Campaigner volunteer roles in seaford, east sussex

Trustee Recruitment - Lead with Purpose: Become a Trustee and Help Achieve a Life Unlimited. 

Your experience. Your voice. Your impact.

• Flexible location: home based/ hybrid 
• Flexible commitment: approx.an average of one day per month comprised of preparation for and attending meetings, away days and other Trust related activities
• Voluntary role (reasonable expenses reimbursed  for travel to attend meetings in person)
• Multiple positions available

About us

At Cystic Fibrosis Trust, we believe in a world where everyone with cystic fibrosis (CF), can live a life unlimited — and we’re inviting passionate individuals to join us on this powerful journey.

Cystic Fibrosis Trust is the UK’s leading charity dedicated to uniting for a life unlimited for everyone with CF – one of the most common life-limiting genetic conditions.

Our team of dedicated staff, volunteers, and Trustees works alongside people affected by CF to fund life-changing research, promote world-class clinical care, and provide essential advice and support.  We champion a community that is united by strength, compassion, and hope.

Our work relies on the generous donations of our supporters.

About the role

This is more than a governance role — it’s an opportunity to help guide strategic decisions that impact lives, influence national initiatives, and accelerate progress for a community that deserves nothing less than a brighter future.

As a Trustee, you’ll play a pivotal role in shaping our vision, values, and strategic direction, developing our aims, objectives, and goals. Your leadership will help us make decisions that matter, and your voice will help steer us toward a stronger, inclusive future.  Trustees typically serve a three-year term, with the option to continue for a second.

Who are we looking for?

We welcome applications from individuals of all backgrounds and experiences.

Due to our normal rotational retirements and trustee terms of office we have several vacancies.  We are keen to increase the representation of people with lived experience of CF and are particularly interested in applications from all people who can offer professional skills and experience in:

• finance and accountancy
• legal practice/law
• fundraising and income generation
• marketing and communications
• data and digital strategies
• basic science research
• non-clinical CF professions (e.g. psychology or social worker)

As part of our long-term succession planning, we would also welcome interest from candidates who may be open to taking on additional Board leadership responsibilities in the future, e.g. Chair, treasurer, or committee roles.

The cystic fibrosis community is diverse, encompassing people of all ages and backgrounds. We are committed to ensuring that this diversity is reflected on our Board. We are especially interested in hearing from those with lived experience of CF, disabled individuals, and candidates from Black, Asian, and minority ethnic communities, as well as LGBTQI individuals. We value fresh perspectives and encourage applications from first-time trustees.  

Why Join Us?

• Make a meaningful impact on the lives of people affected by cystic fibrosis.
• Engage with dynamic peers who are driven, forward-thinking, passionate and purpose-led.
• Help drive an inspirational mission that blends science, support, and community.
• Play a critical role in shaping our strategic direction, ensuring robust governance, and championing equity, diversity and inclusion.
• Gain valuable experience in governance and strategic planning.
• Use your expertise to fuel lasting change.

If you are passionate about making a difference for people with cystic fibrosis, this is your moment.

Important Dates

• Closing date for applications: Wednesday 20 August 2025 
• First interview: Week commencing 8 September 2025
• Second interview: Week commencing 15 September 2025

Ready to Make a Difference?

Please download the Trustee Recruitment Pack (see below) for more information including full role description. 

And then select the ‘Redirect to Recruiter’ button above to take you to the application portal.  You will need to have your up to date CV outlining your career history, including responsibilities and achievements and a covering letter explaining why you want to be a Trustee, what skills you can bring to the Board of Trustees and what you want to take away from this opportunity. 

We look forward to receiving your application.

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Helping with event preparation

· Manning checkpoints

· Walking support

· First-aid support

· Marshals

· Support drivers

· Helping with community stalls

We are looking for people who are:

· Warm and non-judgemental

· Willing to learn about the work of YBTC

· Able to communicate with a range of different groups

· Good team players, able to work with other staff/volunteers

· Reliable and able to commit to agreed requirements

We can offer you the following:

· Induction and ongoing training

· Ongoing support and supervision in your role

· The opportunity to learn new skills

· YBTC commitment to health and safety

About Yorkshire’s Brain Tumour Charity

Background

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours, will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumour are diagnosed in the region

every week.

Our charity values are:

Integrity, Compassion, Community & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire, through local support and research.

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Asking people you know who might be willing to have a collection box in their business

· Approaching local businesses to display the boxes and collect loose change from their customers

· Building and maintaining relationships with your box holders to inspire loyalty and encourage people to continue giving year after year

· Collecting the boxes in your area as and when required and taking to your YBTC contact

We are looking for people who are:

· Have a warm, friendly and confident outlook

· Willing to learn about the work of YBTC

· Able to communicate with a range of different groups

· Are creative and imaginative – spotting opportunities to boost your distribution

· Are well organised and enjoy meeting new people

· Reliable and able to commit to agreed requirements

We can offer you:

· Induction and ongoing training

· Ongoing support and supervision in your role

· The opportunity to learn new skills

· YBTC commitment to health and safety

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours, will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumour are diagnosed in the region

every week.

Our charity values are Integrity, Compassion, Community, & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire, through local support and

research.

Hours: Variable – depending on individual circumstances and what people can do

Location: Variable – we are looking to extend our reach of peer support walks throughout Yorkshire

Main Tasks:

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Support our regular wellbeing/peer support walks

· Welcome participants and help them feel comfortable, fostering a friendly and inclusive atmosphere

· Encourage conversations among participants, offering a listening ear

· Be attentive to the well-being of all participants during the walk

· Offer information on YBTC services

· Attending occasional training sessions or volunteer meetings organised by YBTC

We are looking for people who are:

· Are warm and non-judgemental

· Reliability – are punctual and committed to scheduled walks

· Collaborative mindset to work effectively with staff and volunteers

· Basic physical fitness to complete the walks, awareness of the needs of participants with

different mobility/health conditions

We can offer you the following:

· Full induction and ongoing training

· Ongoing support and supervision in your role

· Opportunity to learn new skills and meet new people

· The satisfaction of making a positive impact on those affected by brain tumours

Background

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumours are diagnosed in the region

every week.

Our charity values are: Integrity, Compassion, Community & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire through local support and research.