Carers hub manager jobs in edinburgh
PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi Syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline, a comprehensive information hub, a network of peer support groups, a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.
We are looking for a part time PWS Specialist Advisor for Scotland to support the PWS community in Scotland. PWS is a rare and isolating condition and our ambition it to reach families in Scotland to provide impactful advice, support, information and training. The ideal candidate will have an in-depth working knowledge of health and social care systems and education in Scotland as well as a belief in the potential and value of people with Prader-Willi syndrome.
You will need to be able to demonstrate excellent interpersonal and communication skills, as well as being self-motivated and able to engage with families, health care professionals and policy makers.
The position is part time (3 days a week) and is home based and ideal for someone living in Scotland
Please submit your CV and letter setting out your motivation and suitability for the post. Please visit our website for more information about our work. Interviews will be by Zoom on Tuesday 30th September
The client requests no contact from agencies or media sales.
Thank you!
About you
Do you want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?
Myeloma UK is looking for a motivated and highly proactive Senior Policy Officer to join our Patient Advocacy team within the wider Research and Advocacy directorate.
You will have experience in analysing, developing, and communicating complex policy issues, strong communication skills, and the ability to prioritise a fast-moving and wide-ranging workload.
You will also have experience working collaboratively and building relationships with a range of internal and external stakeholders.
You will have the ability to present findings and recommendations to a range of audiences and produce high-quality succinct briefings in a timely fashion, underpinned by evidence.
Empathy and sensitivity are required to work closely with patients and their families and friends.
Experience in the health charity sector, public/patient engagement work, and working on the National Institute of Health Care Excellence (NICE) and Scottish Medicines Consortium (SMC) consultation processes would be beneficial but not essential.
About the role
As Senior Policy Officer you will be part of the Patient Advocacy team who work to ensure that the patient voice is heard and acted upon by UK and devolved nations healthcare policy decision makers. You will represent the charity externally including national meetings with senior healthcare decision makers.
Your role is vital to developing strategic approaches to health technology appraisals (HTA), regulatory pathways (MHRA), clinical development programmes (academic and industry clinical trials) and commissioning routes to broaden access to new myeloma drug therapies and diagnostic technologies.
You will apply your skills flexibly across key policy areas including access to treatment, patient voice, stakeholder engagement and general healthcare policy and work with colleagues in communications and fundraising to make sure our supporters and the wider myeloma community understand the positive impact we make.
About us
Myeloma UK is the only UK charity focused on myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. Together, we support, so no one faces myeloma alone.
We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.
Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.
Our culture
Wellbeing and staff engagement are at the heart of our culture. We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.
How to apply
If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:
1. A cover letter telling us more about you and what you think makes you a good fit for this role
2. A CV that sets out your career history, with key responsibilities and achievements
Applications close 9am on 6 October 2025 and interviews will be held w/c 27 October 2025.
Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:
· sex
· race
· disability
· age
· sexual orientation
· gender reassignment
· religion or belief, marital status, or pregnancy and maternity
Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.
The client requests no contact from agencies or media sales.
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Together for Short Lives is a charity that ensures seriously ill children and their families receive the care they need, especially at the end of life. We work closely with families, care professionals, and services to improve children’s palliative care. We also speak up to government leaders and decision-makers to help make sure families have access to the best support when they need it.
A fantastic opportunity is available for a Family Support Hub Officer to join us as maternity cover for 9 months. You will work within our Family Support Hub, liaising with identified partners to provide support to families with a seriously ill child, as well as providing grants administration and event organisation support.
About the Role
The purpose of this role is to help Together for Short Lives reach and support more families - responding appropriately to their needs by listening, signposting or referring onto internal and external support e.g.. grants, peer support, events and engagement opportunities. You will support families contacting Together for Short Lives through the Helpline, website and from partner referrals.
This role combines responsibility for grant administration and voucher processing with day-to-day family support hub tasks, including managing email inboxes and co-ordinating communications. The postholder will ensure that families receive timely information, compassionate support, and access to financial assistance, while helping the organisation meet funding obligations and maintain high-quality service delivery.
About You
- You will be passionate about providing support to seriously ill children and their families and be inspired by the potential to make an impact and to deliver tangible change.
- You will have experience in grant administration and delivering compassionate support and timely information, as well as being a great communicator
- You will have experience helping to deliver and organise events
How to Apply
Please follow the link to our website to find out more and apply.
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Registered Charity
21 - 50
We exist to ensure every seriously ill child and their family gets the high-quality children’s palliative and end of life care
The client requests no contact from agencies or media sales.
Thank you!
