Change delivery senior officer jobs in Bristol

Special Olympics GB is proud to support some of the most inspiring athletes in the world — individuals with intellectual disabilities who compete from local to international levels, breaking down barriers and showing the transformative power of sport both on and off the field of play.

As we enter an exciting new chapter, we are seeking an outstanding Director of Operations to join our Executive Leadership Team. This is a pivotal role for a strategic and values-driven leader who can strengthen our organisation, drive operational excellence and help deliver even greater impact for athletes, families and communities.

Working closely with the Chief Executive, Board and wider movement, you will lead organisational performance across governance, safegaurding, finance, people, systems, planning and delivery, ensuring Special Olympics GB is resilient, ambitious and fit for the future. As Executive Lead for Safeguarding and Welfare, you will champion a culture where the wellbeing, safety and dignity of every athlete remains at the heart of everything we do.

We are looking for someone who:

• Is inspired by the power of sport to transform lives and create more inclusive communities.
• Brings significant senior leadership experience and a track record of organisational development and operational excellence.
• Can translate strategic ambition into effective delivery and sustainable growth.
• Has experience of governance, compliance, finance, risk management and safeguarding.
• Builds strong relationships and partnerships, influencing with credibility and integrity.
• Leads with empathy, accountability and a commitment to inclusion.

The Director of Operations at SOGB is a wide-ranging, key role, reporting to the Chief Executive as a member of the Executive Leadership Team (ELT). Working across the organisation, the Director of Operations manages the operational and support services activities including governance, compliance, HR, business processes, IT, safeguarding, finance and health & safety to ensure that the organisation runs smoothly, efficiently and effectively.

Application Instructions

For Job Role specifics and how to apply please see the below SOGB Director of Operations Recruitment Pack.

The closing date for applications is Friday 4th September 2026 at 9am. There will be a two- stage interview process that will cover both culture/motivators and thematic competencies.  Stage 1 interviews will take place week beginning 28th September 2026 and stage 2 will take place week beginning 5th October 2026.

Job Description

Job Title: Senior Marketing Officer – Mass

Participation Fundraising

Directorate: Engagement & Fundraising

Team/Department: Supporter Led Fundraising

Date: August 20206

Context and Background

The NSPCC’s mission is to end cruelty to children by fighting for every childhood.

To carry out its charitable work the NSPCC relies on the fundraising support of

people across the UK for 90% of its income. Within Engagement and Fundraising

our aim is to provide maximum resources for the NSPCC, providing the best

possible supporter experience.

Mass Participation Fundraising is an important acquisition and income stream in

the NSPCC’s Engagement and Fundraising strategy, managing the delivery of a

portfolio of Third Party Events and Schools Fundraising products, as well as

stewarding supporters looking to do their own fundraising activity for the charity

(‘DIY’ fundraisers).

We are looking for a skilled Senior Marketing Officer, who will work across these

audience streams to coordinate marketing activity. This role will focus specifically

on marketing to mass audiences to reflect the breadth of audiences who take part

in Mass Participation Events. This includes parents, grandparents, professionals

who work with children, those with a personal connection to our charity, or simply

those who care deeply about children.

We are looking for a collaborative, enthusiastic marketing professional who has

experience delivering insights-driven marketing strategies that make an impact.

You’ll be a great communicator, able to build effective working relationships and

influence a range of stakeholders. You’ll be able to work independently and will

have a track record of successfully juggling multiple projects and competing

priorities to meet strict deadlines. You will also have experience working across

paid, owned and earned marketing channels.NSPCC

Job purpose

The role of the Senior Marketing Officer is to work with the Mass Participation

Team to coordinate and deliver the planning, execution and evaluation of events

fundraising marketing campaigns across all channels.

• Adopting a holistic view of all Mass Participation Team’s marketing to

ensure consistency, and will have a good understanding of how this fits with

the organisation’s strategic goals.

• Working with colleagues in the Mass Participation Team to strategically

manage the planning and coordination of events marketing across owned,

earned and paid channels, ensuring that all campaigns and activities are

integrated, informed, planned and evaluated, and that participation and

income targets are reached.

• Supporting stakeholder teams with strategic thinking during marketing

planning and delivery. This includes championing an audience-led

approach to ensure all communications targeted at mass audiences are

relevant and useful.

Key relationships - Internal

• Reports to the Associate Head of Mass Participation Fundraising

• Works closely with all members of the Mass Participation Team,

including sub-team managers and event fundraisers

• Works closely with other teams within the Engagement & Fundraising and

Brand and Marketing directorates to deliver integrated marketing plans.

Key relationships - External

• External media agency partner

• Freelance creatives – graphic designers, photographers, videographers.

EVERY CHILDHOOD IS WORTH FIGHTING FORNSPCC

Main duties and responsibilities

• Manage an integrated marketing approach across owned, earned and paid

channels to achieve participation targets and agreed KPIs, working closely with

event and product managers.

• To ensure maximum effectiveness and efficiency of mass participation marketing

activity through application of best practice campaign management.

• To take ownership of paid media campaigns for mass audiences in partnership

with our media agency partner. Tasks include the planning and optimisation of

activity across channels like pay-per-click and paid social media advertising.

• Be thorough and agile about monitoring campaign results and evaluating

campaigns, using insight to make informed decisions and determine future

marketing plans.

• To support with content creation where appropriate – this could include

copywriting, creative briefing, webpage updates, email marketing and photoshoot

coordination.

• Regularly benchmark against external fundraising marketing activity, keeping

abreast of current and emerging brand and marketing knowledge and practice and

equipping the team with knowledge and skills as appropriate.

• To work closely with staff across other departments to ensure marketing plans are

integrated and audience-led, in line with the organisation’s Supporter Centricity

Programme.

• To develop and maintain internal and external stakeholder and supplier relationships,

identifying and incorporating best industry standards and establishing best practice.

• To provide financial administrative support to budget holders, planning, forecasting

and tracking spend, and processing invoices and placing orders, in line with NSPCC

policies and procedures.

Responsibilities for all Staff within the Income Generation Directorate

• A commitment to safeguard and promote the welfare of children, young people and

adults at risk.

• To be responsible for updating databases and supporter information systems on a

regular basis in line with Data Protection legislation and NSPCC policy and

procedures to ensure all records are up-to-date and accurate.

• To actively participate in regular department and team meetings, contributing to

strategy, discussions and decisions which will be beneficial to the NSPCC's

development of fundraising activities.

• To maintain an awareness of own and others' Health and Safety and comply with the

NSPCC's Health and Safety policy and procedures.

