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Job Purpose

Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.

Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.

You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.

As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.

You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.

As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.

Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.

Key Duties

• Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
• Assist the project's management team and other team members with meeting scheduling and diary coordination
• Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
• Prepare, format and proof-read governance documents and papers
• Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
• Provide administrative support for project events - from planning and logistics through to on-the-day support
• Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
• Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
• Support coordination between internal teams and external partners, including research and funding partners
• Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
• Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
• Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
• Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team

Person Specification

Essential skills and experience

• Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
• Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
• IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
• Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
• Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
• Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
• Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
• Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
• Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential

Desirable skills and experience

• Experience providing administrative support for scientific or research-related projects
• Experience writing and communicating with non-specialist or general audiences