Help safeguard our future: Join BBS UK as our Treasurer
Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.
Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.
We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.
It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.
The role
As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.
This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.
Key responsibilities include:
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Maintaining a strategic overview of the charity’s financial health
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Presenting clear summaries of financial information at Board meetings
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Advising Trustees on the financial implications of plans and decisions
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Overseeing the annual budget and supporting longer-term financial planning
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Ensuring appropriate financial controls and procedures are in place
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Supporting the preparation of annual accounts and liaison with the Independent Examiner
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Helping ensure appropriate reserves are maintained in line with policy
The Board of Trustees retains collective responsibility for the charity’s finances.
We’re looking for someone with:
Essential:
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Experience in finance, accounting, bookkeeping, or financial oversight
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Confidence interpreting financial information and explaining it clearly to non-financial colleagues
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Understanding of financial controls and good governance
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Ability to think strategically and identify financial risks
Desirable:
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Experience in a charity or not-for-profit setting
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Understanding of restricted and unrestricted funds
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Experience working with budgets or management accounts
We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.
As a BBS UK Trustee, you will have:
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Induction, training, and ongoing support
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Reasonable expenses reimbursed
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Opportunities to develop new skills and contribute at a strategic level
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The chance to make a meaningful difference to a rare disease community
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Opportunities to collaborate with dedicated trustees, staff, and partners
Time commitment
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Attendance at four Board meetings per year (online, approximately 3 hours each)
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Reviewing financial information monthly or quarterly
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Additional input around budget setting and year-end accounts
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Attendance at our annual conference weekend (in person; expenses covered)
If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.
BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.
By applying for this role you confirm that you are willing and eligible to act as a trustee of BBS UK, that you understand the charity’s purposes and governing document, and that you are not disqualified from acting as a trustee under charity law, including due to relevant unspent convictions, insolvency restrictions, regulatory removal or disqualification, director disqualified from acting as a trustee under charity law, including due to relevant unspent convictions, insolvency restrictions, regulatory removal or disqualification, director disqualification, or other legal prohibitions.
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
"We are looking for 3 candidates to join our volunteer enhanced professional development programme and gain real world experience in your chosen field). While we only have 3 vacancies available through this programme, other options are available if your skills match our criteria".
Job description
Quilombo UK is looking for a Bid Writer (Grant & Funds), who loves to face work challenges; to join their growing team.
The Bid Writer (Grant & Funds) will play a critical role by assisting the manager to prepare the proposal that helps the organization to further develop and establish.
This role offers a great opportunity for the right person who is looking to; gain experience in the Third Sector; love to 'give back to their community'. The role is for you if you are looking for flexibility and autonomy. Where necessary specific training will also be provided to help you develop and grow your skill set.
Main Responsibilities
- Apart from writing proposals, you will also be reviewing and editing previously written content wherever necessary.
- Working with other team members to produce bid responses and writings
- Helps in writing funding applications for the varied projects that we run in order to meet our organisational objectives.
- Also helps in presentations and all supporting documentation.
General tasks
- Contribute to staff meetings and other internal meetings with views and suggestions etc.
Essential
- You must be based in the UK
- You will need to have good written skills
- Able to write effective, concise and compelling content
- You will be self-starting and willing to research and look for new funding opportunities that match our aims and objectives;
- Ability to work on tight deadlines
- Well organized, proactive and able to deliver tasks efficiently.
- Able to speak confidently with a variety of stakeholders.
- Good time-management skills.
- Proficiency in Microsoft Word and excel.
- To show professionalism at all levels and in all environments
- Strong team player
- Ability to work independently and ask for clarification when needed.
The volunteering program with Quilombo UK requires a minimum of 16 weeks of commitment. We are looking for someone who can offer 12 hours a week, Monday - Friday (2 times a week).
Please note that this is a volunteering unpaid role.
Job Types: Part-time, Volunteer
Benefits: Work from home
Experience:
- Technical Writing: 2 years (preferred)
Work Location: Remote
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Research & Policy Officer (Volunteer)
Purpose: To support research / policy projects in areas of the UK, ensuring strategic alignment, quality assurance, and effective collaboration that drives systemic change for young people across the UK.
Key Responsibilities
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Provide strategic oversight of research / policy projects, ensuring outputs are high-quality and impactful.
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Lead on drafting policy briefs and research reports, setting standards for evidence-based advocacy.
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Coordinate multi-stakeholder collaboration, i.e councils, commissions, and community organisations to deliver change.
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Identify emerging issues and opportunities, help in shaping the research agenda in line with organisational priorities.
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Represent the organisation in external meetings.
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Ensure consistency and coherence across multiple projects running in different localities.
Person Specification
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Background in social policy, law, health, climate, or political science, ideally with professional or postgraduate experience.
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Proven ability to manage complex projects and coordinate across multiple stakeholders.
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Excellent strategic thinking and communication skills, able to influence decision-makers.
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Strong IT and remote collaboration skills.
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Deep commitment to human rights
