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We are seeking an experienced and dynamic Fundraising Officer to join the fundraising team at the Batten Disease Family Association CIO (BDFA).
The BDFA, founded in 1998 is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young adults. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
This is an exciting time to join the charity, which has grown to offer additional support services for families affected by Batten disease and to implementing a long-term strategy to develop its advocacy, education and research capabilities. Come and join our supportive team as we continue to build and develop the organisation and strengthen our financial resilience.
We’re looking for an individual who has some experience in fundraising, particularly leading on all aspects of community fundraising, developing and nurturing relationships with volunteer fundraising groups and individual supporters. The successful candidate will work under the guidance of our CEO to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement. The successful candidate will also work alongside our Trusts and Foundations Fundraising Officer to support our Trusts and Foundations income generation.
The Ideal Candidate for this role will have:
- Experience in all aspects of community fundraising including events, assisting fundraisers to develop imaginative fundraising ideas and inspiring new supporters to raise funds whilst maintaining relationships with existing supporters
- Experience in building and sustaining long-term relationships with fundraising groups and individual supporters
- Experience in managing effective and creative fundraising communications on social media and the website
- Ability to contribute to the overall Trusts and Foundations income stream, including proactively researching and identifying grant funding opportunities
- Ability to lead on creative fundraising campaigns around key events such as Batten disease awareness day and Christmas
This job requires a motivated individual who has a passion for all those within our Batten community and a strong desire to support the development and financial growth of the BDFA. The role is full time (35 hours per week) and is home based with occasional travel around the UK to meet donors and support fundraising events.
The BDFA recognises the positive value of diversity and is committed to creating a diverse and inclusive team. We encourage applications from all suitably qualified or experienced individuals, regardless of their race, gender, biological sex, disability, religion/belief, sexual orientation or age.
Salary £27k - £34k PA dependent on experience
Upload a CV and covering letter to apply
Apply by: Monday 15th December
Interviews for this role will take place on Monday 22nd December
Thank you!
About the role
You will be home based and will need to travel in the UK, Eire, Europe and further afield as the role develops.
You will need some storage space available for Charity materials.
If you are self-driven, motivated, and want to help others achieve something amazing in support of Histiocytosis UK, we would love to hear from you.
You are likely to be in a similar role at another charity or have the right experience and transferable skills from another sector. You’ll be confident, enthusiastic, and an exceptional influencer with great customer care and communication skills.
There will be ample opportunity to shape the role, lead on specific projects and put your ideas into action.
The role will be mainly remote working so your experience and motivation will be key in this role so that we can achieve tangible results.
Who we need?
You will be an excellent communicator, face to face, online, phone or email. You know the importance of listening, and you are the sort of person that brings focus and calm to difficult situations. Prioritising your workload is second nature. Perhaps most importantly of all, you’re energised and driven by a passion for learning and making life better for those with a long term and/or serious illness.
A degree is not essential, but a communication and fundraising skills qualification is desirable. It is important that you have a high standard of writing, and that you are on good terms with your computer, particularly MS office, email and maybe even Mailchimp, Zoom, Sage Accounting, Spreadsheets etc.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraiser - Home Counties
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex.
Key Responsibilities:
- Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects
- Steward supporters to help drive the charity’s fundraising activities and growth
- Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders
- Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research
Requirements:
- At least one year of fundraising experience, with a proven track record in income generation
- Strong experience in supporter stewardship
- Excellent communication skills, with the ability to engage and inspire supporters and partners alike
- Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure
If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.
We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
Closing Date: 14th December 2025
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
Registered Charity
51 - 100
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraiser - London
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within London.
Key Responsibilities:
- Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects
- Steward supporters to help drive the charity’s fundraising activities and growth
- Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders
- Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research
Requirements:
- At least one year of fundraising experience, with a proven track record in income generation
- Strong experience in supporter stewardship
- Excellent communication skills, with the ability to engage and inspire supporters and partners alike
- Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure
If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.
For this role, the successful candidate must live in the London area.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
Closing Date: 28th November 2025
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
Registered Charity
51 - 100
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research
The client requests no contact from agencies or media sales.