• To take personal responsibility for keeping up to date with NSPCC work to end cruelty

to children, including securing updates on project and service developments and

general NSPCC news and also ensuring that the fundraising teams do likewise.

EVERY CHILDHOOD IS WORTH FIGHTING FORNSPCC

Person specification

1. 2. 3. 4. 5. 6. 7. 8. 9. 10. Proven experience delivering complex, multi-channel marketing

campaigns from planning through to delivery and evaluation, ideally in the

charity, not-for-profit or public sector

Highly developed written and verbal communication skills to deliver ideas

and activity updates to a range of stakeholders, and audiences, in a clear,

inspiring and confident way.

Well-developed ability to build, manage and develop relationships with

internal and external stakeholders in order to achieve and influence

project outcomes

Knowledge of digital and offline engagement and marketing techniques,

including digital media, social media, content marketing, email marketing

and paid advertising.

Excellent understanding of and empathy with the motivations of

supporters, and experience of working with clearly defined audience

segments.

Excellent understanding of recruitment and retention marketing

techniques, in order to achieve ambitious participation targets.

Well-developed numeracy skills to facilitate recording, interpreting,

analysing and presenting performance data to a range of stakeholders,

including those without a strong foundation of marketing knowledge.

Passionate about audience-led marketing that improves supporter

experience, with a personal commitment to the NSPCC’s values and

safeguarding principles.

Ability to plan and manage your own work, identifying conflicting demands

and establishing clear priorities to meet agreed objectives with a

willingness to work flexibly.

Proven ability of demonstrating initiative and creativity to achieve desired

outcomes.

EVERY CHILDHOOD IS WORTH FIGHTING FORNSPCC

Safer Recruitment

As an organisation, we are committed to creating and fostering a culture that promotes

safeguarding and the welfare of all children and adults at risk.

Our safer recruitment practices support this by ensuring that there is a consistent and thorough

process of obtaining, collating, analysing and evaluating information from and about candidates

to ensure that all persons appointed are suitable to work with our children and adults.

The recruitment and selection of our people will be conducted in a professional, timely and

responsive manner and in compliance with current employment legislation, and relevant

safeguarding legislation and statutory guidance.

Our principles:

• Always seek to recruit the best candidate for the role based on merit including their

skills, experience, motivation and competencies. Our robust recruitment and

• selection process should ensure the identification of the person best suited to the role

and the organisation.

• Committed to diversity and equality of opportunity and will interview all applicants

(internal and external) who self-declare at application as having a disability and who

• meet the minimum requirements in the person specification of the vacancy they are

applying for.

• We will make reasonable adjustments at all stages of the recruitment process in order

to enable successful candidates who declare disabilities to start working or

• volunteering their time with us.

• Any current member of staff or volunteer who wishes to apply for vacancies and is

suitably qualified will be considered and addressed fairly and objectively based on

their merit.

• As an organisation committed to safeguarding, we will ensure all under 18's joining the

organisation will have ongoing risk assessments to ensure their role and

• activities are safe and appropriate.

• All documentation relating to candidates will be treated confidentially in accordance

with the GDPR legislation.

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis. Our mission is underpinned by values of compassionate, bold, expert and collaborative. We believe in creating a supportive environment in which both our employees and beneficiaries can thrive.

Founded in 2013 by people affected by PF and clinicians, APF has grown into a respected national charity rooted in community and evidence. We provide trusted information and support, help a growing network of support groups, campaign to improve access to care and invest in research to bring hope of new treatments. APF strives to be an organisation of equity and inclusion, welcoming people from all backgrounds – our team and volunteers aim to reflect the diverse communities we serve.

We have just launched an ambitious five-year strategy (2025–2030), co-created with the PF community, which focuses on expanding support, transforming care, and accelerating research. This strategy marks a step change with a clearer focus, stronger delivery model and greater ambition to ensure no one faces pulmonary fibrosis alone.

Role purpose

The Senior Challenge Fundraising Officer will lead the delivery and growth of APF’s third-party and mass participation challenge events portfolio.

This role exists to significantly grow income and participation by managing end-to-end third-party challenge events, developing community-facing charity-owned fundraising products and delivering excellent supporter stewardship

Working closely with the Head of Fundraising and colleagues across Communications, Services and the Operations Team, you will increase recruitment, empower supporters to raise ambitious funds, and create journeys that encourage long-term engagement with APF.

Success in this role means more people fundraising for APF, raising more income and feeling valued, supported and inspired to stay connected to our mission.

Key Responsibilities

1. Grow participation in third party

• Manage the full lifecycle of third-party and mass participation challenge events, from planning and recruitment through to stewardship and re engagement.
• Develop and execute creative marketing strategies to boost participation and attract new event participants.
• Draft engaging promotional content that inspires and engages our supporters in collaboration with the Communications team.
• Promote third-party events proactively across relevant channels and networks.
• Work with the wider Fundraising team to improve and refine the stewardship journey for challenge participants to maximise the participant experience.
• Identify and pursue opportunities to grow participation in new and existing events.
• Attend key events as required, managing on-the day logistics and volunteer coordination.

2.  Community Product Development

• Work with Head of Fundraising to shape and improve APF’s fundraising offer and remote products.
• Test and refine new fundraising concepts that increase accessibility and broaden participation.
• Work collaboratively across teams to ensure our community fundraising products align with wider campaigns and strategic priorities.

3.  Income growth and fundraiser mpowerment

• Inspire participants to achieve ambitious fundraising targets through engaging, creative communications.
• Develop and enhance fundraising materials, including participant packs and digital resources to support our fundraisers.
• Use insight and sector trends to identify opportunities to boost event visibility and maximise fundraising efforts.
• Monitor fundraising performance to ensure we’re meeting targets and delivering strong ROI on our challenge activities.

4. Stewardship and re-engagement

• Foster personal connections with supporters through thoughtful, tailored stewardship that keeps them engaged and feeling valued.
• Create clear re-engagement plans to encourage repeat participation and long-term loyalty.
• Collaborate with wider Fundraising and Services teams to support acquisition and ensure our supporters have a smooth, high-quality supporter journey.
• Represent APF publicly when required, acting as a confident ambassador for the charity at events and in public settings.

5. Data, insight and compliance

• Support on the management of CRM data to enable accurate segmentation, performance tracking and reporting.
• Monitor recruitment, participation, income and ROI to help inform future planning and improvements.
• Maintain up-to-date knowledge with GDPR regulations and compliance and ensure personal data is handled responsibly and securely.
• Work closely with the Governance and Operations Manager to ensure our fundraising activities are fully compliant with GDPR and the Code of Fundraising Practice.

