Weekend welcome volunteer volunteer volunteer roles in Edinburgh

This is an exciting opportunity for passionate, innovative individuals to join our small but dynamic charity and make a lasting difference for people affected by alopecia.​Alopecia UK is a national charity with a vision for a world where people affected by alopecia live the life they want. The charity’s mission is to offer support, community and education to improve the lives of those with alopecia.

We are seeking talented trustees to strengthen our strategic leadership and support smooth succession as current trustees reach the end of their terms. This is an ongoing recruitment process, and we welcome applications at any time, particularly from those with expertise in the following areas:

• Charity fundraising: Leadership in a fundraising environment, ideally within the charity sector.
• Communications & Marketing: Senior communications or marketing role, with strong audience engagement insight.
• Legal: Experience providing legal advice at a senior level, preferably with charity or governance exposure.
• Dermatology in the NHS: Experience of treating patients with alopecia, with a deep knowledge of clinical pathways and related challenges in primary and secondary care.

About Alopecia UK

Founded in 2004, we work to help adults, young people and children affected by alopecia. This includes those with alopecia, as well as their loved ones. We are a small charity, with an annual income under £500,000, working nationally across the UK. Despite being small, we are the largest alopecia charity in the UK and have big ambitions to continue our growth and development, reaching more people than ever before. We agreed a new strategy in May 2025, and are committed to our key goal, which is to increase our reach, particularly in the communities that haven’t yet found us.

We have a fantastic and dedicated staff team (5.4 FTE) and board of Trustees. We also rely upon the generosity of volunteers, many of whom have personal experience of alopecia themselves. Alopecia UK receives no statutory funding from the government and is funded by community fundraising, donations, funding grants, and corporate partnerships.

​Alopecia UK Trustee Board

The Alopecia UK Trustee Board are a group of dedicated volunteers who are committed to Alopecia’s aims.

The Trustee Board meets four times a year (two face-to-face meetings and two virtual meetings). Face-to-face meetings tend to be held on Saturdays from approximately 10am-4pm. Virtual meetings tend to be held midweek from approximately 6.30-8.30pm.

Trustees are encouraged to participate in charity campaigns and attend flagship events, e.g., our Big Weekend and Alton Towers trip. Trustees are not paid, but out-of-pocket expenses are reimbursed. Trustees serve at least three years
 

Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.