Job Title: Online Engagement and Inclusion Lead (Young People’s Services)
Organisation: Kids
Location: Remote work with occasional travel to London for in-person meeting
Hours: 36 hours per week
Contract: Fixed term for 2 years
Salary- £31,000 - £33,000
Purpose
This role leads the coordination of Kids’ online engagement and digital inclusion work for young people with SEND, including information provision, participation, and wellbeing support. You will deliver a two-year Online Wellbeing and Resilience Support Programme, including identifying and engaging digitally excluded young people to help them access vital digital tools and services. The role also drives collaboration across the Digital Services Consortium (a collaboration of 12 children’s charities), embedding shared learning, outcome measurement, and inclusive digital practices across Kids, and will create new capacity to work with young people to scope and deploy online campaigning activity.
Responsibilities
- To lead and coordinate Kids’ online engagement and inclusion work for young people with SEND. This includes Kids’ online information provision; voice/ participation and wellbeing work.
- To develop and deliver Kids’ two-year digital inclusion programme, Online Wellbeing and Resilience Support Programme* to ensure reach and impact is maximised.
- To work with the Digital Services Consortium Driving Digital Inclusion members on shared digital project outcome measures and community of practice, ensuring learnings and online engagement and digital inclusion principles are captured, shared and built into the organisation.
- To identify and recruit (working closely with colleagues from services across Kids) digitally excluded young people to the digital inclusion programme so they can become digitally included and access much needed support and guidance.
- To establish a holistic and joined up approach to Young People’s online engagement and digital inclusion with Kids.
- To create new capacity to work across all services and teams, and with a range of young people, to scope and deploy online campaigning capabilities in line with Kids’ Speak Up and wider national and local influencing work.
Key to your success in the role will be:
- Ensuring an audience-led approach, leading and championing an important collaborative way of working across Kids existing young people's services.
- Confidently working within the Kids digital infrastructure and context – understanding where we are at on our digital journey, building excellent problem-solving relationships with marketing, IT, change team and young people’s services colleagues.
- Helping to embed digital inclusion practices across the organisation.
- Applying strong digital, data and analytical skills to enable you to baseline, track and measure progress.
- Demonstrating excellent attention to detail whilst being flexible to adapt to the needs of a new programme.
- Influencing the broader Kids service teams to identify and engage digitally excluded young people.
- Centering the voices and needs of young people with SEND.
Person Specification
Experience
- Proven experience working in digital engagement initiatives, ideally with young people or vulnerable groups.
- Involvement in programmes that promote digital inclusion and wellbeing.
- Experience in outcome measurement, impact reporting, and using data to inform practice.
Desirable
- Experience in co-producing content or services with young people, including those with SEND.
Skills
- Strong project management skills, with the ability to coordinate multiple workstreams and meet deadlines.
- Excellent communication skills, both written and verbal, tailored to diverse audiences including young people, professionals, and stakeholders.
- Skilled in using digital tools and platforms to deliver services and measure engagement.
- Ability to work collaboratively across teams and build strong internal and external relationships.
Knowledge
- Knowledge of safeguarding principles and practices in online environments.
- Awareness of current trends in digital engagement and youth participation.
- Knowledge of inclusive digital design and accessibility standards.
- Understanding of digital inclusion principles and the barriers faced by digitally excluded young people.
Personal Attributes
- Passionate about inclusion, equity, and empowering young people.
- Committed to co-production and user-led design.
- Growth mindset and proactive approach to problem-solving.
- Committed to continuous learning and sharing best practices.
- Flexible and adaptable, with a collaborative mindset.
*About the funded programme
Kids Online Wellbeing and Resilience Support Programme will help young people with SEND (aged 13 – 25 years) build resilience, positive self-regard and meaningful connections.
Our goal is to reduce isolation and protect mental health through a supportive, inclusive digital environment. We’ll begin by consulting directly with young people to understand what they need most. Together, we’ll co-create new online content and resources that truly reflect their voices and experiences.
What the Programme Offers:
- Online information with resources codesigned with young people with SEND.
- A series of interactive webinars and guided online activities.
- Free devices and data to improve access to those who need it most, plus the support to ensure everyone can participate.
We will reach over 1,800 young people over the two year funded period.
Partner Acknowledgements
Thanks to National Lottery players, the Digital Services Consortium (DSC) has received over £1.5 million over two years from The National Lottery Community Fund, the largest community funder in the UK. The DSC has also received a grant of £400,000 from BBC Children in Need for two years to provide digital support for disabled or seriously ill children and young people and their family members across the UK. Virgin Media O2 and Vodafone have generously donated devices and data through the Good Things Foundation National Databank and Device Bank which will help address affordability barriers.
The client requests no contact from agencies or media sales.