Advocacy manager jobs in cambridge, cambridgeshire

Call for expression of interest 

End-Term Evaluation Consultancy 

Project name: Strengthening Civil Society Representation of Women with Disabilities in Ghana 

Location: Ghana/Remote Global (at least 1-2 team members must be based in Ghana for data collection purposes) 

Length of consultancy: 8-9 months 

About the project 

The Strengthening Civil Society Representation of Women with Disabilities in Ghana project is a two-year project funded by the European Commission. The project aims to strengthen the capacity of two co-applicants (Women with Disability Development and Advocacy Organisation (WODAO) and the Alliance for Better Advocacy and Knowledge (ABAK) Foundation) in the areas of management, communication, fundraising, coordination, advocacy, gender, climate change, networking, and financial accountability.

The overall objective of the project is to strengthen both co-applicant organisations, their partners and their members to effectively participate in development and decision-making processes. 

About the consultancy 

The purpose of this end of term evaluation (ETE) is to assess performance of the project and to understand what specific learnings can be taken forward in future project design and implementation. It is also intended that the evaluation will contribute evidence and/or insight towards some of Sightsavers’ thematic learning questions. An external ETE, to be conducted by the end of the project, is also a requirement by the donor.  

The evaluation will also be designed to collect endline data for three project indicators, as specified in the project MEL plan. It is intended that the findings, learnings and recommendations from the evaluation will be used to inform the design and delivery of similar projects and programmes. 

The evaluation will employ a collaborative and participatory approach to ensure that the evaluation takes into account the complex nature of how capacity is strengthened. It will use a mixed methods approach, triangulating secondary project documentation and data with some qualitative primary data collection. This is likely to include key informant interviews (KIIs) and focus group discussions (FGDs) with various project stakeholders. The appointed consultant will further define the methods and tools and may wish to consider elements of outcome harvesting if deemed appropriate.

Skills and Experience 

The evaluation will be contracted to an external independent consultant or consultancy company. It would be beneficial if the consultant or team is at least partly located in Ghana. The evaluation team members should have the following core competencies and experience: 

• Extensive experience in monitoring and evaluation for international development project/programmes, with strong skills in both qualitative and quantitative approaches.

• Thematic expertise in disability inclusion, Climate Action, advocacy, and/or capacity development of women’s organisations is essential. Comprehensive understanding of preferred practices/policy issues at global and national level is desirable. 

• Prior experience working in Ghana is essential, including data collection experience. A consultant or team with members located in Ghana is preferred. 

• Must have experience of carrying out evaluations of an appropriate scope and scale. 

• Ability to travel within Ghana is required. 

• Proven ability to produce concise, readable and analytical reports. 

• Excellent communication skills, both written and spoken, in English. Fluency in other relevant local languages is highly desirable. 

• Proven ability to work independently, manage resources, and deliver work within agreed timeframes. 

In particular, the Team Leader (to be identified in the offer) is expected to possess a demonstrable senior evaluation expertise coherent with the requirements of this assignment and not provide less than 20 working days. 

This is a highly varied and involved consultancy position, and the above is not an exhaustive list of duties, required professional skills, project information, or expected scope of work. Please ensure you read the full Terms of Reference (ToR) for all details.  

Next Steps 

To apply for this exciting new opportunity, please complete an application via our recruitment portal. 

All applications must include: 

Budget Template (link here) – Please complete and upload this as part of your application 

CVs of all proposed consultants 

Completion of our online Expression of Interest from (EOI): Please ensure that Section 3 (Addressing the requirements) of the EoI form covers the following two points : 

1. Please describe your proposed design for the evaluation/learning exercise with particular reference to the key questions from the ToRs (Max 500 words). 

• Task conceptualisation

• Approach, framework 

• Methods, tools

• Etc.

1. Please describe your approach to addressing equity and inclusion, including gender, disability, marginalised communities etc. (Max 300 words) 

We anticipate that remote interviews will take place during the weeks of 6 October or 13 October 2025 and the evaluation process will include a 1 stage oral interview to be completed by shortlisted candidates.

Closing date: 28 September 2025 

As a global equal opportunities employer, Sightsavers is committed to embracing diversity throughout our workforce by creating an inclusive environment that reflects the many cultures and locations where we work. Our workforce will be truly representative of all sections of society and we will actively promote the inclusion of individuals with a disability. Sightsavers is a Disability Confident Leader and qualified people with a disability are particularly encouraged to apply.

Sightsavers is an employer that does not tolerate any form of harassment and has zero tolerance for sexual exploitation and abuse. All potential candidates will be subjected to rigorous background checks and controls. 

UK-based/ Colchester or Home-based with monthly travel to Colchester office. Overseas travel with trips lasting from 10-14 days. 

This post requires the candidates to have independent rights to live and work in the UK

Background

Lepra is dedicated to addressing leprosy and lymphatic filariasis (LF) and their consequences through direct support, advocacy, and the promotion of inclusive communities. We work in Bangladesh and in India, through our sister organisation, LEPRA Society. We work in partnership with people affected by leprosy and LF to improve detection, ensure access to treatment and care, and promote inclusion and wellbeing. Last year we finalised our new Global Strategy for 2024-30, which will guide us in our efforts to accelerate progress towards global targets for leprosy and LF, and towards our vision of a world free from leprosy and LF.

Job Context

Our Global Strategy marks a significant evolution in our organisational direction, introducing innovative approaches and renewed priorities. This includes our first-ever global Theory of Change (ToC), our most comprehensive Monitoring, Evaluation, Accountability and Learning (MEAL) framework to date, a Research and Innovation strategy, and a dedicated Advocacy sub-strategy to guide our influencing efforts.

