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About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
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24-hour confidential Employee Assistance helpline
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Private health insurance
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Flexible hours
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5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
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Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
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Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
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Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
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Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
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Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
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Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
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Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
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Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
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Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
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Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
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Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
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Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
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Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
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Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
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Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
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Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
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Collect and analyse feedback, producing short evaluation summaries to inform future planning.
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Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
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Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
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Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
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Event logistics prepared within agreed timelines
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Accurate event information published and updated within required timeframes
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Participant satisfaction and engagement measured through surveys
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Conference and event attendance targets met
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CRM data entry completed within 2 working days of events
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Budget expenditure tracked monthly with minimal variance
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Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
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Experience organising in person events from start to finish for over 300 attendees.
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Experience liaising with suppliers, venues and speakers.
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Experience with CRM/data entry, with close attention to detail.
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Experience organising and hosting remote events.
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Understanding of hybrid events.
Desirable
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Experience in the charity sector.
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Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
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Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
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Understanding of the importance of safeguarding around events.
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Exceptional communication skills.
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Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
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Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
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Skilled in problem solving, with a proactive, solutions focused approach.
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Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
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Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
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Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
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Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
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Resilient and adaptable, able to navigate complexity.
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Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
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Demonstrable commitment to equity, diversity and inclusion.
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Personally, and professionally, responsible with high standards of integrity and accountability.
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A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Contract type
Permanent
Location
Whittington
Hours
37.5 hrs Full time, site based
Annual salary
D1 £31,168.36 to D3 £38,129.42
Review date
19/04/2026
The postholder integrates people, place and process by connecting operational delivery with governance and strategic oversight; to protect patient dignity through environmental standards, ensure regulatory compliance, and drive patient and family experience assurance.
The aim of the role is to ultimately ensure safe, compliant, dignified and high-performing environments that actively support patient care delivery and staff workplace experience.
The role provides managerial oversight of the Clinical Facilities Coordinator and Support Facilities Coordinator, ensuring clarity of standards, regulatory compliance, cost control and service resilience.
In summary, the Facilities & Patient Experience Manager is accountable for:
- Safe, compliant and well-coordinated Facilities Services.
- Regulatory readiness across environmental, equipment and hospitality functions.
- Positive patient and family environmental experience and subsequent feedback channels.
- Performance and development of Facilities Coordinators.
- Contract oversight and cost-effective service delivery.
- Continuous improvement across the Facilities function.
Key to the quality of service we provide, this role requires a proactive approach, visible, hands-on leadership, emotional intelligence and a strong delivery mindset. The postholder must be comfortable operating within a hospice environment where compassion, discretion and professional standards must coexist.
Subsequently, success in this role depends on presence, accountability and the ability to translate policies into consistently delivered day-to-day practice.
Qualifications
Essential
·Recognised Health & Safety qualification (e.g. IOSH Managing Safely or NEBOSH General Certificate).
·Evidence of formal training in Infection Prevention & Control principles.
·GCSE (or equivalent) English and Maths.
Desirable
·IWFM (Institute of Workplace and Facilities Management) Level 4 or Level 5 qualification.
·Safeguarding Level 3 (or willingness to complete).
·Formal leadership/management qualification (e.g. ILM Level 5, CMI Level 5).
·Qualification or formal training in Quality Improvement methodologies.
·Contract management training.
·First Aid at Work
Knowledge and experience
Essential
·Proven experience managing operational service teams.
·Strong understanding of facilities management within a healthcare or regulated environment.
·Knowledge of CQC standards relating to safety, dignity and environment.
·Understanding of infection prevention, asset governance and stock control principles.
·Experience overseeing service contracts and performance monitoring.
·Awareness of safeguarding and public-space risk management.
Values
·Exhibits our hospice values and behaviours
Skills
Essential
·Highly people-oriented with strong interpersonal skills.
·Practical mindset - focuses on solutions rather than process for its own sake.
·Able to provide supportive but firm supervision to staff and volunteers.
·Comfortable having difficult conversations when standards are not met.
