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This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are seeking an experienced and dynamic Fundraising Officer to join the fundraising team at the Batten Disease Family Association CIO (BDFA).
The BDFA, founded in 1998 is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young adults. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
This is an exciting time to join the charity, which has grown to offer additional support services for families affected by Batten disease and to implementing a long-term strategy to develop its advocacy, education and research capabilities. Come and join our supportive team as we continue to build and develop the organisation and strengthen our financial resilience.
We’re looking for an individual who has some experience in fundraising, particularly leading on all aspects of community fundraising, developing and nurturing relationships with volunteer fundraising groups and individual supporters. The successful candidate will work under the guidance of our CEO to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement. The successful candidate will also work alongside our Trusts and Foundations Fundraising Officer to support our Trusts and Foundations income generation.
The Ideal Candidate for this role will have:
- Experience in all aspects of community fundraising including events, assisting fundraisers to develop imaginative fundraising ideas and inspiring new supporters to raise funds whilst maintaining relationships with existing supporters
- Experience in building and sustaining long-term relationships with fundraising groups and individual supporters
- Experience in managing effective and creative fundraising communications on social media and the website
- Ability to contribute to the overall Trusts and Foundations income stream, including proactively researching and identifying grant funding opportunities
- Ability to lead on creative fundraising campaigns around key events such as Batten disease awareness day and Christmas
This job requires a motivated individual who has a passion for all those within our Batten community and a strong desire to support the development and financial growth of the BDFA. The role is full time (35 hours per week) and is home based with occasional travel around the UK to meet donors and support fundraising events.
The BDFA recognises the positive value of diversity and is committed to creating a diverse and inclusive team. We encourage applications from all suitably qualified or experienced individuals, regardless of their race, gender, biological sex, disability, religion/belief, sexual orientation or age.
Salary £27k - £34k PA dependent on experience
Upload a CV and covering letter to apply
Apply by: Monday 15th December
Interviews for this role will take place on Monday 22nd December
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraiser - Home Counties
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex.
Key Responsibilities:
- Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects
- Steward supporters to help drive the charity’s fundraising activities and growth
- Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders
- Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research
Requirements:
- At least one year of fundraising experience, with a proven track record in income generation
- Strong experience in supporter stewardship
- Excellent communication skills, with the ability to engage and inspire supporters and partners alike
- Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure
If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.
We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
Closing Date: 14th December 2025
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
Registered Charity
51 - 100
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraiser - London
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within London.
Key Responsibilities:
- Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects
- Steward supporters to help drive the charity’s fundraising activities and growth
- Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders
- Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research
Requirements:
- At least one year of fundraising experience, with a proven track record in income generation
- Strong experience in supporter stewardship
- Excellent communication skills, with the ability to engage and inspire supporters and partners alike
- Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure
If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.
For this role, the successful candidate must live in the London area.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
Closing Date: 28th November 2025
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
Registered Charity
51 - 100
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research
The client requests no contact from agencies or media sales.
Thank you!
About the role
You will be home based and will need to travel in the UK, Eire, Europe and further afield as the role develops.
You will need some storage space available for Charity materials.
If you are self-driven, motivated, and want to help others achieve something amazing in support of Histiocytosis UK, we would love to hear from you.
You are likely to be in a similar role at another charity or have the right experience and transferable skills from another sector. You’ll be confident, enthusiastic, and an exceptional influencer with great customer care and communication skills.
There will be ample opportunity to shape the role, lead on specific projects and put your ideas into action.
The role will be mainly remote working so your experience and motivation will be key in this role so that we can achieve tangible results.
Who we need?
You will be an excellent communicator, face to face, online, phone or email. You know the importance of listening, and you are the sort of person that brings focus and calm to difficult situations. Prioritising your workload is second nature. Perhaps most importantly of all, you’re energised and driven by a passion for learning and making life better for those with a long term and/or serious illness.
A degree is not essential, but a communication and fundraising skills qualification is desirable. It is important that you have a high standard of writing, and that you are on good terms with your computer, particularly MS office, email and maybe even Mailchimp, Zoom, Sage Accounting, Spreadsheets etc.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Role: Healthcare Partnerships Lead
Hours: 22.5hr hrs per week, (3 days, Tuesday and Friday core days)
Location: Homebased within the UK with a requirement to travel independently and support in person events, conferences and meetings
Reporting to: Director of Programmes and Partnerships
Benefits: Flexible working arrangements, 28 days of annual leave (FTE) + 1 day for your birthday, pension scheme
Key relationships: Managing external relationships with key healthcare professionals and partners and working closely with our Medical Advisor and Information and Research Manager
Salary: £35,000 per annum (FTE)
About the role
Do you have a proven track record of building impactful partnerships in the healthcare sector? Do you want to make a meaningful difference at the world’s leading multiple sclerosis healthy lifestyle charity?
We are seeking a dynamic Healthcare Partnerships Lead, to drive forward our Healthcare Engagement Strategy, ensuring that more people understand the importance of healthy lifestyle in managing MS symptoms and progression. You will lead the development and delivery of initiatives that align with our strategic vision—ensuring that everyone affected by MS knows that hope and possibility exist beyond diagnosis.