How to apply

Please apply via CharityJob or submit a CV and a covering letter (maximum of two pages) highlighting your skills and suitability to the role, reflecting the key responsibilities in the job description.

The School for Social Entrepreneurs backs people with purpose — entrepreneurs building organisations that change their communities. We're looking for a National Partnerships Lead to work directly with our CEO, driving high-priority national funding partnerships, diversifying our income, and building the relationships that fund our impact. 

You'll identify major funding opportunities, negotiate with trusts, corporates and government partners, and lead complex proposals from first conversation through to a signed agreement — including the budgets, risk assessments and value propositions behind them. You'll also act as a sounding board for the CEO, pressure-testing ideas and sharpening how we tell our story to funders. 

We're looking for sustained experience supporting a CEO or senior leader, a track record of leading multi-million pound funding initiatives end-to-end, and the versatile writing skills to move between board papers and detailed funder tenders without losing accuracy under pressure. Sharp budgeting and numeracy matter for this role, alongside real comfort building trust with senior external stakeholders. 

This position is for someone who thrives on ambiguity, enjoys solving complex problems, and wants their work to directly fund entrepreneurs changing their communities. 

The Belay Foundation supports adoptive, kinship and special guardianship families raising children who have experienced early developmental trauma, often alongside neurodiversity. Founded in 2020 from lived experience, Belay offers something many families struggle to find elsewhere: practical, in-home support and expert guidance that’s genuinely trauma-responsive, delivered by people who understand what these families are living through.

Why now? - Belay has just spent a year strengthening its foundations - redesigning services, building organisational capacity and setting an ambitious growth plan. The groundwork is done. What we need now is a permanent CEO with the vision to take a small, high-impact charity and turn real momentum into lasting change - for families and for how the sector understands and responds to developmental trauma.

About the role - You’ll provide strategic and financial leadership across a small team, working closely with an exceptional Board and Belay’s Founder, who remains closely involved as Services Director. You’ll lead fundraising and income diversification, shape Belay’s public voice and ensure the organisation’s trauma-responsive, DDP-informed model continues to deliver real impact as it scales.

This is a rare chance to take the helm of an organisation with an innovative model, a loyal community and genuine room to grow - and to leave your mark on how the UK supports some of its most vulnerable children and families.

This is a home‑based role, but applicants must be permanently based, and have the right to work, in the United Kingdom. For legal, tax, and operational reasons, we cannot consider applications from outside the UK.

Please see the CEO Application Pack for further details, including the full job description and the application/ interview process.

Chief Operating Officer (COO)

Contract: Permanent / Full Time

Salary: C. £130k per annum, depending on experience

Location: Remote / UK Based (regular travel to London office and other locations as required)

Closing Date: 10th September

Interview Dates: 5th & 7th October

Introduction

Doing Good Recruitment is proud to be exclusively partnering with a highly respected health organisation to appoint an exceptional Chief Operating Officer (COO). This critical leadership role will drive organisational transformation, operational excellence and long-term sustainable impact.

The Role

Reporting to the Chief Executive Officer (CEO), the COO will serve as a key strategic adviser and member of the executive leadership team, helping to shape organisational priorities and ensure effective delivery across a complex international organisation. Working closely with the CEO, Board and senior stakeholders, the COO will play a central role in driving organisational performance, strengthening governance and ensuring resources are deployed effectively to support long-term objectives.

The role will provide strategic leadership across core corporate functions, including people, finance, governance, risk, technology and business operations. The next postholder will ensure the organisation's operational infrastructure, systems and processes effectively support performance, fundraising and programme delivery, while positioning the organisation for long-term success.

About You

The successful candidate will bring substantial executive leadership experience, ideally gained within a complex, purpose-led or internationally operating organisation. As a fully qualified accountant (ACA, ACCA, CIMA or equivalent), you will possess excellent financial and commercial acumen, with experience leading organisational planning, overseeing significant budgets and providing strategic financial insight at the highest level. Experience of presenting to and working closely with Boards, Finance Committees and other senior governance groups will be essential.

The right candidate will be able to demonstrate a track record of leading business improvement, organisational change and operational modernisation, alongside the ability to build credibility and influence across diverse stakeholder groups. This unique opportunity requires a collaborative and pragmatic leader who combines sound judgement with effective delivery, enabling organisations to adapt, grow and achieve sustainable impact. Experience of digital innovation, data-driven decision-making and the effective application of emerging technologies, including AI, would be advantageous.

Disability Confident

Our client is Disability Confident. Candidates who meet the essential criteria for the role and identify as having a disability (found on the application page) will be guaranteed an interview as part of their commitment to creating an inclusive and accessible recruitment process.

Inclusion Statement

Doing Good Recruitment is committed to the highest standards of equitable and inclusive recruitment. We actively welcome applications from people of all backgrounds, regardless of age, disability, gender identity, race, ethnicity, religion or belief, sexual orientation, caring responsibilities, socio-economic background, or any other protected characteristic. We recognise that exceptional candidates do not always meet every requirement listed in a job description. If your experience aligns with most of the criteria and you are excited by the opportunity, we encourage you to apply.

Position: Deputy CEO

Reporting to: CEO

Location: London or Bath (hybrid working at either location)

Contract: Full-time, permanent

Salary range: £65,000 - £75,000 (dependent on experience)

Deadline: 18:00 (BST) on 11 September 2026 

EJF is an equal opportunity employer and is committed to building a diverse and inclusive workplace. Applicants must have the legal right to work in the UK.

About the Role

Environmental destruction and human rights abuses are rarely separate crises - they are cause and effect. The Environmental Justice Foundation was founded on this understanding, and for two decades we have fought to protect the natural world and the people whose lives and freedoms depend on it.

We are seeking an exceptional Deputy CEO to help lead EJF into its next phase of growth and impact. This is an extremely rare opportunity to take on a crucial leadership role at a highly respected international NGO at a pivotal moment.

As Deputy CEO, you will play a central role in shaping EJF's strategic direction, team leadership and operational excellence, working in close partnership with the CEO and senior team to scale our impact, strengthen our global presence, generate new income, and ensure the organisation continues to deliver courageous, evidence-led change.

The Deputy CEO will take on critical tasks to enable the CEO to focus on delivering the strategic vision, providing vital leadership and development of EJF's programmes and governance. You will assume specific, nominated areas of programme management, supervising and guiding campaign and communications teams and providing a clear line of decision-making and direction.

The role will work closely with the CEO and senior leadership to continually improve the organisation's efficiency and effectiveness, entrench the ethos, vision and values that define our working culture, and help deliver the positive impact for the natural environment and the human rights that depend on it.