Personal Attributes
·Visible, hands-on leadership style.
·Strong emotional intelligence and ability to operate in sensitive environments.
·Calm and decisive under pressure.
·Ability to balance compassion with regulatory discipline.
·Strong accountability mindset.
·Confident in holding others to performance standards.
·Analytical thinker able to interpret feedback data and translate into action.
·Excellent communicator across clinical and corporate audience.
Other requirements
·Valid driving licence
·Eligibility to work in the UK
·Please note that St Giles Hospice does not hold a sponsorship licence and is therefore unable to accept sponsorship requests
Just so you know:
This post is subject to a Disclose and Barring Service (DBS) check.
We may review applications before the application review date, however, if you apply after the application review date, your application may not be considered. We will accept applications until we have successfully filled the role; this may be earlier than the closing date.
If you have not heard within 14 days of the application close date, then please consider that your application has been unsuccessful at this time.
As part of your application your data will be managed in line with St Giles Hospice Privacy Policy and kept for 6 months. If you would like to see this in full, please visit our website for our Privacy Policy. This is in extension to Charity Job Privacy Policy.
Whether you’re living with a terminal illness, or your loved one is nearing the end of their life, we’re here for you at every stage.


The client requests no contact from agencies or media sales.
Clinks
Clinks supports, promotes and represents the voluntary sector working with people in the criminal justice system and their families. Our vision is of a vibrant, independent and resilient voluntary sector that enables people to transform their lives.
Job purpose
Our Business Administrator will join the business team to underpin the operational running of our organisation and provide general administrative support. The team manages Clinks’ financial, governance, income generation, HR, IT, GDPR areas and adhoc other requirements for charity and company regulators. The postholder would be given the opportunity to contribute their skillset to the key components of the business functions and support a busy team with accuracy and efficiency in all areas.
The postholder will be expected to manage a varied workload with minimal supervision, taking responsibility for prioritising tasks and meeting deadlines. They should be proactive in identifying what needs to be done, using their initiative to progress work, while seeking input from colleagues where appropriate.
Reports to: Finance & Business Support Lead
Duties and key responsibilities
Finance
Provide general support to the Finance & Business Support Lead relating to finance administration and filing of documents.
Be responsible for our jobs board income and expenditure records for reconciliation and respond to general queries.
Support the management of our fixed assets equipment lists.
Governance
Provide support to the Funding and Governance Manager in preparation for all of Clinks committees and sub-committees including diary support.
Provide additional admin support for large governance projects including preparation of our annual AGM, annual report and Trustee recruitment.
HR
To support the Finance and Business Support Lead with recruitment administration, support the creation of job descriptions, job advertisements, managing applications and structuring interviews.
Support the creation of the induction process and welcoming new staff.
Responsibility for production of our staff organisation chart and staff/trustee mapping. Supporting staff meeting days and venue hire, catering and agenda preparation.
General
Responsibility for oversight of mailbox administration.
Support with individual project-based work including research topics for funding.
General note-taking for adhoc meetings.
Skills & Attributes
Accurate data inputting skills and good attention to detail
Well organised and systematic way of working
Ability to multi-task, work under pressure and be flexible
A collaborative approach to working with colleagues in a remote setting
Maintain effective record keeping systems
Ability to work both independently and as part of a team
IT skills at a level that supports a professional standard for email, internet and database management.
Efficient time management skills and be able to meet deadlines
Have good attention to detail and excellent communication skills
Excellent understanding of confidentiality.
General responsibilities
Represent and be an ambassador for Clinks
Work to support the mission, ethos and values of Clinks
Be flexible and carry out other associated duties as may arise, develop or be assigned in line with the broad remit of the position
Support and promote diversity and equality of opportunity in the workplace
This job description does not form part of your contract of employment and can be amended from time to time as the needs of the organisation require.
Clinks is the national infrastructure charity dedicated to supporting voluntary organisations working with people in the criminal justice system