional networks and expertise, enhancing the charity’s credibility and influence, ensuring our research translates into meaningful systemic change

General Responsibilities

• Inputting into and agreeing the Trust’s vision, mission and values and providing advice on the Trust’s wider purpose, goals and activities
• Inputting into and agreeing the Trust’s aims and long-term strategy in furtherance of its charitable purpose
• Ensuring key risks are identified, monitored and controlled effectively as well as keeping abreast of changes in the Trust’s operating environment
• Monitoring the Trust’s performance against its strategic aims, operational plans and budgets
• Safeguarding and promoting the Trust’s reputation, and acting in the best interest of the Trust at all times
• Ensuring the financial stability and sustainability of the Trust
• Ensuring the effective and efficient administration of the organisation, including having appropriate policies and procedures in place
• Ensuring proper arrangements are in place for the appointment, supervision, support, appraisal and renumeration of the CEO and they are held to account
• Contributing to regular reviews of the Trust’s own governance
• Ensuring the Trust complies with its governing documents, charity law, company law and any other relevant legislation or regulations

In addition to the above statutory duties, each Trustee should use their specific skills, knowledge and experience to contribute to the Board’s decision-making, and dedicate sufficient time to carry out their responsibilities effectively. This may involve sitting on Board Committees, scrutinising board papers, leading discussions, focusing on key issues, providing advice and guidance on new initiatives, or other issues in which the Trustee has special expertise.

Trustees aim to support a specific member of the SLT based on their skills and experience or may participate in appropriate subgroups, e.g., Alumni Leadership Board, Education Advisory Group, (Development) Board meetings, etc.

Person Specification

Mission and Values

• Sympathetic to the aims of the Trust and its mission to address educational disadvantage
• High level of personal and professional ethics, integrity, and accountability
• Willingness to safeguard and promote the Trust’s reputation within the wider sector

Strategy and Interpersonal Skills

• Ability to think strategically in order to provide appropriate oversight and scrutiny for the Trust’s overall activity and direction
• Ability to confidently and fairly make evidence-based decisions and constructively challenge the decisions of others if required
• Ability to collaborate and work as part of a team to provide advice, make decisions, and/or solve problems
• A commitment to personal development and a willingness to participate in regular reviews of the Board’s own performance and governance

Governance, Risk and Finance

• Understanding of the legal duties of a Trustee (or willingness to learn), including compliance with Charity Commission and Companies House regulations and commitment to the roles and responsibilities of a Trustee
• Awareness of (or willingness to learn about) financial health indicators and organisational risk management

Specialist Expertise and Experience

• A background in public affairs, civil service, think tanks, education sector organisations or senior policy or research roles in (education) charities
• Strong understanding of how UK government (at local, regional or national level) and/ or the UK education sector works
• Strong influencing and communications skills with the ability to lead discussions, provide expert advice, and influence stakeholders in a professional manner
• Good understanding of how to translate policy jargon into clear, strategic advice for the wider Trustee Board

Interviews

Applications should reach us by 10am, Monday 30th March. First round interviews will take place on Wednesday 15th and Thursday 16th April, and second round interviews will take place w/c 27th April or w/c 4th May. All interviews will be held at our London offices in Millbank Tower.