From strengthening governance and organisational performance to driving innovation, growth, and collaboration, you will be instrumental in maintaining an agile, resilient, impact-driven organisation capable of confronting some of the world's most urgent environmental challenges.

This role calls for an experienced and confident manager and leader with strategic vision, operational rigour, communications acumen and a deep commitment to biodiversity conservation and environmental justice. You will bring people together across cultures and disciplines, empower emerging leaders, and foster a high-performance, inclusive organisational culture. Externally, you will help represent EJF with credibility and influence, building alliances with funders, policymakers, partners, and frontline communities to accelerate systemic change.

Key Responsibilities

1. Mission and Purpose

● Alongside the CEO and Founding Director, continuously reaffirm and embed EJF's Mission, Vision and Values, ensuring they are deeply embedded across all programmes and teams to foster cohesion and strategic alignment globally.

● Safeguard our core mission of environmental justice and strengthening grassroots capacity in the Global South, ensuring that the organisation, across its multiple geographies and jurisdictions, adheres to this core purpose and scope.

● Articulate and deliver the highest possible professional standards, working culture and practice across all aspects of EJF's work.

2. Campaign Delivery, Amplification and Impact

● In close partnership with the CEO, guide and oversee the organisation's strategic and tactical approach across its operations and campaigns.

● Provide additional guidance, recommendations and scrutiny on the planning, production and release of reports, films and other campaign materials.

● Help shape EJF's external positioning, ensuring coherence between evidence, advocacy, partnerships and communications.

● Strengthen EJF's visibility and reach by engaging the media, attending and presenting at high-level meetings, liaising with key contacts and major funders, and acting as a spokesperson in the CEO's absence.

3. People, Culture and Leadership

● Help to further develop and support a high-performing Senior Management Team (SMT), individually and collectively, fostering accountability, collaboration and strong leadership practice.

● Guide and mentor teams to ensure they remain focused on delivering EJF's mission and priority objectives with strategic impact.

● Ensure fairness and equity for staff across the organisation, alongside consistently high standards of management.

● As directed by the CEO, serve in his absence to ensure the campaigns and programmes continue uninterrupted, working closely with the Senior Management Team (SMT).

4. Operations and Funding

● Work with the Operations Team to ensure EJF's exemplary operational efficiency across all areas of its work, championing continuous improvement of systems, processes and tools to strengthen efficiency, resilience and internal knowledge sharing.

● Work with the CEO, Founding Director, COO, and other team members to secure funding to support all our operations. This will require direct liaison with key donors, identifying new funding streams and ensuring compelling proposals, grant reports and updates are delivered on time.

● Ensure our operations across geographies and jurisdictions adopt a unified approach in all aspects of our work while respecting local contexts and needs.

5. Risk and Security

● Ensure that robust security and safeguarding measures are in place, regularly reviewed and actively embedded across teams.

● Contribute to organisational risk management, providing an additional oversight role for legal, reputational, political and operational risks across multiple jurisdictions, ensuring guidance and support are in place to secure compliance with relevant laws, regulations and ethical standards in all operating contexts.

Essential Experience, Skills and Attributes

We are seeking a values-driven, strategic leader with the judgement and organisational capability to help guide EJF through its next phase of growth and impact.

You will bring:

● Significant senior leadership experience (typically 10+ years), ideally 6+ years within the charity or not-for-profit sector.

● Proven success in programme design and delivery and organisational management, including oversight of complex budgets and resources.

● Strong financial acumen, with the ability to improve cost-effectiveness and maximise impact.

● Outstanding communication skills, including exceptional written English and the ability to engage diverse audiences, from teams to funders and senior decision-makers.

● Sound judgement and strategic thinking, with the ability to navigate complexity and make high-quality, values-led decisions, including in fast-moving or high-stakes environments.

● Strong people leadership, with experience building inclusive, high-performing teams, supporting senior colleagues, and developing emerging leaders across cultures and geographies.

● Experience contributing to organisational strategy, change, and governance, with confidence engaging boards and leading through growth or transition.

● A collaborative, diplomatic approach, combined with resilience, adaptability, and composure under pressure.

● Experience working in international or distributed organisations, and building effective external partnerships, including with donors, business partners and grassroots groups.

● An ability to travel internationally, occasionally at short notice.

● A clear commitment to EJF's Vision, Mission and Values, and to fostering a culture of excellence, equity, safeguarding, and impact.

While not essential, the following would be a strong advantage:

● Additional languages, particularly French, Spanish, Portuguese, or German.

● Professional media or communications experience, with demonstrable skills in shaping narratives, engaging audiences, and supporting organisational visibility.

● Experience in field research and/or investigations, ideally in complex or international contexts.

● Proven ability to manage projects, people, and budgets remotely, including supporting geographically dispersed teams.

What We Offer

In return for your leadership and commitment, we offer a rewarding package designed to support your well-being, flexibility, and professional growth:

● 30 days annual leave (including public holidays), increasing with each year of service, plus additional paid leave between Christmas/New Year.

● Private healthcare package.

● Generous pension scheme, with employer contributions increasing over time.

● Hybrid working (minimum 3 days in the office).

● Cycle-to-work scheme.

● A dynamic, supportive, and inclusive working environment, with genuine opportunities for professional development and career progression.

● The chance to play a senior leadership role in an organisation delivering real-world impact for people and planet.

Join Us

EJF's strength lies in a rare combination: deep, trusted relationships with grassroots communities on the front line of environmental destruction, and the expertise to turn that local knowledge into major campaigns that protect our oceans, our climate, and the ecosystems that sustain us all. As Deputy CEO, you will help ensure that strength keeps growing — sharpening the leadership, systems and teams that connect community action to global impact, from coastal fishing villages to the corridors of international policy.

At EJF, leadership means courage, integrity, and impact. As Deputy CEO, you will help steer campaigns that expose environmental crime, defend those on the frontlines, and secure lasting protections for ecosystems and communities alike. Together, we work to protect people by protecting the planet — and to build a fairer, more resilient future for all.

If you are ready to bring your skills to a mission that matters, we would love to hear from you.

Application

To apply, please use this link to upload your:

● Cover letter outlining your suitability and interest in the role (max 2 pages)

● CV (max 2 pages)

Deadline: 18:00 (BST) on 11 September 2026 

** We encourage early applications as we review on a rolling basis and may begin interviewing shortlisted candidates ahead of the deadline.

Only shortlisted candidates will be contacted. No other communications or agencies, please.