With the Lepra Advocacy Strategy, we will be working over the next 6 years to strengthen our approaches to our advocacy efforts. The post holder will play a key role in supporting the roll out of the Advocacy strategy working closely with the Director of Programmes and Advocacy, the Head of Research, the Senior Programme Manager, the Programme Officer and the teams where we work.

Job Purpose

This role is an exciting role within the programmes team in response to evolving needs. The incoming post holder will work within the 5 person UK’s Programme and Advocacy team and will drive, advise and support the team in relation to Lepra’s advocacy profile. We are looking for an enthusiastic, motivated, strategic and creative person who has outstanding skills to engage and work with a diverse team. We are looking for someone to work with a clear strategy and then develop, grow and successfully shape the future of Lepra’s advocacy efforts.

Working Relationships

Reports to Lepra UK’s Director of Programmes and Advocacy (DPA)

Works closely with the Programmes and Advocacy Team

Close working links with colleagues in India and in Bangladesh and the UK’s communications team

International travel as needed for programmes oversight and support, and external representation.

Key responsibilities

Advocacy Delivery (50%)

Under the supervision of the DPA implement Lepra’s global Advocacy strategy and coordinate advocacy initiatives.

Serve as the driver of advocacy efforts, facilitating the transitional year of implementation including coordinating the Advocacy Steering Group; advocacy toolkit development; action planning.

Represent Lepra in specific fora and advocacy networks and within the broader leprosy and NTD community in close coordination with the DPA.

Produce quarterly advocacy newsletters

Maintain quarterly reports on flagging areas of concern and actioning steering committee advice.

Assist in the preparation of policy documents and the presentation of papers for publication, conferences, or specific institutions and/or individuals - identifying and targeting the most appropriate audiences.

Support and contribute to the development and implementation of initiatives that foster an inclusive, equitable, and diverse environment across organisational programmes, policies, and advocacy efforts.

Support and contribute to initiatives that promote inclusion and equity, with a strong focus on developing the leadership and advocacy capacity of people with lived experience of leprosy, ensuring their voices are central in decision-making and programme design.

Knowledge management / Learning and Development (20%)

Support the preparation of Lepra advocacy and policy documents.

Disseminate knowledge so that it is integrated into Lepra’s portfolio to amplify the impact for target audiences and improve their outcomes.

Facilitate the new knowledge and learning hub and forge a clear path for its evolution.

Facilitate knowledge sharing through updating the communications team with relevant materials for the new programme folder on the website.

Organise and develop advocacy training.

Develop and take ownership of the new programme’ s team knowledge sharing approaches.

Develop a workplan of knowledge sharing events. 

Support annual review meetings.

Communications (10%)

Assist the programmes team with the documentation of Lepra examples and models of best practice, at the same time identifying and developing mechanisms and avenues for the effective dissemination of this knowledge – internally and externally.

Assist the programmes team, DPO, Chief Executive and Country Programme staff in the synthesis of complex technical/scientific information adapting it to language and formats easily used by target audiences.

Contribute to content development of community engagement materials (public information, brochures, leaflets) that help explain the operations and impact of Lepra’s work to LF and/or leprosy affected communities.

Maintain good working links with Lepra’s UK Fundraising and Communications Team, contributing towards UK facing communications materials as and when required.

Prepare updates, papers, and reports for trustee meetings, funding partners, and wherever else applicable.

External representation (10%)

Support the Chief Executive, DPA and programmes team to maintain and expand existing strategic relationships with key international stakeholders to further Lepra’s advocacy strategy and advance Lepra’s agenda.

Ensure Lepra’s external profile is raised and become the go-to organisation for the leprosy community in terms of advocacy and policy briefings.

Support the preparation of documents for presentation, publication or dissemination at international fora.

Develop/support the development of country specific briefing notes/press kits with the communications team.

Represent Lepra at key events, conferences, and meetings to enhance our visibility and opportunity for impact.

Safeguarding (5%)

Promote a culture of respect, transparency, and accountability within Lepra’s implemented projects.

Ensuring that safeguarding mechanisms are in place and remain at the heart of all activities.

Support the integration of strong safeguarding and PSEA practices into project design and delivery.

Monitoring, evaluation, and impact (5%)

Ensure that all advocacy and knowledge transfer efforts are captured and embedded in appropriate results frameworks, objectives, outputs, indicators and Key Performance Indicators (KPIs). Provide inputs to Lepra’s reports, according to Lepra’s needs.

Person Specification

Qualifications

Essential

Relevant degree level of education in Public Health, Social Sciences, Global Health, Human Rights, Political Sciences or equivalent experience.

Desirable

Relevant post-graduate qualification

Relevant professional health-related qualification

Knowledge and Experience

Essential

Minimum of 2 yrs experience of advocacy/campaigning/policy work with an overseas development organisation

Experience of working to advance the rights of excluded populations

Extensive knowledge of global health issues and an up-to-date familiarity with issues and practice in the international development sector

Experience in planning and implementing successful strategies/campaigns/advocacy in Asia.

Experience in programme/project planning, budgeting, M&E and reporting, within a non-governmental organisation, including the preparation of reports for institutional donors.

Ability to analyse and act on data.

Experience of working on issues in relation to disability, mental health, gender, human rights and social inclusion.

Experience in project coordination and management.

Desirable

At least two years’ experience as an advocacy manager, preferably gained with an overseas development organisation or in academia, in a similar health focused role.

Familiarity with data visualisation tools and packages.

Proficiency in one or more Indian languages (e.g., Hindi, Tamil, Bengali, Telugu, etc.) is an asset.

Skills, Attitudes and Personal Qualities

Highly motivated individual with excellent interpersonal and communication skills, both written and verbal to build strong relationships, negotiate and persuade a wide range of audiences, with confidence at presenting and representing.

Proven strength in both written and verbal communication

Able to reach, network with and communicate to a wide range of stakeholders and potential stakeholders.

