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If you are passionate about making a difference for PWS families in Northern Ireland, we want to hear from you!
PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi Syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline, a comprehensive information hub, a network of peer support groups, a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.
We are looking for a part time PWS Specialist Adviser for Northern Ireland to support the PWS community in Northern Ireland. PWS is a rare and isolating condition and our ambition it to reach families in Northern Ireland to provide impactful advice, support, information and training. The ideal candidate will have an in-depth working knowledge of health and social care systems and education in Northern Ireland as well as a belief in the potential and value of people with Prader-Willi syndrome.
You will need to be able to demonstrate excellent interpersonal and communication skills, as well as being self-motivated and able to engage with families, health care professionals and policy makers. You will build on the excellent work of our existing support worker to continue engage and enable the PWS community.
The position is part time (14 - 18 hours a week) and is home based and ideal for someone living in Northern Ireland
Please contact us via our website for more information or to get in touch for an informal conversation about this opportunity
Every person with PWS community has access to high quality care, opportunity and support to overcome the challenges of PWS



The client requests no contact from agencies or media sales.
Position: Breathing Space Coordinator, Wales
Hours: 21 hours per week
Contract: Fixed term until March 2029
Location: Home-based in Wales
Salary: £26,912 per annum FTE, (£16,147 per annum actual for 21 hours per week) plus excellent benefits
Salary Band and Job Family: Band 1, Charity
You’ll start at our entry point salary of £26,912 per annum FTE (£16,147 actual), increasing to £28,594 per annum FTE (£17,156 actual) after 6 months service and satisfactory performance and to £30,276 per annum FTE (£18,166 actual) after a further 6 months.
About us
We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.
Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.
Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.
Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.
About this job
This part-time, fixed-term role (21 hours per week) will coordinate our Breathing Space project in Wales until March 2029. The project enables unpaid carers supporting people with MS and other neurological conditions to take short breaks.
We are seeking an enthusiastic, experienced Project Coordinator who enjoys delivering fixed-term funded projects, working directly with the people we support and our volunteers. Excellent communication skills and a proven ability to achieve project objectives are essential.
You will work closely with unpaid carers, people affected by MS and other neurological conditions, key external partners, the Service and Support Team, the Director for Wales and teams across the MS Society. Focused on outcomes and tangible results, you will build strong stakeholder partnerships and represent the MS Society at meetings and events promoting the project to unpaid carers.
The role can be based anywhere in Wales, but regular travel across Wales is expected.
Welsh language skills are desirable
Closing date for applications: 9:00 on Monday 28th September 2026.
Anticipated interview date: 6th & 7th October.
Interested?
PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.
Equal Opportunities
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.
We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application.
Disability Confident Employer
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.
You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.
If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.
More about our employee benefits:
We have a wide range of employee benefits including (but not limited to):
Encouraging work life balance
- 38 days paid annual leave (including bank holidays), pro-rata for part-time
- More annual leave entitlement, based on length of employment
- Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us)
- Flexible working options
Caring for you and your family
- Generous sick pay entitlement
- More sick pay entitlement, based on length of employment
- Opportunity to buy and sell annual leave in each calendar year
- Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis
- Enhanced leave for new parents
- Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
- Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
- 10 days paid disability leave a year, pro-rata for part-time
- 10 days paid carers’ leave a year, pro-rata for part-time
- Cycle to work scheme
- Death in service scheme
- New family-friendly benefits, including paid leave:
- In the event of miscarriage or still birth
- To support fertility treatments
- For antenatal appointments for both parents
Thinking about your finances
- Enhanced salary sacrifice pension scheme
- Discounted season ticket loan and interest-free emergency loans
- Give as you earn to support other charities of your choice before tax
- New employee portal including lifestyle savings vouchers and personal wellbeing
Enriching your life at work
- Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
- Yearly internal apprenticeship opportunities
- New, modern offices that embrace working together both in-person and remotely
- Various opportunities to influence how we internally operate (including surveys, and focus and committee groups)
- Active and supportive internal employee networking groups for collaboration and peer support
- 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community)
- 2 days paid leave a year for volunteering with other charities during normal
Safeguarding
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.
This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.
We recognise our particular responsibility to make sure vulnerable adults and children are protected.
We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.
Your right to work in the UK
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.
You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.
No agencies please.
To fund world-leading research, share the latest information and campaign for everyone's rights. Together we are a community. Together we can stop MS

About the role:
Working closely with the small team at SIDA this post will promote the work of SIDA through the provision of high-quality digital communication to our members, external stakeholders and the general public, and provide logistical, digital and administrative support for a range of member events including our annual conferences.
The Communications and Events Coordinator will develop engaging content for use across SIDA’s digital platforms, including the Member Hub, and be proactive in finding new ways to share messages and reach a wider audience. The postholder is responsible for putting together, disseminating and promoting regular email newsletters.
The post will contribute to a variety of projects and initiatives, and a willingness to collaborate and work closely and flexibly with colleagues is essential.
Responsibilities
· Support the implementation of SIDA’s communications strategy
· Build digital assets to raise awareness of SIDA’s activities and services; engage the public; and promote the work of members
· Gather content, write copy, and produce engaging regular email newsletters about SIDA and the sector
· Manage and develop initiatives to grow SIDA’s Member Hub
· Maintain and deliver a social media schedule and seek opportunities to reach new audiences
· Manage and maintain the front-end of SIDA website
· Provide communications, technical and administrative support for events run by SIDA
· Assist with responding to general enquiries and correspondence from members, key stakeholders and members of the public
· Provide general digital and design support as and when required
· Any other tasks as may be reasonably required
Skills, knowledge, experience
Essential
· Excellent written communication skills and experience in producing content relevant for websites, social media, publications and leaflets across a range of audiences
· Strong attention to detail, with an ability to synthesise specialist information into clear, readable copy
· Good design skills and experience of creating engaging content using Canva
· Experience of promoting engagement on social media
· Experience maintaining and updating front-end of websites, including familiarity with WordPress or similar platforms
· Ability to work with minimal supervision and to deadlines
· Ability to multi-task and prioritise workload effectively
· Strong administrative skills
· Commitment to the values of SIDA, and supporting the role of SIDA in working towards a decolonised, actively anti-racist approach
· Works well as part of a team
Desirable
· Relevant experience in the development and delivery of communications and campaigns strategies
· Experience of gathering and organising content for monthly newsletters, researching relevant news articles and updates across the sector
· Experience maintaining and growing online communities
· Interest or experience in global sustainable development
· Creativity - an ability to tell compelling stories using a range of formats and media, including familiarity with producing video and audio content.
· Experience of supporting in-person and hybrid events
· Experience of putting together and marketing podcasts
· Experience of using CRM and communications platforms including Beacon and Campaign Monitor
Safeguarding Commitment
SIDA is committed to safeguarding and protecting the people we serve and work with. We are a proud member of the Inter-Agency Misconduct Disclosure Scheme. In line with this scheme, we systematically request information from previous employers regarding any findings or pending investigations of sexual exploitation, abuse, or harassment during employment.
AI Statement
Given the nature of this role, we are keen to see evidence of your writing skills and communication style, so discourage a reliance on AI in your application.
The client requests no contact from agencies or media sales.