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Lead the operations, governance and compliance that enable Solving Kids' Cancer UK to deliver its mission and impact for children and families affected by neuroblastoma. Reporting to the Chief Executive, you will play a critical role in ensuring the charity operates effectively, compliantly and sustainably.
This broad and varied leadership role spans governance, risk, HR, IT, data protection and organisational operations, supporting delivery of the charity's strategy through robust systems, policies and processes. Acting as Company Secretary, you will work closely with the CEO and Board of Trustees, providing advice on governance, regulatory requirements and best practice. As a member of the Leadership Team, you will oversee key operational functions, lead cross-organisational projects and deputise for the CEO where required.
Who are we looking for?
We are looking for a strategic, highly organised and values-driven leader with strong experience in charity operations, governance and compliance. You will have a track record of ensuring organisations are well run, compliant and effectively managed, with the ability to oversee multiple operational areas and support strong governance and decision-making at Board level.
You will be comfortable working across a broad remit, including governance, risk, HR, IT and data protection, and confident providing clear, practical advice to senior leaders and trustees.
Person specification
Key requirements include:
- Significant senior-level experience in operations, governance or compliance within a charity or similar environment.
- Strong understanding of charity governance and regulation, with experience supporting boards and senior leadership.
- Experience overseeing organisational functions such as HR, IT, data protection or risk.
- Proven ability to manage multiple priorities and lead cross-organisational work effectively.
- Strong judgement, integrity and the ability to handle sensitive matters with discretion.
See our Recruitment Pack for the full role description and specification and for information about Solving Kids' Cancer UK.
This is an opportunity to make a significant contribution at the heart of a small, ambitious charity where strong operations are a vital enabler of impact for children and families.
Location: Home-based, within easy reach of London, with regular travel to the London office and occasional UK-wide travel.
First-stage interview: Thursday 6 August
Second-stage interview: Thursday 13 August
Our vision is a future where no child dies of the childhood cancer neuroblastoma or suffers due to the treatment they receive.
The client requests no contact from agencies or media sales.
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Fundraising Lead
£45,000–£55,000 F/T
Remote with regular travel
About Metabolic Support
Metabolic Support is the UK umbrella patient organisation for people living with Inherited Metabolic Disorders (IMDs) — rare, lifelong genetic conditions affecting around 40,000 people in the UK and 1.43 million worldwide. Since 1981 we have been at the forefront of rare disease advocacy, research and community support.
About the Role
This is a strategic, hands-on opportunity to lead our fundraising activity, drive sustainable income growth and position Metabolic Support as the leading international patient advocacy group for IMDs. Reporting to the Chief Executive, you'll shape and deliver an ambitious fundraising strategy, build relationships with trusts, foundations, corporates and major donors, and work across our small, agile team to embed fundraising principles into everything we do. The role has no direct reports but requires a collaborative, proactive approach and the confidence to work autonomously.
Key Responsibilities
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Develop and deliver an integrated fundraising strategy covering corporate partnerships, individual giving, major donors, trusts and foundations, legacies, community and events
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Lead on high-value bids and build compelling donor propositions
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Manage donor stewardship, CRM (Nutshell), budgets and board reporting
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Instil fundraising principles across the team and maximise income opportunities organisation-wide
About You
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Proven fundraising or income generation experience with expertise in at least one area: trusts and foundations, corporates or major donors
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Strong relationship-builder with excellent written and verbal communication skills
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Highly organised, self-starting and comfortable managing competing priorities
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Committed to Metabolic Support's mission; willing to travel in the UK and internationally
The client requests no contact from agencies or media sales.
Job Purpose
To provide a physiotherapy service as part of a multi-disciplinary team, on a part-time basis
Key Working Relationships
Physiotherapists are self-employed contractors and report to the Clinical Lead.
Other key working relationships:
- Other physiotherapists within the team
- Other members of the services team
- Action for M.E. colleagues
Job Description
Key duties
- Respond to physiotherapy referrals
- Carry out assessments, provide advice and recommend interventions to manage the symptoms in patients with M.E./C.F.S. and related conditions, working with a whole person approach, and involving family/carers where appropriate
- Provide written reports for the person with M.E. and others involved in their care with consent of the patient
- Participate in clinical team meetings at least once a quarter (approximately 1 hour)
- Participate in quarterly physiotherapy team meetings (approximately 1 hour)
Key Tasks
- Arrange and undertake consultations in the most appropriate manner for the patient - remotely by either telephone, Zoom or email.
- Record consultation details (date, length of consultation, charge) on Action for M.E.’s internal tracker for invoicing purposes
- Consider choices and in collaboration with the person with M.E., agree attainable and realistic goals, however small, during assessment
- Offer a selection of gentle progressive interventions to facilitate an improvement in their quality of life
- Offer follow-up consultations with patients by phone, Zoom or email
- Raise any safeguarding concerns to appropriate colleagues.
Working Practices
- Seek to reduce fear associated with the illness and to create an environment for healing
- Offer clear and consistent information and advice to people with M.E. and their family/carers
- Work within Action for M.E. policies ensuring privacy and dignity.
Person Specification
Qualifications/Key requirements
- Must be registered HCPC
- Must be registered with Chartered Society of Physiotherapy or other professional body which can provide PLI
- Up to date professional indemnity insurance
- Safeguarding training to Level 3
- Eligible to work in the UK
Experience and Knowledge
May be varied but would typically include:
- Several years of post-graduate work experience in different aspects of the profession
- Familiarity with the NICE Guideline for the management of M.E. (2021)
- Experience in the management of long-term conditions
- Experience in the management of chronic pain and its impact on the quality of life
- Working in a multi-disciplinary team
Skills and Behaviours
- Excellent communication skills, in both active listening and careful word usage
- Proficient with Microsoft Office (including Word, Excel, Outlook, Teams) and the ability to quickly learn relevant bespoke software systems
Attitudes
- Understanding that ME/CFS is a complex biomedical condition
- A desire to help people holistically to manage their ME/CFS
- A willingness to think outside established protocols
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.