Excellent attention to detail, and organisational and time management skills

Ability to manipulate and analyse data to draw useful conclusions to improve programme delivery.

Ability to use databases, Word, excel, PowerPoint and other Office packages

Ability to work independently, be flexible and prioritise workload.

Ability to travel within the UK and overseas.

The right to work in the UK.

We operate a non-bias recruitment process and run our job advertisements through anonymous recruitment methods.

We offer a lot of flexibility in working practices and there is free reserved parking available at our Colchester office. We also offer 26 days annual leave plus public holidays (pro-rated), pension, Employee Assistance Programme and support from an in-house well-being team.

Only shortlisted candidates will be contacted and invited for interview. Please check your email inbox and spam/junk mail folder for any email correspondence for this vacancy.

If you require any reasonable considerations such as access or information in an alternative format, please inform us soon as you are able so that we can make the appropriate adjustments.

Please do not use AI to help you write cover letters, CVs and responses to any screening questions.  We want to hear your original voice.

Freelance Communications Manager (3 days/week, remote)

About Our Time

Our Time is a pioneering UK charity supporting children and young people who have a parent with a mental illness. We make sure these young people are not isolated or overlooked by providing tools, resources and safe spaces to help them thrive. We deliver innovative programmes, education, campaigning and advocacy that create lasting change.

The Role

We’re looking for a talented and hands-on Communications Manager to help amplify our impact at this exciting stage of growth.

Working closely with the Operations Director, you will manage and support our Social Media & Communications Officer while driving engaging communications across all channels.

Key responsibilities include:

• Developing and implementing Our Time’s communications and campaign activity.

• Managing, mentoring and supporting the Social Media & Communications Officer.

• Creating high-quality digital content for our website, newsletters and social platforms.

• Coordinating partner communications and supporting campaign mobilisation.

• Overseeing storytelling and narrative development to strengthen advocacy and impact.

• Monitoring and evaluating communications performance.

About You

You’ll bring established experience in communications, campaigns or advocacy (charity/NGO sector preferred) with strong digital content skills and social media management expertise. You’ll be confident managing colleagues or freelancers, an excellent writer and organiser, and able to work independently with initiative and creativity. Above all, you share our commitment to supporting children and families affected by parental mental illness.

Contract Details

• Freelance contract, £180 per day

• 3 days per week, fully remote

• Occasional in-person meetings (London/York)

How to Apply

Please download the application pack for full details on how to apply.

Please Note: Applications will be reviewed on a rolling basis and the vacancy will close once a suitable candidate is appointed, so early applications are encouraged.

Our Time is committed to safeguarding children and young people. Offers are subject to proof of UK work eligibility, satisfactory references covering the past five years, and an Enhanced DBS check. We welcome applications from all identities and backgrounds and will make reasonable adjustments to support candidates through the process.

Job title: Professional Communities Manager

Reporting to: Director of Membership

Line Manager Responsibility for: Professional Communities Co-ordinator

Location: This is a remote UK-based role with regular travel to CST’s national and regional events, mainly in Birmingham and London. Candidates within reasonable travel distance to these locations are preferred.

Salary: £41,603 - £45,470 a year.

Pension: We offer a workplace pension and life assurance scheme. CST makes contributions equivalent to 10% of your gross salary.

Annual leave: Initially 25 days annual leave plus bank holidays, with an additional two days leave after three years’ service.

Working hours: Full-time 37.5 hours.

Application Closing Date: Tuesday 30th September, 12 noon.

Interview Date: First stage interviews will be conducted on Tuesday 7th October 2025, second stage interviews will be conducted on Friday 10th October 2025.

Job overview

The Professional Communities Manager leads the development, content curation, and operational delivery of CST’s 11 Professional Communities. These networks, events, and forums are a core benefit of CST membership and are provided free of charge to members.

This is a proactive, member-focused role that blends operational excellence with strategic content oversight. The postholder will work directly with community chairs, subject experts, community supporters, CST platinum partners and members to ensure that all communities are vibrant, professionally hosted, and deliver high-quality, relevant content.

The role also plays a key part in ensuring a joined-up approach to content across CST’s full range of activities, working closely with the professional learning and conference teams and partnerships to ensure alignment and maximise value for members.

Key responsibilities

 Strategic Development and Continuous Improvement

• Develop and implement strategic plans to strengthen the value, engagement, and content of CST Professional Communities.
• Set clear objectives and KPIs to monitor success and drive continuous improvement of community services.
• Regularly evaluate community activity, identifying ways to increase engagement, relevance, and impact for members.

Community Content Curation and Management

• Oversee the quality, consistency, and relevance of content across all 11 Professional Communities, ensuring alignment with member priorities and organisational objectives.
• Work in partnership with community chairs, subject experts, community supporters and CST’s platinum partnerships to proactively commission, curate, and quality-assure community content (e.g., webinars, blogs, resources, discussions).
• Work closely with the professional learning and conference teams to ensure a joined-up, coherent approach to content across CST activity, avoiding duplication and enhancing overall member value.
• Identify content gaps and work creatively, including drawing upon resources and contacts within the policy and partnership team to address them, ensuring a balanced and evolving programme across the communities.

Community Engagement and Facilitation

• Lead and facilitate virtual and in-person community events, ensuring professional delivery and high-quality member interaction.
• Support and brief speakers, chairs, and contributors to ensure a consistently excellent experience for members.
• Actively promote member engagement through community platforms and other channels, driving participation and interaction.

 Stakeholder Relationships

• Build and maintain strong relationships with CST members, community chairs, speakers, and supporters.
• Collaborate with internal colleagues across membership, communications, professional learning, policy, and conference teams to maximise the impact of community activities.
• Manage relationships with sponsors where appropriate, ensuring alignment with CST values.

