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Bowel Research UK is looking for a permanent Research and Grants Manager to coordinate and evaluate the management of the charity’s research activities. This role covers all aspects of pre- and post-award research management, impact reporting, grant finance management and governance, co-ordination of the Charity’s scientific committees and shaping external scientific communications to supporters and other stakeholders. Additionally, you will foster and maintain strong relationships with researchers, serving as the primary point of contact for engaging with the research community. 

Bowel Research UK are bringing this permanent role following time spent with an interim postholder in position to create a solid foundation and understanding of what the role needs.

This is an opportunity to work with the UK’s leading specialist bowel cancer and bowel disease research charity. Bowel Research UK believe that a cure for bowel cancer and effective treatments to mitigate, or entirely eradicate, other bowel diseases is possible – but only if vital research is funded and investment made into the scientific and medical communities today, to see the benefits tomorrow. 

Bowel Research UK are a flexible employer, for this post they are looking for someone to be comfortable with joining the team in the London office once a month. If the post holder would prefer to work more regularly from an office base, the charity has office space at Royal College of Surgeons in central London. Most team members work from here on Tuesdays and Thursdays. 

For further information and to apply please follow the guidance in the Candidate Pack to arrange a conversation about your suitability for the role and next steps.

Closing date: midnight Wednesday 22nd July

The selection process will involve a two-stage interview process.

Fundraising Lead  
£45,000–£55,000 F/T 
Remote with regular travel 

About Metabolic Support 

Metabolic Support is the UK umbrella patient organisation for people living with Inherited Metabolic Disorders (IMDs) — rare, lifelong genetic conditions affecting around 40,000 people in the UK and 1.43 million worldwide. Since 1981 we have been at the forefront of rare disease advocacy, research and community support. 

About the Role 

This is a strategic, hands-on opportunity to lead our fundraising activity, drive sustainable income growth and position Metabolic Support as the leading international patient advocacy group for IMDs. Reporting to the Chief Executive, you'll shape and deliver an ambitious fundraising strategy, build relationships with trusts, foundations, corporates and major donors, and work across our small, agile team to embed fundraising principles into everything we do. The role has no direct reports but requires a collaborative, proactive approach and the confidence to work autonomously. 

Key Responsibilities 

• Develop and deliver an integrated fundraising strategy covering corporate partnerships, individual giving, major donors, trusts and foundations, legacies, community and events 

• Lead on high-value bids and build compelling donor propositions 

• Manage donor stewardship, CRM (Nutshell), budgets and board reporting 

• Instil fundraising principles across the team and maximise income opportunities organisation-wide 
   

About You 

• Proven fundraising or income generation experience with expertise in at least one area: trusts and foundations, corporates or major donors 

• Strong relationship-builder with excellent written and verbal communication skills 

• Highly organised, self-starting and comfortable managing competing priorities 

• Committed to Metabolic Support's mission; willing to travel in the UK and internationally 

Job Purpose 

To provide a physiotherapy service as part of a multi-disciplinary team, on a part-time basis

Key Working Relationships

Physiotherapists are self-employed contractors and report to the Clinical Lead.

Other key working relationships:

• Other physiotherapists within the team
• Other members of the services team
• Action for M.E. colleagues

Job Description

Key duties

• Respond to physiotherapy referrals
• Carry out assessments, provide advice and recommend interventions to manage the symptoms in patients with M.E./C.F.S. and related conditions, working with a whole person approach, and involving family/carers where appropriate
• Provide written reports for the person with M.E. and others involved in their care with consent of the patient
• Participate in clinical team meetings at least once a quarter (approximately 1 hour)
• Participate in quarterly physiotherapy team meetings (approximately 1 hour)

Key Tasks 

• Arrange and undertake consultations in the most appropriate manner for the patient - remotely by either telephone, Zoom or email.
• Record consultation details (date, length of consultation, charge) on Action for M.E.’s internal tracker for invoicing purposes
• Consider choices and in collaboration with the person with M.E., agree attainable and realistic goals, however small, during assessment
• Offer a selection of gentle progressive interventions to facilitate an improvement in their quality of life
• Offer follow-up consultations with patients by phone, Zoom or email
• Raise any safeguarding concerns to appropriate colleagues.

Working Practices  

• Seek to reduce fear associated with the illness and to create an environment for healing
• Offer clear and consistent information and advice to people with M.E. and their family/carers
• Work within Action for M.E. policies ensuring privacy and dignity.

Person Specification

Qualifications/Key requirements

• Must be registered HCPC
• Must be registered with Chartered Society of Physiotherapy or other professional body which can provide PLI
• Up to date professional indemnity insurance
• Safeguarding training to Level 3
• Eligible to work in the UK

Experience and Knowledge

May be varied but would typically include:

• Several years of post-graduate work experience in different aspects of the profession
• Familiarity with the NICE Guideline for the management of M.E. (2021)
• Experience in the management of long-term conditions
• Experience in the management of chronic pain and its impact on the quality of life
• Working in a multi-disciplinary team

Skills and Behaviours

• Excellent communication skills, in both active listening and careful word usage
• Proficient with Microsoft Office (including Word, Excel, Outlook, Teams) and the ability to quickly learn relevant bespoke software systems

Attitudes

• Understanding that ME/CFS is a complex biomedical condition
• A desire to help people holistically to manage their ME/CFS
• A willingness to think outside established protocols