About us
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.
We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign.
About the role
This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.
You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.
This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.
You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.
About you
We’re looking for someone who is:
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A strong communicator with at least two years’ experience in a communications role.
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Skilled in producing visual and written content for websites, social media and newsletters.
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Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).
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Organised, creative, and comfortable working both independently and collaboratively.
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Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.
Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.
What we offer
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Generous pension (5% employer, 3% employee)
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25 days annual leave (pro rata) plus bank holidays
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Full office closure over Christmas and New Year
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Flexible, home-based working with supportive team culture
Location: Home-based (UK) – occasional travel required
Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025
Registered Charity 
11 - 20
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
AtaLoss is seeking an organised, proactive and mission-driven Executive Assistant for our Church Engagement department to support the continued growth of The Bereavement Journey® and our work equipping churches to become Bereavement Friendly. This full-time role provides essential administrative, digital, coordination, resourcing and delivery support, for webinars, events, resources, websites and church engagement activities, helping to expand our reach and impact across denominations in the UK.
Working closely with the Head of The Bereavement Journey® and Church Engagement, you will manage administrative processes, source and assess suitable Bereavement Friendly Church material and resources, update website content, support online programme delivery, coordinate communications, resource practitioners and monitor engagement data. This role is ideal for someone who enjoys varied work, can balance detail with initiative, communicates sensitively and effectively, and thrives in a purpose-driven Christian environment. As AtaLoss continues to grow nationally, this role offers the opportunity to contribute to meaningful change and strengthen bereavement support within churches and communities.
The client requests no contact from agencies or media sales.