Digital Platform and Event Management

• Oversee the effective use of digital and platforms (including CiviCRM and Hivebrite,) to host communities, deliver events, and share content.
• Manage operational aspects of events and online communities, ensuring smooth logistics and excellent user experience.

Data, Insight, and Reporting

• Monitor and report on community engagement, content performance, and member feedback, using data to guide improvements.
• Lead the ongoing development of data processes for the communities, ensuring accurate insights are captured and shared.

Team Leadership and Development

• Manage, develop, and support the Professional Communities Coordinator, fostering a collaborative, high-performing culture.
• Encourage learning and development across the team to ensure consistently excellent member service.

Adaptability and Wider Contribution

• Contribute to broader membership engagement strategies and initiatives.
• Undertake any other duties as required by the Director of Membership to support CST’s mission

National Rural Touring Forum (NRTF) is looking for a new Director to lead our national network and champion rural arts across the UK. We’re seeking an inspiring leader with a collaborative approach to advocate for our members and sector, to strengthen partnerships and support a vibrant network that ensures creativity and culture thrive in every community.

About NRTF

NRTF is an Investment Principles Support Organisation (IPSO) within Arts Council England’s (ACE) National Portfolio. As a national membership and strategic organisation, we unite and champion the diverse parts of the rural touring sector. We advocate on behalf of our members, offering up-to-date information, advice, guidance, professional development and networking opportunities. By sharing news, stories and opportunities, supporting rural touring-focused projects and initiatives, and through our Annual National Rural Touring Conference, we raise the profile of rural touring, embedding its value in the wider cultural landscape. We celebrate the work and achievements of the volunteer promoters, professional artists and organisations who make culture accessible for rural communities. This is an exciting moment to join NRTF as we enter our third decade as an organisation and continue building the profile and impact of rural touring across the UK, while supporting the passionate and committed members at the heart of our network.

Main Purpose of the Role

The Director is the strategic and operational lead of NRTF, responsible for the organisation’s vision, management, performance, and long-term sustainability. They ensure delivery against NRTF’s mission and business plan, champion rural touring at a national level, and act as the primary liaison with Arts Council England, stakeholders, and the wider sector. Working closely with a proactive Board of Trustees, the Director provides leadership on governance and compliance in line with UK Charity Law and NRTF’s Articles of Association, ensuring the organisation operates with transparency, accountability and good practice. The Director is a visible ambassador for rural touring, building strong relationships across the cultural sector, advocating for members, and promoting the role of rural touring in ensuring that creativity and culture thrive in every community.

Key Responsibilities

Strategic Leadership

● Lead and implement NRTF’s Business Plan and strategic objectives.

● Oversee the delivery and evaluation of all funded programmes and initiatives.

● Develop and sustain relationships with our members, including the rural touring schemes, national and regional stakeholders, funders, and policy-makers.

● Ensure alignment with ACE’s Investment Principles and “Let’s Create” strategy.

● Ensure long-term sustainability through innovation, partnerships, and appropriate diversification, ensuring the organisation remains relevant and forward-thinking.

Finance and Fundraising

● Lead financial planning, budgeting, and reporting in collaboration with the Finance Officer and Treasurer.

● Ensure ACE and funder reporting is accurate and timely.

● Lead on developing new funding opportunities, working with colleagues and freelance support to secure income from trusts, foundations and diversification streams.

Membership and Sector Support

● Foster strong relationships with membership, particularly scheme members.

● Understand and respond to member needs, ensuring services and benefits are relevant.

● Foster a strong member community through events, forums, and networking opportunities.

● Together with the NRTF team, design and deliver initiatives to grow, engage, and retain members.

● Represent NRTF and advocate for member interests at national and international events, conferences, and sector forums.

Project and Event Delivery

● Provide strategic oversight of all NRTF projects, ensuring they are well-managed, impactful and aligned with the business plan.

● Lead and represent NRTF at the Annual National Rural Touring Conference and other national events, with project managers and freelance teams responsible for delivery.

● Foster partnerships with schemes and sector organisations to co-create and deliver events and projects that serve members and raise the profile of rural touring.

Communications and Advocacy

● Provide strategic leadership for NRTF’s communications and advocacy, ensuring consistency of voice and alignment with the business plan.

● Lead sector advocacy and act as spokesperson and ambassador for rural touring.

● Maintain and develop national visibility for rural touring through partnerships, media opportunities and press engagement (with support from NRTF’s freelance press agency).

● Oversee delivery of marketing and communications, working with the Marketing & Digital Coordinator to manage campaigns, content and social media.

● Build strategic partnerships with other organisations, funders, and influencers.

HR and Operations

● Lead on recruitment, contracting, staff management, and HR policy implementation.

● Line-manage employed staff, ensuring fair and effective working conditions.

● Manage Contracts for Services for freelance teams and contractors

● Maintain organisational infrastructure, including IT, office resources.

Governance and Legal

● Support and develop the Board of Trustees, ensuring sound governance practices.

● Organise and service Board meetings, the AGM, and working groups.

● Act as Company Secretary: ensure compliance with charity and company law, maintain registers, and submit returns.

Person Specification

Essential

● Proven senior leadership within arts or cultural organisations.

● Commitment to rural/community engagement.

● Strong understanding of the UK arts funding landscape, especially ACE.

● Demonstrable experience in finance, HR, governance, and fundraising.

● Experience in project delivery.

● Strategic thinker with exceptional communication skills.

● Experience of working and engaging with key stakeholders.

● Experience working with or supporting a Board of Trustees.

● Commitment to diversity, equity, and inclusion.

● Evidence of original thinking, idea making and bold ambition.

● Caring and positive leadership style.

Desirable

● Awareness of the ethos, principles and practice of rural touring.

● Knowledge of community arts and engagement, and/or cultural networks.

● Experience in legal compliance and company secretary responsibilities.