Applicants must have the legal right to work in the UK. EJF is an equal opportunity employer and is committed to building a diverse and inclusive workplace.

Prospectus is delighted to be partnering with our client to recruit their next Chief Executive Officer.

The orgnisation is the UK's leading charity dedicated to improving the lives of people affected by Dravet Syndrome, a rare, severe and life-limiting neurological condition. Founded by parents in 2008, the charity has grown significantly and now supports hundreds of families across the UK through family support services, professional education, awareness raising and medical research.

As the charity enters its next phase of development, the organisation is seeking an ambitious and inspirational CEO to lead the organisation through its next stage of growth and impact.

Reporting to the Board of Trustees, you will provide strategic and operational leadership across the organisation, leading the delivery of the charity's future strategy while ensuring excellence in day-to-day operations. You will work closely with families, clinicians, researchers, industry partners, funders and policymakers, acting as a visible and credible ambassador for the charity across the sector.

This opportunity is ideally suited to a senior leader from a national charity or patient advocacy organisation who has successfully led organisational growth and transformation. You will bring experience of scaling services, income and organisational capacity, while retaining a strong understanding of hands-on leadership within a growing charity.

We are looking for a confident and influential leader with the presence and credibility to inspire supporters, stakeholders and partners, whether speaking at conferences, fundraising events or representing the charity nationally. Experience within a rare disease, neurological condition, disability, health or patient advocacy organisation would be highly advantageous, with direct rare disease experience particularly welcomed.

To be successful, you will bring:

• Significant senior leadership experience within a national charity, health or patient advocacy organisation.
• A proven track record of leading organisational growth and managing complexity through periods of change.
• Strong strategic and operational leadership skills, with the ability to balance long-term vision and day-to-day delivery.
• Outstanding relationship-building and stakeholder management capabilities.
• The confidence and presence to act as an engaging external ambassador and public spokesperson.
• A commitment to improving outcomes for individuals and families affected by complex health conditions.

This is a rare opportunity to lead a highly respected charity at an exciting time of progress and opportunity, including significant advances in rare disease research and treatment.
This role is home-based with regular UK travel and occasional international travel. Some evening and weekend work will be required.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process, then please contact Catherine Bunting at Prospectus.

Recruitment timeline:
First round interviews (via Zoom) - Friday 18th September
Final round interviews (London) - Monday 28th September

Citizens UK 

Citizens UK is the UK’s biggest, most diverse and most effective people-powered alliance. We bring communities and local organisations together to work on issues that matter; from campaigning for zebra crossings on dangerous roads, to reforming the immigration system, to the Living Wage campaign. We have a track record of winning change through hundreds of local and national campaigns. We know everyday people have the ability to shape the world around them. We believe that through developing local leaders, we can drive nationwide change and create community-led solutions to big and small problems.

Living Wage Foundation 

The Living Wage movement began in 2001, after Citizens UK brought together communities in East London to discuss poverty and low pay. The campaign grew in momentum and soon required a mechanism to recognise employers who wanted to join the movement, which saw the establishment of the Living Wage Foundation in 2011.

Still part of Citizens UK today, the Living Wage Foundation continues to work with community organisations to make sure the voices of both workers and businesses are part of the Living Wage movement. We now work with over 16,000 employers, benefitting over 475,000 people and winning over £3bn of better wages for people who need it most.

Citizens UK works with a broad base of institutions across the political spectrum. At the Living Wage Foundation, we take the same deliberately broad-based approach and accredit all organisations who pay the real Living Wage to their directly and indirectly employed staff and are committed to tackling in work poverty.  As a team we work across a range of industries and sectors to achieve this mission. We seek pragmatic coalitions in order to progress specific campaigns, and partnership around a particular issue such as Living Wage, does not imply an endorsement of broader purpose and policies.

Purpose 

At Citizens UK, our organisers and project staff work within communities to develop leaders, strengthen organisations, campaign for change and organise across difference. There are various project roles and operational, communication, finance and HR roles that support the organisation and project staff and organisers to deliver on this mission and work. This work is rewarding and can be challenging; it requires a personal commitment to inclusion, a willingness to listen and disagree respectfully, and an interest in working in an organisation where our staff, member institutions and leaders will come from a diversity of backgrounds and often hold views that may be very different from our own. More information about how we operate within this context and build trusted relationships across difference can be found on our website and is covered in induction. Onboarding and navigating this relational culture, and type of work, is supported by line managers and further training. 

Main Responsibilities 

We are looking for highly motivated and organised individual to coordinate our accreditation scheme. The role will work with our network of employers, and support new organisations through the accreditation process. 

The Programme Officer will lead our work across the South West and support our managers to grow and deepen engagement with Living Wage Employers through our associated schemes. You will help to ensure our resources and publicity materials are well written and up-to-date, and to coordinate events to grow our employer network. 

Working as the Programme Officer for Citizens UK, reporting to a Programme Manager, your main responsibilities will include: 

Contribute towards the achievement of CUK and LWF’s strategic objectives

Understand how the role contributes to LWF’s purpose and the core mission of CUK

Reliably implement CUK’s and LWF’s policies, procedures, and values in own work

Work with CUK community organisers and leaders to promote civic engagement with and ownership of the Living Wage campaign 

Feed into the LWF strategy and objectives development 

Living Wage Accreditation 

• Support key contacts at potential LW Employers through the accreditation process, from dealing with initial enquiries to guiding them through the employer journey, to checking and processing their accreditation 

• Develop rewarding relationships with key employers, industry, and campaign partners within our networks to build interest in the Living Wage and deliver a high-quality experience to our accredited employers 

• With support from the wider team, develop plans and strategies to grow the number of accreditations in specific regions or industries 

• Collate and disseminate Living Wage criteria and policy issues through both internal and external facing guidance, whilst reviewing and monitoring its suitability 

• Support the development and implementation of projects to promote and grow Living Wage accreditations and develop the quality of service offered 

Build and manage projects and achieve work targets effectively

Successfully progress projects and tasks incl. tracking performance and expenditure 

Deliver agreed areas of the LWF’s work plan and leading on agenda items to report into team meetings.