Healthcare professionals play a pivotal role in the lives of people with MS. As the first point of contact, they are the primary source of trusted information and support. Given the lifelong nature of MS, these relationships can span decades, making it essential that we engage meaningfully with the healthcare community. By fostering strong partnerships, we can ensure that more professionals are equipped to share evidence-based lifestyle interventions and offer hope from the very beginning.
Why this role matters
Since 2012, Overcoming MS has been at the forefront of promoting an evidence-based approach to the self-management of MS using healthy lifestyle choices alongside medication. Although there is no cure for MS, we help people with MS to live well by making informed lifestyle choices.
Over the past 18 months, we have laid a strong foundation for this work:
· Identifying key barriers to supported self-management in MS.
· Co-developing educational resources to support healthcare professionals
· Piloting projects with healthcare professionals.
· Refining and presenting data to demonstrate the value of our approach.
Now, we are ready to build on that momentum—and we need you to take it further.
Key responsibilities
· Lead the successful delivery of the Healthcare Engagement strategy, identifying and promoting engagement with our key audiences and stakeholders, in accordance with the NHS 10-year plan.
· Raise awareness with healthcare professionals of the importance of healthy lifestyle in managing MS symptoms and disease progression, resulting in expanded access to supported self-management for people with MS.
· Lead the development and delivery of strategic projects that engage healthcare professionals.
· Raise the profile and credibility of Overcoming MS, our information, events and courses, positioning us as the go-to charity for lifestyle and living well with MS.
· Increase the impact of our HCP education module, through our existing partnership with the British Society of Lifestyle Medicine, marketing the education widely, evaluating its benefit to HCPs and strategically reviewing the format, vehicle and content as appropriate.
· Work closely with our internal Evidence Gathering Group, our Medical Advisor, and Information and Research Manager to facilitate the development of the relationship, profile and reach between the charity and the health and social care sectors.
· Develop a wide network of key healthcare professionals to inform our strategy, provide expertise, expert review of materials, and content (podcasts, webinars, blogs)
· Co-produce posters, abstracts and academic articles to present at key conferences.
· Identify and attend key healthcare events and conferences, building networks, partnerships and other resources to increase knowledge and awareness.
Other responsibilities
· Create meaningful engagement with the MS community and healthcare professional partners, widening our reach to support more people with MS.
· Empower people affected by MS and their healthcare professionals to discuss lifestyle modification and the Overcoming MS Program with confidence, improving self-management and health outcomes.
· Identify opportunities for accessing funding streams, working with Fundraising colleagues to diversify our income base.
· Raise our profile within the healthcare environment so that they recommend the charity and will advocate on our behalf.
· As we are a small, busy charity, all staff help with the general running of the organisation in addition to their specific role activities.
What you will bring
· Proven experience in healthcare partnership development and stakeholder engagement.
·Strong understanding of the challenges facing people living with a lifelong condition such as MS, including the emotional, physical, and social impacts along with a strong understanding of the NHS, Public Health and the UK health care policy landscape.
· A proactive, independent professionalism with the ability to problem solve.
· Strategic thinking with a collaborative, hands-on approach
· Strong understanding of health inequalities and community-based health initiatives.
· Excellent communication, presentation and influencing skills.
· Confidence to attend meetings as sole representative of the charity and ability to get oneself there independently.
· Intellectual flexibility, with the ability to embrace and deal with complexity.
· Passion for improving lives through lifestyle and wellness interventions.
· Comfortable working remotely, attending events during evenings and weekends.
· Experience as a senior healthcare lead or similar role (Desirable).
· Experience and knowledge of neurological conditions (Desirable).
First stage interviews to be held online: Wednesday 3rd December and Thursday 4th December
Second stage interviews to be held online: Friday 12th December
Registered Charity
11 - 20
We're here for everyone with MS who wants to take control of their health and wellbeing.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Policy and Public Affairs Manager will play a key role in positioning Action for pulmonary Fibrosis as the leading voice in improving PF care. The postholder will take a leadership role within the Policy and Public Affairs team, providing strategic direction on our key policy priorities. Working with the Director of Policy, Research and Involvement, you will lead the development and implementation of policy initiatives that align with the organisation’s strategic priorities including OneVoiceILD, our movement to bring transformational systems change to how NHS services are delivered across the UK.
This is a highly visible position, working in collaboration with healthcare and allied health professionals, commissioners, researchers, voluntary sector partners and within the wider respiratory community. As a member of APF’s Organisation Leadership Group, the PPA Manager will collaborate to drive operational delivery of strategic priorities, coordinating cross-team activity, support organisational communication and culture, and review risks, procedures and operational performance.
Key Areas of the Role:
OneVoiceILD: Lead an effective OneVoiceILD movement, our vehicle for transformational systems change in the NHS.
Policy: Provide leadership on our policy priorities across all four nations of the UK.
Public affairs and influencing: Lead a strong programme that brings our policy and influencing priorities to life through targeted engagement with key stakeholders.
Registered Charity
21 - 50
Action for Pulmonary Fibrosis (APF) is a national charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis.
The client requests no contact from agencies or media sales.