● Understanding of contemporary cultural policy and advocacy.

● Experience in digital communications, social media, and PR.

● Experience in event management and programming.

If you are excited by this role but are not sure if you fully meet the person specification, we encourage you to reach out to our Interim Head of Operations, Jo Purseglove to discuss further.

The National Youth Agency is looking for a new Programme Manager to join our Local Youth Transformation Team

Contract: 14 months fixed term
Hours: Full-time - 37 hours per week
Salary: c£41,200 per annum (dependant on experience)
Remote: This role is homebased (within the UK) This role may require travel to meetings, events and conferences at times.

What we do

As the national body for youth work, the NYA has a dual function. We are the professional statutory and regulatory body (PSRB) responsible for qualifications, quality standards, and safeguarding for youth work and services in England. In line with our charity mission and aims, we also champion youth work through research, advocacy, campaigns, and programmes.

We work in partnership and believe in collaborative leadership, listening to youth workers and the youth work sector so that we can understand their needs and respond to the challenges they face. We are ambitious for youth work and for young people and integrate youth voice and influence across our work

About the Role

We’re looking for a Programme Manager to lead a fixed-term programme focused on strengthening youth services and building local partnerships across multiple Local Authorities. You’ll oversee the successful delivery of the programme, work closely with local and national partners, and ensure consistent, high-quality support across all participating areas.

Responsibilities will include:

• Leading the delivery of Youth Transformation Hubs, supporting Local Authorities to meet the needs of young people and their statutory duties.
• Managing relationships with multiple strategic and delivery partners, including national bodies and specialist organisations.
• Serving as the main point of contact for senior Local Authority stakeholders.
• Ensuring Local Authorities and delivery teams receive timely support to implement recommendations.
• Collaborating with partners to promote awareness of NYA programmes and Quality Standards.
• Monitoring and report on programme performance, using NYA tools including CRM and project management platforms.

Why Work for NYA?

NYA operates as a people-first organisation, prioritising the well-being and needs of its employees.

NYA offers an exceptional flexible working approach which encourages our team to balance professional responsibilities with their personal life.

A remote based team, spread across England, fostering inclusivity and diverse talent. Despite geographical distances between team members, NYA maintains a highly motivated and connected team through the optimisation of digital tools.

NYA is committed to supporting the continual personal and professional development of our team and helping them achieve their ambitions.

We provide 25 days leave plus 8 days, life assurance scheme, 5% employer pension contribution and a comprehensive Employee Assistance Programme via Spectrum.life with unlimited specialist support available to all NYA employees.

We are looking to fill this role urgently and will be reviewing applications as they come in so please apply asap as we may close applications early once we receive a sufficient response.

To apply, please submit the following via our online application platform by 11:59pm on Tuesday 30th September 2025:

A detailed CV setting out your career history, with responsibilities and achievements in line with the person specification in the About You section.

A covering letter (maximum two sides) highlighting your suitability for the role and how you meet the requirements in the About You section.

We will request data for our EEDI monitoring purposes, providing this is optional.

Please note: the covering letter is an essential part of the application process and will be assessed as part of your full application. We use AI detector software, so cover letters or CV’s with over 80% AI generated content with be disregarded. We understand that AI tools can offer support to candidates who have learning differences, which is why we will accept applications with some AI assistance. CV’s will not be accepted without a cover letter.

The National Youth Agency is an equal opportunities employer.

At NYA our inclusive culture means that we embrace individual differences and understand that we need a diverse team to achieve our organisations mission.

We wish to recruit candidates from all backgrounds to ensure our team reflects the rich diversity of the communities we serve. We encourage applications from anyone regardless of disability, ethnicity, heritage, gender, sexuality, religion, socio-economic background and political beliefs but we particularly welcome applications from global majority candidates and those from other minoritised ethnic groups in the UK as they are currently underrepresented in our team.

Youth Work changes lives

Which is why we’re committed to ensuring that as many young people as possible get to benefit from it.As the national body for youth work in England, the National Youth Agency (NYA) exists to champion its transformative power. We believe all young people should have the opportunity to benefit from the life-changing impact of extraordinary youth workers and trained volunteers.

We help to grow youth work provision in ways that keep it effective, relevant, safe and engaging, to help millions of young people reach their potential and thrive. We do this by providing guidance, support, advice, training and staff development opportunities for youth workers and youth work organisations. At the heart of everything we do are young people themselves. We work hard to ensure their voices are integrated into all our work, to develop provision that truly meets their needs.

REF-224 005

About you

Do you want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?

Myeloma UK is looking for a motivated and highly proactive Senior Policy Officer to join our Patient Advocacy team within the wider Research and Advocacy directorate. 

You will have experience in analysing, developing, and communicating complex policy issues, strong communication skills, and the ability to prioritise a fast-moving and wide-ranging workload.

You will also have experience working collaboratively and building relationships with a range of internal and external stakeholders. 

You will have the ability to present findings and recommendations to a range of audiences and produce high-quality succinct briefings in a timely fashion, underpinned by evidence.

Empathy and sensitivity are required to work closely with patients and their families and friends.

Experience in the health charity sector, public/patient engagement work, and working on the National Institute of Health Care Excellence (NICE) and Scottish Medicines Consortium (SMC) consultation processes would be beneficial but not essential.

About the role

As Senior Policy Officer you will be part of the Patient Advocacy team who work to ensure that the patient voice is heard and acted upon by UK and devolved nations healthcare policy decision makers. You will represent the charity externally including national meetings with senior healthcare decision makers.

Your role is vital to developing strategic approaches to health technology appraisals (HTA), regulatory pathways (MHRA), clinical development programmes (academic and industry clinical trials) and commissioning routes to broaden access to new myeloma drug therapies and diagnostic technologies.

