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Patient and Public Involvement Volunteer
We’re the MS Society – a community of people living with MS, scientists, campaigners, listeners, organisers, ambassadors and fundraisers. Our volunteers are a key part of achieving our goals and their support is vital. Join us.
About this opportunity
We are looking to recruit a Patient and Public Involvement Volunteer, to join our project team looking at developing a payment for involvement policy. The MS Society involves people affected by MS in many aspects of work, often this involvement means that we share decision-making power with people affected by MS or we gain insights on living with MS which help shape our work. It is considered best practice across the involvement sector to reimburse people for their time when they contribute to our work in this way. The aim of this project is to establish a policy on how the MS Society should be reimbursing people for time spent on involvement activities.
Your role on the project group will be to represent the needs and opinions of the MS community on this topic. You’ll be asked to attend regular online project meetings (one meeting every 6 weeks). You’ll also be asked for feedback on ideas and the draft policy via email in between meetings. The project is expected to last until autumn 2025.
This is a great opportunity to gain experience within a large charity and develop your existing skills and learn new ones.
About You
You’ll have an interest in the MS Society and the work that we do, as well as the enthusiasm to get involved and represent us and our values. You will understand the needs of people affected by MS.
To Apply
- Read through the role description carefully and apply online
The MS Society is committed to promoting diversity. We can only offer roles to over 18s.
We believe that every child should have access to a quality education at a safe, inclusive school, with the opportunity to become a truly global citizen… do you too?
It’s an incredibly exciting time at African Adventures Foundation as we develop the vital programmes we deliver at the 34 partner schools we work with in Ghana, Kenya, and Zanzibar.
We have ambitious plans to help drive greater impact at our partner schools, and are looking to strengthen our existing Trustee Board that’s full of energy and experience!
Do you have experience in charity governance, delivering projects in an African culture and context, or delivering WASH or female empowerment/education/menstrual health programmes?
If so, read on… we’d be keen to hear from you about becoming one of our amazing volunteer trustees!
Introduction to African Adventures Foundation
African Adventures Foundation is a registered charity set up in 2013 to provide support to 34 schools in developing areas of Ghana, Kenya and Zanzibar.
These schools provide education, health and food security, and social support to young people whose access to these basic services would otherwise be very limited. African Adventures Foundation helps by funding food security programmes, the construction of important school facilities, and hygiene projects that will benefit children’s health and education.
Our mission is to provide more children with a quality education and better opportunities in life.
All trustees are responsible for governing a charitable company and directing its management and operation. They must also ensure that the trust complies with all legal and statutory requirements.
Trustee Responsibilities:
The role of a Governance & Delivery Trustee is to ensure the Foundation complies with its charity obligations, maximise impact through effective in country project delivery, and bring valuable insight into the specific cultural and operational context of working in Africa.
We are looking for two Trustees to bring specific expertise to the overall Trustee Board alongside the Chair, Fundraising, and Treasurer Trustee positions.
Governance (role specific)
● Understand and represent the needs of the charity’s governing framework on behalf of the Chair and board.
● Recommend relevant changes or documentation, and identify any areas od noncompliance to be addressed within improvement plans.
● Act as spokesperson and figurehead for African Adventures Foundation internally and externally concerning our charity governance.
Delivery (role specific)
● Contribute to governance, approval, and impact assessment processes at board level for the successful delivery of Foundation projects.
● Provide best practice advice, support, and oversight to the projects being delivered on behalf of the board as required.
Context & Culture (role specific)
● Bring experience, knowledge and good judgement relating to the culture and context of the communities and territories we operate in.
● Bring an understanding of delivering charitable projects in an African educational context to board level.
● Bring an understanding to Trustee Board level, of delivering WASH programmes and Female empowerment, education, and menstrual health projects.
General (all Trustees)
● Support and provide advice on AAF’s purpose, vision, goals, and activities while working alongside the trustee Board, founder, and African Adventures personnel.
● Approve operational strategies and policies and monitor and evaluate their implementation, adding to overall good charity governance.
