Specialist support workers volunteer roles in Alloa, clackmannanshire
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We are seeking new Professional members of the Registry Steering Committee (RSC) to help shape the future of the Registry and ensure it meets the needs of people with CF, clinical teams, researchers and other stakeholders.
This is a voluntary role (unpaid), but reasonable expenses can be claimed for travel to attend meetings in person if required.
This role part time and home based. This is a UK based role and candidates need to be UK based.
Term and commitment
- RSC membership term: three years (minimum one term).
- RSC meets quarterly (commitment to attend at least two meetings per year).
Who we’re looking for
We particularly welcome applications from CF professionals including:
- Adult and paediatric clinicians
- Early career professionals
- Pharmacists
- Allied health professionals
- Psychosocial workers
Applicants from across all four nations of the UK and from both adult and paediatric services are encouraged to apply.
Key responsibilities
- Contribute to strategic discussions and decision-making about the Registry’s direction.
- Review RSC papers and related documents outside scheduled meetings.
- Act as an advocate for the UK CF Registry.
- Optional: Join the Registry Data Review Group. This group meets online every six weeks and members provide Registry data request approval.
Essential experience and attributes
- Knowledge of cystic fibrosis and its key challenges.
- Ability to actively contribute to committee discussions and support informed decision-making.
- Ideally some experience working with the UK CF Registry or using its data outputs.
- CF clinicians and AHPs should be members of relevant professional bodies (e.g., BTS/BPRS, RCP/RCN, Cystic Fibrosis Specialist Group, CFMA).
Why join us?
- Make a meaningful impact on the lives of people affected by CF.
- Shape future Registry development and research.
- Engage with purpose-led peers and develop transferable skills (e.g., application reviewing, public speaking).
- Demonstrate continuing professional development through voluntary service.
Together we’re uniting for a lie unlimited for people living with CF. Add your experience and voice to the RSC and help steer the future of CF care and research.
Your Experience. Your voice. Your Impact.
Registered Charity
101 - 500
Uniting for a life unlimited for everyone affected by cystic fibrosis. Our mission is to create a world where being born with CF no longer means a lif
The client requests no contact from agencies or media sales.
Thank you!
Chair of Trustees role:
You will be chairing the Board of Trustees, ensuring that we have minimum representation required for decisions to be made, keeping the board aligned in decision-making, ensuring all minutes are recorded and that all decisions by trustees are made with the appropriate context provided.
This is a great opportunity to develop further governance skills and experience, and help steer an important charity in the right direction.
Trustees meetings are usually held every six weeks, plus there is an AGM, away days, and any sub-committee meetings that trustees may be involved in. Most meetings will remain virtual but there will from time to time be a need to attend key meetings and events in Nottingham. The time commitment is approximately 4hours per month, but there may be occasions when more time is required for a short period.
Who are we looking for?
- Previous chairing experience
- Relevant experience in any of the following financial management, HR, charities, fundraising, social prescribing, NHS, health inequalities (including deaf community), local authorities, marketing, business development, governance, strategy or legal
- A willingness to devote the necessary time and effort
- Good, independent judgement
- The ability to challenge and ask questions
- An understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship
- A commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty, and leadership
NB: We are looking for both a Chair of Trustees and additional Trustees (particularly those with a finance background, but other functions are also welcome). If you are interested in a Trustee role instead of the Chair role, please mention this in your covering letter when applying.
Both the Chair and Trustee positions are unremunerated, but reasonable expenses will be reimbursed.
About Self Help UK
Self Help UK is a leading peer support organisation with over 40 years of experience in developing and delivering peer-led services. Our mission is to empower individuals and communities by embedding peer support principles into health and wellbeing initiatives. We have created a range of innovative programmes that help people living with cancer and other long-term health conditions to navigate challenges and take control of their health and wellbeing.
We work in partnership with Macmillan Cancer Support on projects that make a real difference. These include national and local initiatives for the Deaf community, volunteer-led support for anyone affected by cancer, and prehabilitation services for those facing complex treatment. In 2026, we will collaborate with our Integrated Care System to improve health literacy and increase cancer screening uptake among underserved communities in Nottingham. Looking ahead, we are exploring a new direction to position Self Help UK as a holistic, person-centred support provider, embedding peer support and volunteer-led activity at the heart of everything we do. Our vision is to challenge health inequalities and enable people to feel confident, informed, and supported in shaping their own health journey.
A selection of causes covered by Self Help UK
- Peer support
- Long-term health conditions
- Cancer diagnoses and prevention
- Voluntary sector support
- Health inequalities (including the deaf community)
- Under-served communities
The client requests no contact from agencies or media sales.