You will apply your skills flexibly across key policy areas including access to treatment, patient voice, stakeholder engagement and general healthcare policy and work with colleagues in communications and fundraising to make sure our supporters and the wider myeloma community understand the positive impact we make.

About us

Myeloma UK is the only UK charity focused on myeloma and its related conditions.  We provide support and influence access to treatments, while researching a cure.  Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well.  Together, we support, so no one faces myeloma alone. 

We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.

Our culture

Wellbeing and staff engagement are at the heart of our culture.  We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.

How to apply

If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:

1. A cover letter telling us more about you and what you think makes you a good fit for this role

2. A CV that sets out your career history, with key responsibilities and achievements

Applications close 9am on 6 October 2025 and interviews will be held w/c 27 October 2025.

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:

· sex

· race

· disability

· age

· sexual orientation

· gender reassignment

· religion or belief, marital status, or pregnancy and maternity

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.

You will bring your energy and skill to creating compelling content when writing news stories and social media, unleash your creativity in designing digital media and website content, and show your organizational skills in supporting events. You must be bilingual Spanish and English speaker to apply for this role.

This is an important role in a small communications team where you will help raise our international organisation’ s global profile across Asia, Africa, and Latin America. 

This fully remote contracting role is perfect for someone with some communications experience and a keen interest in supporting countries across the world to build better public infrastructure through open governance principles (accountability, transparency, participation, multi stakeholder working).

As the only Spanish speaking member of the communications team, you will lead on social media and news stories across Latin America and therefore fluent Spanish and English (both written and spoken) are essential, in addition knowledge of the Latin America region would be useful.

This is a fully remote consultancy role. You will not be paid on an hourly/daily basis but instead paid a fixed amount (as set out above) each month for completing agreed deliverables with your line manager. As a rough guide, we expect this will take around 18-20 hours a week. We are open to you working the hours in a way that works for your life-work balance and delivers our business needs, subject to being available for key meetings/deliverables during the week and in agreement with your line manager. Whilst this role is initially for 6 months, there is potential for this to extend or develop into a longer-term role. 

Key responsibilities: 

Drafting content (60%):

• researching and drafting news articles in English;
• creating ideas for, and drafting of, social media in both English and Spanish;
• creating digital media in both English and Spanish for social media accounts and website,
• using Canva and other software; 
• drafting newsletters in both English and Spanish.

Regular communications admin tasks (40%):

• uploading and updating website content;
• supporting to organise and promote events, including preparing content and communications for internal and external events in both English and Spanish;
• supporting the website project manager with ad-hoc tasks in the development of a new website;
• supporting with tracking website and social media analytics and using them to inform future content generation;
• other communications-related activities as required to deliver the CoST Advocacy & Communications strategy. 

Essential experience and attributes:

• Both Spanish and English fluency in speaking and writing (this will be tested at interview)
• Experience with delivering written and visual communications in a variety of mediums.
• Excellent written and verbal communication skills, with a strong attention to detail.
• Experience with social, digital and communication platforms e.g Canva, scheduling platforms, mailchimp, wordpress, google analytics.
• An interest in international development, infrastructure, open governance, anti-corruption, and the not-for-profit sector.
• Creative and enthusiastic about a career in communications.
• Ability to prioritise, plan and organise work and work independently.
• We are a kind and inclusive place to work, and we hope to recruit individuals who share the same values as we do.

Desirable experience and attributes:

• Voluntary or paid experience in the not-for-profit sector, particularly areas relevant to CoST’ s work.
• Experience, knowledge and interest in Latin America and the Caribbean (LATAM) region and regional issues.
• Completed a degree or further education qualification

To apply visit our job pack.

Location: Remote / Hybrid (with occasional UK travel & team meetings at the Birmingham Office Monthly) Applications welcome for candidates within commuting distance of the Midlands.

At Fuel Bank Foundation, we believe no one should have to choose between heating and eating. Every day, we help people across the UK who are facing fuel crisis—providing emergency financial support, advice, and long-term solutions that create lasting change.

We’re looking for an experienced Strategic Partnerships Manager to help us grow and nurture high-impact relationships with corporate partners, charitable trusts, and grant-making bodies. If you’re a confident communicator, natural relationship-builder, and passionate about making a difference, this could be the role for you.

About the Role

As Strategic Partnerships Manager, you will play a central role in driving income growth and increasing the impact of our partnerships. You’ll work closely with the Head of Strategic Partnerships to deliver our partnership strategy—developing new funding opportunities, managing existing relationships, and ensuring excellent stewardship throughout the partner journey.

This is a dynamic and varied role that offers scope for creativity, strategy, and hands-on relationship management. You'll collaborate closely with internal teams to bring partner activity to life, demonstrate impact, and align our work with shared goals.

Key Responsibilities

• Develop and manage a portfolio of strategic partnerships, including charitable trusts, corporate sponsors, and grant-making bodies.
• Deliver high-quality stewardship and build strong, long-term relationships with supporters.
• Identify and secure new partnership and funding opportunities in line with organisational strategy.
• Create compelling, tailored proposals and pitches that align with partner objectives and Fuel Bank’s mission.
• Track partnership performance, prepare reports and evaluations, and share impact stories with funders and internal stakeholders.
• Collaborate across departments to align partner activity with service delivery and communications.
• Contribute to income planning, forecasting, and the delivery of financial targets.

What We’re Looking For

• Strong experience in partnership management, business development, account management, or fundraising—ideally within the charity, non-profit or social impact sector.
• A track record of building successful relationships and delivering income growth.
• Skilled in writing proposals, reports, and presenting ideas clearly and persuasively.
• Commercial awareness and confidence working with budgets, forecasts, and reporting tools.
• Strategic thinker with a creative mindset and the ability to spot new opportunities.
• Excellent communication, collaboration, and relationship-building skills.
• Comfortable working independently and managing multiple priorities in a fast-paced environment.