Support the growth and development of new and existing Living Wage schemes incl.  Recognised Service Providers, LW Funders, LW Places, Living Hours, Global Living Wage and Living Work Consultancy 

Deliver personal work targets on time and to standard: 

• Respond to telephone and web-based enquiries by providing advice and support to employers and supporters 

• Provide administrative support for all aspects of the accreditation journey, incl. processing accreditations, recognitions, and renewals 

• Maintain LWF data on systems, incl. Salesforce employer database

• Support the maintenance of our systems to ensure efficient processes and develop reporting mechanisms for effective monitoring and evaluation of our impact and progress against plans 

• Coordinate and administrate Steering, Advisory or Leadership Groups as required, incl. coordinating agendas, sending out timely papers, taking minutes and following up on actions 

Learning & expertise

Keep abreast of new developments in the accreditation space

Apply new learning to work and respond effectively to feedback 

Work collaboratively with the LWF and franchise teams to share learnings and experience and ensure that we are meeting the expectations of our network and stakeholders 

Develop and manage external relationships 

Effectively develop and support a range of external relationships 

Respond effectively to queries or requests from stakeholders 

Engage with a diverse range of external stakeholders to support and develop projects as required 

Communications 

Communicate effectively within the LWF; ensuring that messages are reliably passed to those who need to know 

Represent the LWF coherently in writing and verbally 

Events and Communications 

• Plan and organise events to celebrate and grow our network of LW Employers, incl. playing an active role in the delivery of LW Week and assisting colleagues with event logistics 

• Represent and speak on behalf of the LWF at internal and external meetings and events 

• Develop or feed into employer resources incl. marketing materials, blogs, reports, templates, and guides 

Develop and manage internal relationships 

Work effectively with colleagues across Citizens UK 

Work collaboratively within the LWF team and actively participate in the team to ensure we meet the expectations of our network and stakeholders 

Generate income and resources

Contribute to plans and proposals to grow sources of income/resource.

Take personal responsibility for the careful stewardship of LWF’s resources 

Personal Specification 

(D) Desirable, (E) Essential 

Qualifications 

Bachelor’s degree in any subject (D) 

Subject of relevance to community work or community organising (D) 

Experience 

• Comprehensive experience in an administrative role (E) 

• Experience of building positive relationships (E) 

• Experience of managing and updating Salesforce or similar databases (D) 

• Experience of delivering a range of high quality communications materials, including websites, reports, newsletters (D) 

Key skills and knowledge 

• Excellent time management skills with the ability to juggle a wide range of competing demands (E) 

• Understanding of database and systems management (E) 

• Ability to take in and interpret information and present in a succinct manner(E) 

• Excellent communication skills, both verbally and written, combined with the ability to liaise with senior stakeholders, both online and in-person (E) 

• Ability to act on own initiative to introduce and develop new systems as appropriate (E) 

• Strong attention to detail (E) 

• Strong IT skills to include MS Office and database software (E) 

• Understanding of the policy and campaign landscape in the UK (D) 

Personal qualities & values 

• A proactive approach to all areas of work with a ‘can do’ attitude and a flexible approach to work demands (E) 

• A strong commitment to the Living Wage campaign and principles of Citizens UK (E) 

About the application process 

We work within diverse communities bringing people together. In line with our Inclusion value, we would love to see applications from LGBTQIA+ people, people from racialised communities, people living with disabilities and people of faith, all to better represent the communities we work in. We want our employees to have the working conditions that allows them to fully participate, be able to be their best authentic selves and thrive doing so, and we have employee networks to support staff. Even if you don’t quite meet all the required criteria still consider applying, as we invest in our employees and support them to develop the skills and knowledge required to deliver their role. 

For questions and reasonable adjustments regarding your application including information in a different format, or our recruitment process, please email us.

Interviews will be in person in the South West region, week commencing 28th September 2026.

About us

Community rail is a unique and growing grassroots movement made up of community rail partnerships, station volunteer groups and other community-led initiatives across Britain.

Together, these organisations and volunteers deliver a wide range of initiatives, from engaging young people and building confidence in rail travel, to improving accessibility, enhancing stations, supporting biodiversity projects and creating community spaces that bring people together.

Community Rail Network is the national membership and umbrella body for the community rail movement across England, Scotland and Wales. We empower, support and champion community-led partnerships and groups, helping them create social, environmental and economic value through their work.

Our team of 22 colleagues is based across Britain, working mainly from home while coming together regularly online and in person. We are a collaborative, values-led organisation, passionate about making a difference through community rail.

We believe in nurturing talent, supporting professional development and creating an environment where everyone can reach their potential while maintaining a healthy work–life balance.

About this role and your main responsibilities

We are looking for a compassionate, collaborative and creative leader to head up our work with members. Everyone on the team is here for our members, but you will lead the way in ensuring everything we do is driven by what members need, now and in the future, to help them develop, grow and thrive. You’ll also help ensure our members have a great experience whenever they are accessing our support and services.

As a member of the senior leadership team, you’ll actively contribute towards its collective work in driving organisational performance and success, including growing investment in our work so we can make an even bigger difference for our members and the communities they serve.

Please see the attached introduction from our Chief Executive and role profile for further information about the position, including its principal responsibilities and the experience, skills and attributes we are looking for.

Other information

The role will involve regular travel across England, Scotland and Wales to raise the organisation’s profile and engage with members, partners and key stakeholders.

There is flexibility on your location given the requirement to travel and that your office will be home-based. You will need to travel to in-person quarterly team meetings (usually in London or the north of England) and to Board meetings which alternate between online and London.

It is expected that travel will be by public transport and easy access to the rail network is therefore required to ensure journeys can be made sustainably. 

This is a full-time position, 37 hours per week. We use a flexi-time system with core hours 10am-3pm, and are committed to being a flexible, supportive and understanding employer. This is a permanent position with a probationary period of three months. 

Successful applicants will need to provide proof that they have the right to work in the UK and provide two references.

Community Rail Network is an equal opportunities employer. We welcome applications from disabled people and Black, Asian and other minoritised groups, who meet with the skills and competencies for this role. We will provide reasonable adjustments for interviews as required.

Hours: 30–35 hours per week
Location: Home-based*
Reporting to: CEO

*This is a home-based role. However, the successful candidate will need to be based within reasonable travelling distance of London and our programme activity, with the ability to travel to meetings and visits within a day where required. We therefore anticipate that applicants based in Scotland, Ireland, West Wales or the far South West may find the role impractical.

This position is being re-advertised; previous candidates need not apply.

Be part of a mission that's transforming children's futures through food, farming and the countryside

For more than 45 years, The Country Trust has been connecting children from the UK's most disadvantaged communities with the land that sustains us all. Through inspiring farm visits, food education and countryside experiences, we've already reached more than 600,000 children, and we're just getting started.

We're entering an exciting new chapter as we develop our next organisational strategy, and we're looking for an experienced fundraising leader to help shape our future.

This is an outstanding opportunity for an ambitious and strategic fundraiser to join our Senior Leadership Team and lead the next phase of our income growth, enabling even more children to benefit from our life-changing programmes.