● Support broad decision-making, risk management, and charity planning through a range of platforms and processes.
● Keep abreast of changes in AAF’s operating environment through your external experience.
● Be fully prepared to attend, participate and contribute in Board meetings and Trustee events.
● Act as AAF ambassador applying your skills, experience and knowledge in a range of scenarios including government, fundraising and networking events.
● Use independent judgment, acting legally and in good faith to promote and protect African Adventures Foundation’s interests, to the exclusion of their own personal and/or any third-party interests.
● Support the Chair with administrative tasks as required.
What we are looking for:
● Attention to detail.
● A good knowledge of charity governance and willingness to challenge.
● A good understanding of delivering charity/NGO projects.
● A good understanding of operating and/or overseeing delivery in an African culture and context.
● Background in WASH and/or female empowerment, education, and menstrual health projects.
Essential qualities and attributes of all our trustees
● Willingness and ability to understand and accept their responsibilities and liabilities as trustees, and to act in the organisation's best interests.
● Ability to think creatively and strategically, exercise good, independent judgement and work effectively as a board member.
● Effective communication skills and willingness to participate actively in discussions.
● A strong personal commitment to equity, diversity, and inclusion.
● Enthusiasm for our vision and mission.
● Willingness to lead according to African Adventures Foundation’s values.
● Commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty, and leadership.
Terms of appointment
● Trustees are appointed for a 2-year term of office, renewal for 2 further terms to a maximum of 6 years.
● This is a voluntary position, but reasonable expenses will be reimbursed.
Time commitment (estimated at one day every month)
● Attending quarterly Trustee Board meetings. Currently, these are alternating between online and in-person at HQ near Southampton, UK.
● Flexibility to respond swiftly to the occasional ad hoc issue and Trustee comms
● Attending occasion workshops and fundraising & networking events as per availability.
We are looking for people to bring energy, enthusiasm and commitment to the role and broaden the diversity of thought within our board.
The client requests no contact from agencies or media sales.
Over past decades, enormous advances have been made in our understanding of MS. Research has got us to a critical point, and we can see a future where nobody needs to worry about their MS getting worse. Our Stop MS Appeal needs to raise £100 million to find treatments for everyone with MS.
Our Stop MS Champions help us reach more people and inspire them to get involved in our Stop MS Appeal by encouraging raising funds and awareness by delivering presentations, attending events and identifying new audiences to speak to. They inspire people to engage with and influence fundraisers and groups, enthuse people and make sure our community’s voice is heard.
As our Lead Stop MS Champion, you’ll motivate your team of Stop MS Champions to help reach more people and inspire them to get involved in our Stop MS Appeal.
By using your ability to motivate and support, you will oversee and lead a team of 5-10 Stop MS Champion volunteers, encouraging them to engage the people they know to raise funds and awareness, and provide reliable information and guidance.
You’ll also network to engage with and influence fundraisers and community groups, enthusing people by delivering presentations at events and finding new audiences to speak to. In this role, as well as developing your leadership, networking, influencing, communication, organisation and presentation skills, you’ll have a chance to be part of something amazing – you could help us stop MS.
The Sheila McKechnie Foundation (SMK) was set up in June 2005 in memory of legendary campaigner, Sheila McKechnie.Campaigning is vital to a healthy society. We help campaigners to thrive. In a free and hopeful society, people need to know they have the power to make a difference: that they are able to envisage change and can push for that change to happen. For nearly two decades, we have helped all sorts of individuals, causes and charities to find their power as changemakers – as campaigners. We support, connect and champion these campaigners, equipping them to go after the social change they seek.
The Chair will hold the Board and staff team to account for SMK’s mission and vision, provide inclusive leadership to the Board and ensure that Board members fulfil their duties and responsibilities for the effective governance of SMK. The Chair will line manage and support the Chief Executive and ensure that the Board functions as a unit and works closely with the Chief Executive and staff team to achieve agreed objectives. They may also be asked to act as an ambassador and a public face of SMK in partnership with the Chief Executive and the Board.
For further information, see our website and the recruitment pack.