What you will receive in return:

At Fuel Bank Foundation, you'll join a passionate, values-led team making a real impact in communities across the UK. We offer:

• Competitive salary
• Flexible and remote working options
• Opportunities for personal and professional development
• A supportive, inclusive, and collaborative team culture
• The chance to help shape solutions to one of the UK’s most urgent social issues
• Enhanced annual leave
• Enhanced pension scheme
• EAP – Healthcare

You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025. 

Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.

Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising. 

This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.

Key duties

Major Donor Fundraising

• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+

• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.

• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships

• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.

• Be responsible for our Breakthrough-ME Group with high quality proposition development.  Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.

• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.

• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.

• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.

• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.

• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.

• Create adequate systems and processes to support the major donor programme.

• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.

• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.

• Provide regular feedback and internal reporting to line management.

• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.

• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.

• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity

• Occasional travel to London, Bristol & events

Other duties

• To positively promote the work and activities of Action for M.E. at all times.

• To contribute to the team’s overall, ongoing and annual planning and budgeting.

• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.

• Act as an advocate for the Charity and its work.

• To work in accordance with Action for ME’s values of collaboration, equity and empathy.

We are looking for a warm, flexible and highly motivated fundraiser to work across all areas of our fundraising, from securing income from trusts and foundations and corporate partners to staying on top of our individual giving. 

You’ll benefit from regular mentoring sessions with an external fundraising consultant and be able to foster close relationships with our board of trustees and other key stakeholders. 

BYO has a very small core team, which you’ll be part of, and a large number of freelancers and external staff that join for programmes, events and performances. Our registered office is at the London Coliseum but day-to-day, when our big
programmes aren’t running, we work remotely. 

You’ll find yourself inputting across the organisation – for an inquisitive and proactive person there are plenty of opportunities to take on more responsibility as we grow. Here at BYO we actively support professional development and are very open to flexible working.

Position title: Communications Manager

Reports to: Director of Operations

Direct reports: None currently

Key stakeholders: UKMSA staff, members and volunteers, Board of Trustees, Sheds and Shedders, the public

Location: Remote (with occasional UK travel)

Salary: Level 4 – £35,000-£45,000

The Communications Manager plays a vital role in shaping how UK Men’s Sheds Association (UKMSA) communicates, both internally and externally, and with the community at its heart. Operating with a high degree of autonomy and professional expertise, the postholder leads the development and delivery of communication strategies that connect, inform, and inspire.

This is not just a messaging role. Rather, it’s about building trust, clarity, and connection across UKMSA communities. Internally, the Communications Manager helps staff feel informed, included, and united across a remote-working environment. The post holder will coordinate internal communications, shape the tone and culture of how information flows, and ensure the brand is consistently and professionally represented.

With volunteers, especially UKMSA’s Ambassadors, the Communications Manager plays a key part in ensuring people feel heard, valued, and kept in the loop, especially during moments of change or challenge. They will work closely with the Head of Volunteering and the wider team to keep the voices and experiences of Shedders, Sheds and Shed Networks at the centre of UKMSA’s communications.

Externally, the postholder curates and amplifies the stories, impact, and energy of the Shedding movement. They manage the website and social media channels, support the CEO and Chair in their digital visibility, and respond to external enquiries with professionalism and purpose.

This is a mission-driven role that sits at the heart of how UKMSA connects with the world. It requires emotional intelligence, editorial judgement, and a deep appreciation for the unique volunteer-led spirit of the movement. The postholder will be confident working across staff, volunteers, trustees, and media, joining the dots, finding the story, and ensuring communications always reflect UKMSA’s values and community.

Key responsibilities:

1. Internal communications

· Develop and deliver internal communication approaches that ensure staff across a remote-working environment are kept informed, connected, and engaged.

· Coordinate and facilitate regular team meetings, updates, and communications, including all-staff briefings, newsletters, and shared messaging.

· Work with the CEO and senior team to plan in-person staff meetings, designing the content, format and approach so the sessions align with staff and organisational requirements.

· Design and implement mechanisms that foster internal cohesion and trust, drawing on ideas and good practice for remote working teams.

· Work closely with the senior team to ensure that important updates - strategic, operational, or cultural - are communicated in a timely, consistent, and accessible way.

· Uphold and promote a consistent tone of voice across all internal messaging, ensuring that staff understand and reflect UKMSA’s values and identity in how they communicate.

· Working with the Operations Officer, support the creation and internal rollout of branded materials and ensure consistency in logo use, templates, formatting, and professional standards across the organisation.

2. Community and organisational communications

· Act as a key link between staff, trustees, volunteers (particularly Ambassadors), and other internal stakeholders to ensure information is shared clearly, consistently, and inclusively.

· Collaborate with the Head of Volunteering to ensure that UKMSA’s volunteers are kept informed and involved, particularly during organisational updates, change, or key moments.

· Help embed a culture of openness and two-way communication, ensuring volunteers and trustees feel heard, recognised, and informed, and that their contributions are visible and valued.

· Coordinate messaging across staff and teams so that different groups across UKMSA receive the right information, in the right way, at the right time.

· Support senior leaders in maintaining effective communication with the Board of Trustees, including updates, briefings, and key documents.

3. External communications

· Manage and maintain the UKMSA website and social media channels, working with our external web designer to ensure content is accurate, up to date, and aligned with the organisation’s values and tone.

· Source, shape, and share stories from Shedders, volunteers, and communities to celebrate and amplify the impact of the Shedding movement.

· Lead on the production of UKMSA’s regular newsletter Shoulder2Shoulder, Review and develop the newsletter on a regular basis, in collaboration with staff and volunteers.

· Collaborate with staff and volunteers to collect and develop case studies and lived experience content and ensure these are shared meaningfully and respectfully.