About the role

As Head of Fundraising, you'll provide strategic leadership across all fundraising activity while remaining hands-on in securing major income and developing key relationships.

You'll lead a dedicated fundraising team, drive innovation, strengthen fundraising systems and processes, and develop a sustainable fundraising strategy that diversifies income across:

• Trusts and foundations
• Corporate partnerships
• Major donors
• Individual giving
• Legacies
• Gaming and Streaming for Good
• Emerging fundraising opportunities

Working closely with the CEO, Senior Leadership Team, Digital and IT colleagues, you'll help embed new fundraising systems, champion data-driven decision making and ensure fundraising excellence across the organisation.

About you

We're looking for an inspiring fundraising leader who combines strategic thinking with practical delivery.

You'll bring:

• Significant senior-level fundraising leadership experience
• A proven track record of securing substantial income across multiple fundraising streams
• Experience developing and delivering fundraising strategies that drive sustainable growth
• Strong leadership skills with experience developing high-performing teams
• Excellent relationship-building, communication and influencing skills
• Financial and commercial awareness, including budgeting and forecasting
• Knowledge of fundraising regulation, GDPR and fundraising best practice
• A passion for improving opportunities for disadvantaged children

Experience developing new income streams, digital fundraising and CRM systems would be particularly valuable.

Why join us?

At The Country Trust, you'll be joining an ambitious charity where collaboration, learning and innovation are at the heart of everything we do.

We offer:

• Flexible working
• 25 days annual leave plus Bank Holidays (FTE)
• Workplace pension
• Homeworking allowance
• Mileage and agreed travel expenses
• A supportive, values-led culture
• The opportunity to shape our future strategy and make a lasting difference to children's lives

We're committed to building a diverse and inclusive team that reflects the communities we serve and welcome applications from candidates of all backgrounds.

Key dates
Closing date: 11:59pm, Sunday 13th September
Interviews from: Monday 21st September
 

The Country Trust is committed to safeguarding and promoting the welfare of children and young people. The successful candidate will be subject to an Enhanced DBS check.

Location: Bristol Office, with occasional travel to partner offices and client homes across Bristol, B&NES and North Somerset

Salary: Band D: £29,024 per annum, rising to £31,895 on successful completion of the 5-month probationary period, with annual salary reviews thereafter.

Job Type: Fixed Term (12 months). Full time preferred (37.5 hours/week), minimum 30 hours/week considered.

The role:

We’re looking for someone who would like to join our team of Energy Caseworkers within our Warmer Homes Advice & Money (WHAM) project. You will work as part of a team of caseworkers supporting people living in fuel poverty, working closely with our partner organisations across Bristol, B&NES and North Somerset and drawing on their specialist advice to support householders.

You will be trained to give energy efficiency advice to householders, working mainly from our Bristol office and occasionally from our partners’ offices, undertaking outreach activities and home visits across the area. The role includes providing in-depth casework support, communicating with energy suppliers on behalf of clients, and maintaining accurate records of all interactions.

You will join as a Trainee Energy Caseworker for the first 5 months, becoming an Energy Caseworker on successful completion of probation. This is a fixed-term post for 12 months, with full training provided, including City & Guilds Energy Awareness training, and ongoing support from a casework mentor and supervisor.

Specific responsibilities

An applicant appointed to the role will be expected to:

• Provide energy advice to clients by phone and email.
• Provide information to help clients access appropriate support.
• Engage with households who need help with their energy issues and provide in-depth casework support.
• Travel across Bristol, B&NES and North Somerset to give advice to people in their own homes, coordinate partner activity, and deliver events, talks and presentations.
• Communicate effectively with energy suppliers on behalf of clients, including investigating billing and metering issues, negotiating repayment plans and raising complaints.
• Provide administrative support to the delivery of projects and maintain accurate, detailed records of all client interactions.
• Remain vigilant for safeguarding concerns during client interactions and report promptly to the designated Safeguarding Officer.
• Work alongside and support CSE volunteers.
• Work closely with WHAM partners to offer support to clients.
• Adhere to CSE’s data recording protocols and procedures and maintain appropriate client confidentiality at all times.

To see a more detailed list of responsibilities please see the supporting documents attached. These documents are also available to download from our website.

About you:

Essential attributes for this role include:

• Experience of giving advice.
• Awareness of confidentiality requirements when handling sensitive information.
• Ability to respond to vulnerable clients in a respectful and engaging manner.
• Ability to actively listen and correctly identify the support needs of clients.
• Highly organised, with the ability to maintain admin systems independently and accurately.
• Able to work independently and use own initiative, while also working well as part of a team.
• Experienced in the use of MS Office applications (Word, Excel, Outlook), with knowledge and experience of using databases and Teams.
• Understanding of safeguarding principles and the importance of protecting vulnerable individuals.

Please note, the above is an overview of the skills required for this role. To see the full list of essential and desirable skills please see the attached job description.

Benefits:

CSE offer a range of other benefits including:

• You will be entitled to 25 days' paid holiday (plus statutory holidays)
• Subsidised bike purchase and Tech Scheme
• Life Assurance
• Health Cash plan
• Retail discounts
• Discounted breakdown cover and many more.
• We will pay fees and expenses on relevant training courses.
• We are flexible with the working hours of this role and will discuss this openly if you are invited to interview.

How to apply

To apply, please download and complete the application form available from our website and send it to our Jobs email.

Your application should demonstrate your suitability for the role against the criteria outlined in the person specification and job description. 

The closing date for applications is 5pm on Sunday 6 September 2026.

Interviews are expected to take place Tuesday 15 and Wednesday 16 September 2026, though this is subject to change.

If invited to interview, we will ask you to provide evidence of eligibility to work in the UK.

#LI-DNI

Salary: £40,000 per annum
Reporting to: Chief Operating Officer
Start Date: September 2026

About The Skill Mill

The Skill Mill is a social enterprise that provides employment opportunities for young people with criminal convictions. Through paid work in environmental projects, horticulture and grounds maintenance, we help young people develop skills, confidence and positive futures while creating benefits for local communities and the environment.

Our programmes bring together Supervisors, Youth Justice Services, employers, Pathways Advisors and local partners to support young people into sustainable education, training and employment.

The Role

This is an opportunity to help shape and strengthen the delivery of The Skill Mill across the South.

As Regional Operations Manager, you will ensure young people receive a high-quality and consistent experience throughout their time with The Skill Mill. Working closely with Supervisors, Youth Justice Services, Pathways Advisors and the Commercial Sales Manager, you will oversee day-to-day operations, support programme delivery and ensure projects run safely, effectively and to a high standard.

