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Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis?
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.
We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.
The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.
1. Treasurer
We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.
In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board.
2. Young Trustee
3. Endometriosis UK Trustee
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control


The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This is an exciting moment for us at SICK!, and we are thrilled to invite passionate, forward-thinking individuals to join our Board.
With our unwavering focus on mental and physical health, disability, inequality, and social change, our work has never been more relevant. We are proud of the growing impact we’re making locally and globally, and this is being recognised by our partners and funders who are investing in our long-term vision for the future.
Including Arts Council England who have committed to investing in our work as a National Portfolio Organisation 2023-2028.
In 2026, we present the latest iteration of SICK! Festival - with Beat One taking place throughout May.
Central to this is our Creative Resuscitation (CPR) model, which shifts us from a biennial, month-long festival to a year-round rhythm of seasonal “beats”. This structure is designed to disrupt unsustainable cycles, deepen relationships, and embed community voice and public outcomes across everything we do.
This festival, under SICK!’s new leadership, marked a pivotal moment in our journey as we deepen our commitment to engaging with pressing societal issues and sparking meaningful conversations.
We are looking to recruit new trustees, including but not limited to, with skills and professional qualifications in finance/accountancy, experience in communications or development and fundraising.
As an organisation, we are committed to ensuring our Board reflects the diversity of the communities we serve. We are actively encouraging applications from people facing racism, those who identify as LGBTQIA+, individuals from lower socio-economic backgrounds, and those with disabilities. We would also welcome applications from people with connections to Moston, Harpurhey, and Charlestown.
Join us and play a crucial role in shaping the future of SICK! as we continue our mission to challenge
perceptions, inspire action, and bring about real change.
We look forward to hearing from you.
Please read the application pack before applying
The client requests no contact from agencies or media sales.
WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.
Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.
About us
We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.
What are we looking for?
We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work. As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.
We are keen to recruit people with skills and knowledge in one or more of the following areas:
● Business development and income generation
● Human resources and people management
● Fundraising and philanthropy
● Media, communications and public relations
● Reproductive choice techniques and ethics
● Research in genetics or rare conditions.
What will you be doing?
Trustees play a key role in leading and supporting the charity. We ask them to:
● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)
● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)
● Attend the one-hour Annual General Meeting in autumn each year
● Consider joining one of our sub-committees, with up to four online meetings each year.
The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities.
Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.
We will provide full induction for successful candidates.
All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
IKWRO is a registered charity which provides advice and support to Middle Eastern, North African and Afghan women and girls living in the UK, who have experienced, or are at risk of all forms of “honour” based abuse, including; forced marriage, child marriage and female genital mutilation (FGM), or domestic abuse.
We work with women and girls of all ages, including lesbian women, bisexual women and trans women. We offer services in Kurdish, Farsi, Arabic, Dari, Pashto, Turkish and English.
The overall role of a treasurer is to:
General responsibilities
In addition to the above statutory duties, each trustee should use any specific skills, knowledge or experience they have to help the board of trustees reach sound decisions. This may involve:
Additional duties of the treasurer
Treasurer person specification
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This Role Is Not Symbolic. It Is Structural.
Safeguarding is not a policy document.
It is not a checkbox.
It is not a compliance exercise.
In this CIC, safeguarding is the infrastructure that allows the work to exist at all.
We work with:
If safeguarding fails, everything fails.
This role exists to make sure that never happens.
Purpose of the Safeguarding Officer Role
The Safeguarding Officer is responsible for designing, implementing, and protecting the safeguarding framework that allows the CIC to operate safely, ethically, and lawfully at scale.
This role ensures:
About the role:
To design and uphold safeguarding systems that protect survivors, volunteers and the organisation, ensuring safety, ethics and legal compliance are built into every practice as the CIC grows. Safeguarding is the infrastructure that allows the work to "SAFELY" exist at all.
Experience Qualification and Requirements
Experience in safeguarding within:
Charity
Statutory services
Education
Health
Grassroots or community settings
Main Responsibilities/ Key Duties
Adults and children at risk
Volunteers and peer supporters
Digital spaces, storytelling, and online engagement
Ensure safeguarding is embedded into:
Recruitment and onboarding
Training and supervision
Programme design and delivery
Digital systems and data handling
Timely, appropriate responses
Accurate recording
Correct escalation to statutory agencies where required
Storytelling
Online engagement
Data use
You must:
You should have experience in some of the following:
Formal qualifications are welcome but not essential.
Integrity, clarity and steadiness are.
This role is not for you if:
What You Gain:
As the CIC scales, this role is expected to evolve into a paid senior safeguarding position, shaped by the person who built it.
Formal qualifications are not required, but desirable.
Essential equivalent experience mandatory.
Next Steps:
Shortlisted applicants will be invited to:
If you believe that well-organised, purposeful events can change communities, and that experiences inspire action, this role is for you.
A Final Word
Safeguarding is an act of love.
It is also an act of discipline.
If you know that:
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. We are looking for a new Treasurer to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis UK is the largest UK charity for those with endometriosis. Endometriosis UK works to:
• Provide support to those with endometriosis and their families and friends
• Provide clear, objective information about the condition and its treatments
• Raise awareness amongst health professionals and the general public about the condition
• Support research into endometriosis.
This is an unpaid role. Reasonable pre-agreed travel expenses will be paid.
Time commitment:
• Five meetings a year, including preparation for meetings, reading papers etc; and attendance at an annual strategy day and AGM (held on the same days as Board meetings).
• Trustees have the opportunity to take part in Board sub-groups and project groups to develop aspects of the organisations’ work. Current sub-groups include the Finance Committee and Diversity & Inclusion Sub-Group. Trustees are also invited to attend Endometriosis UK events.
We are recruiting for one new treasurer to join the board. We are particularly looking for:
• Personal or professional experience of diversity and inclusion issues
• Marketing and digital marketing
• Communications and social media
• Campaigning and achieving change
• Experience of working in Primary Care
• Charity finance experience
• Currently living in Northern Ireland, Scotland or Wales
Personal experience of living with, or having a close family member with, endometriosis, is vital on our Board. Whilst we look favourably on applications from those in the endometriosis community, we already have Trustees with first hand lived experience and new trustees do not need to have endometriosis.
We also particularly welcome applications from trustees from a range of backgrounds and experiences as part of our commitment to diversity.
The role will start at a Board meeting on 28th November 2026, when our current Treasurer reaches the end of their 6-year term of office. Prior to the roles starting, the incoming Treasurer will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Description
We are looking for a Volunteer Marketing Automation Specialist to help build and manage the CIC’s digital systems that connect campaigns, content, and community engagement.
You will design and maintain automated workflows, supporter journeys, and tools that help people take meaningful action while respecting trauma-informed and safeguarding principles. This role works closely with the Digital Marketing Director and Marketing team to ensure digital systems are secure, ethical, and effective.
The role focuses on marketing automation, workflow design, and improving supporter experience.
Key Responsibilities
What We’re Looking For
What You’ll Gain
The client requests no contact from agencies or media sales.