· Support the Membership Manager and Director of Income and Investments to ensure any promotional activity for external partners is aligned with UKMSA’s communications strategy, delivers clear value, and is proportionate.

· Support Director of Income and Investments to shape and deliver marketing campaigns and communications aimed at generating income and supporter engagement

· Support the CEO and Chair in their digital communications - drafting content, advising on tone and timing, and increasing the visibility of their leadership voices, in the service of UKMSA.

· Respond to media and external communications queries, draft press releases where appropriate, and act as the first point of contact for general communications enquiries.

· Monitor UKMSA’s external presence and ensure consistency in messaging, tone and branding, across platforms and partners.

Key expertise required:

· Professional communications experience, with a strong track record in planning and delivering internal and external communications in a mission-led or purpose-driven organisation.

· Excellent writing and editing skills, with the ability to tailor tone, structure, and content for different audiences: from staff and volunteers to trustees, partners, and the wider public.

· Confidence leading internal communications across a remote or distributed team, including experience developing engaging formats, regular updates, and a shared organisational voice.

· Experience working with or alongside volunteers, trustees, or community stakeholders, and a strong appreciation for the importance of inclusive, two-way communication.

· Brand and tone-of-voice awareness, with the ability to maintain consistency and quality across channels, platforms, and contributors.

· Digital confidence, with experience managing websites (e.g. WordPress), social media channels, and email communications tools (e.g. Mailchimp), and using them strategically to reach different audiences.

· Storytelling and content development skills, with the ability to source, sensitively shape, and amplify stories that reflect lived experience and community impact.

· Strong organisational and planning skills, able to manage multiple priorities, coordinate with colleagues across teams, and deliver work to deadline with attention to detail.

· Collaborative mindset, with the confidence to influence tone, content, and strategy while also being hands-on in delivery and responsive to others’ needs and input.

· Judgement and discretion, with experience handling sensitive information, managing risk in communications, and supporting senior leaders with professional external representation.

· Genuine connection to UKMSA’s mission, with a respectful, values-led approach that centres the role of volunteers and champions the voice of the Shedding movement.

What success looks like:

· Staff feel informed, connected, and part of a shared organisational culture, even while working remotely. Internal updates are timely, engaging, and reflect a consistent tone that supports clarity, trust, and inclusion.

· Volunteers and trustees feel included and valued; they know what’s happening, understand UKMSA’s direction, and feel that communication is a two-way conversation, not a broadcast.

· The organisation’s public-facing communications are professional, values-led, and consistent. Social media, the website, and external content reflect the tone, mission, and energy of the Shedding movement.

· The CEO and Chair have visible, coherent digital profiles, supported with high-quality content and strategic messaging that reflects the voice and values of UKMSA.

· Good news stories from Shedders and communities are regularly shared, boosting the visibility of the movement and building pride and momentum across the network.

· Communications activity is intentional and well-prioritised. There is a clear rhythm to communications, and reactive work is handled without pulling focus from core messaging and strategy.

· The Communications Manager is seen as a trusted and thoughtful voice, able to advise colleagues, manage sensitive messaging, and champion quality and consistency in how UKMSA speaks.

· Volunteers remain central, not just as recipients of messages, but as contributors to and shapers of UKMSA’s communication story.

This job is not:

· This is not a campaigning or advocacy role. The Communications Manager will not be responsible for policy development, public affairs, political engagement, or influencing strategy.

· This is not a research or insight role. While storytelling and community voice are central to this role, the postholder will not be responsible for conducting research, writing reports (although the post-holder will support staff to get their reports right), or managing evaluation processes.

· This is not a marketing or income generation role. Although the postholder will support the visibility and professionalism of UKMSA’s public-facing presence, they will not lead fundraising, product marketing, or commercial campaigns. They will work with the Membership Manager and Director of Income and Investment if this is required.

· This is not a senior strategic leadership role. While the postholder contributes to strategy within their area and works closely with senior colleagues, they are not expected to set or lead cross-organisational strategy.

· This is not a purely reactive or administrative role. The Communications Manager is expected to take initiative, bring ideas, and shape how UKMSA communicates - internally and externally - in proactive and creative ways.

Closing date:-9th October 1200hrs
Interview: 22nd October

Location: Homebased (requirement to attend meetings at The Grange, periodically)

Hours: Full-time, 35 hours per week, Monday to Friday

What you will be doing

This is a strategic and creative role at the heart of Hearing Dogs for Deaf People’s national fundraising and engagement efforts. The post holder will lead the development and delivery of national community and challenge event programmes across all four UK regions (England, Scotland, Wales, and Northern Ireland).

Using strong project and campaign management skills, the role will grow existing initiatives charity owned initiatives such as the Great British Dog Walk and the 28 Challenge and develop new, audience-led campaigns that inspire public participation, drive fundraising, and deepen long-term engagement with the charity.

In addition to the owned initiatives, the role will promote Hearing Dogs for Deaf People to participants of external national events such as The Great North Run or the London Marathon.

The ultimate objectives are to drive income generation and guide supporters from initial involvement to becoming volunteers for the broader work of the charity and legacy pledgers.

Desired candidate

• Proactive and confident self-starter with proven experience in campaign management, digital fundraising, and audience engagement.
• Strong understanding of social media tools, digital platforms, and challenge event management (e.g. Fundraising).
• Excellent project management and cross-team collaboration skills.
• Ability to develop creative propositions and media plans based on audience insight.
• Comfortable working in a hybrid environment with occasional travel to events and HQ.
• Excellent interpersonal and communication skills coupled with an enthusiastic and positive approach.

How to apply

If you are interested in working with us in this varied and immensely rewarding job, please send your CV and a cover letter explaining why you'd be perfect for the role.

Closing date for applications: Midday on Monday 6th October 2025.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.