You will play a key role in creating the conditions for young people to succeed by supporting frontline teams, building strong partnerships and ensuring programmes deliver positive outcomes for the young people and communities we serve.

What You'll Do

Support High-Quality Programme Delivery By:

• Managing the day-to-day operation of The Skill Mill programmes across the South.
• Supporting Supervisors to deliver safe, effective and impactful work programmes.
• Monitoring programme activity and resolving operational challenges.
• Ensuring compliance with organisational policies, procedures and health and safety requirements.
• Maintaining high standards of delivery across all sites and projects.

Build Strong Partnerships By:

• Working closely with Youth Justice Services, Pathways Advisors and local partners.
• Supporting collaboration between operational teams and commercial projects.
• Acting as a key point of contact for stakeholders across the region.
• Representing The Skill Mill at partnership meetings and local events.
• Strengthening relationships that create opportunities for young people.

Monitor Performance and Impact By:

• Tracking programme delivery and performance against agreed targets.
• Monitoring progress towards social impact and employment outcomes.
• Preparing reports and updates for the Senior Management Team.
• Supporting the development of systems that measure quality, efficiency and impact.
• Using data and feedback to improve programme performance.

Support and Develop Teams By:

• Providing guidance, support and mentoring to Supervisors.
• Identifying training and development opportunities.
• Promoting a positive, collaborative and accountable culture.
• Supporting teams to deliver the best possible outcomes for young people.

What We're Looking For

We're looking for someone who can bring people together, support high-quality delivery and help create opportunities for young people to thrive.

You'll have:

• Experience in operational, service or project management.
• Strong relationship-building and stakeholder management skills.
• Experience coordinating multiple workstreams, teams or projects.
• Excellent organisational and problem-solving skills.
• Knowledge of safeguarding and working with vulnerable or disadvantaged young people.
• Strong IT and reporting skills.
• A commitment to The Skill Mill's mission and values.

Desirable:

• Experience in social enterprises, youth justice, employability or community-based services.
• Experience managing commercial contracts or operational delivery programmes.
• Understanding of outcomes-based commissioning.
• Health and Safety qualification or relevant practical experience.

What We Offer

• The opportunity to help shape services that improve outcomes for young people.
• A supportive and committed leadership team.
• Flexible working arrangements.
• Training and professional development opportunities.
• The chance to contribute to a growing social enterprise with a proven track record of creating social and environmental impact.

Why Join The Skill Mill?

Every day, you'll help ensure young people have access to meaningful employment, skills development and progression opportunities. By supporting the teams that work directly with young people, you'll play an important role in helping them build brighter futures while creating positive change in local communities.

We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.

The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.

Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.

Key Responsibilities

Community Growth and Engagement

• Contribute towards the development and delivery of a comprehensive membership growth strategy aimed at engaging at least 50% of the UK myasthenia community within five years.
• Build a deep understanding of the patient journey and identify opportunities to connect with people from diagnosis onwards.
• Lead the development of services, programmes and engagement approaches that increase membership recruitment, retention and participation.
• Ensure that people affected by myasthenia are at the heart of all organisational decisions, campaigns and strategic priorities.
• Create pathways for members, volunteers, supporters and ambassadors to actively contribute to myaware's work.
• Use data, insight and market intelligence to measure community reach, identify underserved groups and drive continuous improvement.

Campaigning, Policy and Influence

• Develop and implement a national campaigning and influencing strategy focused on awareness, equity of care, access to treatment and service improvement.
• Position myaware as a leading voice within healthcare, policy and rare disease discussions across the UK.
• Build strategic relationships with parliamentarians, government departments, NHS organisations, Integrated Care Boards, NICE, clinicians, researchers, industry partners and allied charities.
• Lead public affairs activity, including consultation responses, parliamentary engagement, policy briefings and stakeholder events.
• Ensure lived experience evidence informs policy development, healthcare decision-making and treatment access discussions.

Organisational Leadership

• Serve as a member of the Senior Leadership Team and contribute to organisational strategy and performance.
• Foster a culture of innovation, inclusion, collaboration and measurable impact.
• Work closely with fundraising, communications, partnerships, and service delivery colleagues to maximise organisational reach and effectiveness.

Awareness and Public Engagement

• Increase awareness and understanding of myasthenia among healthcare professionals, policymakers, media and the public.
• Lead initiatives that strengthen myaware's visibility, reputation and influence.
• Support the development of compelling campaigns, media activity and storytelling that inspire engagement and drive action.
• To be the spokesperson for myaware.

What Success Looks Like

Within five years, the postholder will have:

• Led significant growth in membership, progressing towards engaging at least 50% of the UK's myasthenia community.
• Increased participation in surveys, campaigns, events, volunteering and lived-experience activities.
• Established myaware as the recognised national voice for people affected by myasthenia.
• Secured meaningful influence in policy, healthcare and treatment access discussions.
• Generated evidence of improvements in awareness, service delivery, treatment access and patient representation.
• Built a highly engaged and empowered community capable of driving change at local, national and system levels.

Person Specification

Essential Experience

• Significant senior leadership experience within the charity, healthcare, membership, public affairs or advocacy sectors.
• Proven success in growing and engaging communities, memberships, movements or supporter bases at scale.
• Experience developing and delivering campaigning, influencing or public affairs strategies that have achieved measurable outcomes.
• Strong track record of building relationships with senior external stakeholders and decision-makers.
• Experience using data, insight and lived experience to shape organisational priorities and influence strategy.
• Experience leading, motivating and developing high-performing teams.

Essential Knowledge and Skills

• Outstanding strategic thinking and leadership abilities.
• Exceptional communication, influencing and relationship-building skills.
• Strong understanding of community mobilisation, supporter engagement and membership growth.
• Ability to translate complex healthcare and policy issues into compelling public narratives and calls to action.
• Strong analytical and performance management skills.
• Commitment to inclusion, co-production and patient-centred approaches.

Personal Attributes

We are looking for someone who is:

• Ambitious about building one of the UK's most engaged rare disease communities.
• Passionate about amplifying the voices of people with lived experience.
• Collaborative and inspiring.
• Politically astute and credible with senior stakeholders.
• Resilient, innovative and outcomes focused.
• Motivated by creating lasting change for people living with long-term health conditions.

Why Join Us?

myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.

Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor. 

myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Application instructions

Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September

Provisional interview dates will be week commencing: 28.9.26

Interviews will be held over Microsoft Teams.

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

The client requests no contact from agencies or media sales.