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Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About Bipolar UK
Bipolar UK is the only national charity dedicated to supporting people affected by bipolar — including individuals, carers, families and loved ones. Over one million people in the UK live with bipolar disorder, yet many experience symptoms for years before receiving an accurate diagnosis.
We are entering an exciting new phase following the launch of our co-produced three-year strategy (2026–2029). Over the coming years, we will reach more people than ever before, expand access to self-management support, and build understanding of bipolar across workplaces, services and communities.
At the heart of our work is the belief that people affected by bipolar are the experts in their own lives. We are committed to equity, diversity and inclusion, and to ensuring our services are accessible, culturally responsive and shaped by lived experience.
Purpose: The Peer Support Officer role will work within Bipolar UK’s Peer Support Line team to support our community through telephone and email support across the UK.
The role involves using your skills and knowledge to support people affected by bipolar disorder with support requests and providing information and signposting to people via email and telephone. The successful applicant will also manage service reports in Salesforce, report back regularly to the management team, as well as developing links with other mental health services or appropriate agencies.
Though Bipolar UK does not offer Crisis Support, the successful applicant may have to direct members of our community experiencing a crisis to relevant services and will also be responsible for recognising and reporting Safeguarding incidents within the bounds of Bipolar UK’s Safeguarding Policies.
The position requires good personal interaction and the ability to empathise with service users while remaining calm and considered in sometimes difficult situations. This is a varied and hands on role and we are looking for someone with good communication (verbal and written) along with good organisational skills. Bipolar UK will offer the successful applicant regular support and engagement with the team, as well as reflective practice sessions throughout their service with the charity.
The Peer Support Officer reports to the Services Manager who manages this service. This will be a home-based role with occasional travel, such as team days/meetings/training.
Why join us?
This is an opportunity to provide practical, non-clinical information and peer support to our community, including family and loved ones. Our Peer Support Line is often a first point of contact, offering a listening ear, helping to reduce isolation, and signposting people to relevant information, services, research and campaigns.
You will join a team of highly skilled colleagues who share the same passion to support our community in a safe and appropriate way.
Specific Responsibilities
Person Specification
The successful candidate will have:
Our Commitment to Equality, Diversity & Inclusion
Bipolar UK is an equal opportunities organisation. We warmly welcome applications from people of all backgrounds and particularly encourage applications from people with lived experience of bipolar or other mental health conditions, people from under‑represented communities, and those whose voices are less often heard in mental health spaces.
All recruitment decisions are based solely on skills, experience and suitability for the role.
Data Protection
Any personal information you provide will be handled securely and used only for recruitment purposes, in line with UK data protection legislation.
Safeguarding
All employees are expected to work in line with Bipolar UK’s safeguarding policies, ensuring safe, respectful and empowering environments for everyone we work with.
The successful candidate will likely have:
How to Apply
Bipolar UK operate a blind recruitment practice and advertise our roles via CharityJob.
Please submit your CV online to CharityJob with a covering letter (maximum two A4 pages). Your cover letter should clearly demonstrate how your experience meets the person specification and explains your motivation for working with Bipolar UK
Closing date is 9am on Monday 25 May 2026.
Our mission is to empower everyone affected by bipolar to live well and fulfil their potential.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Partnerships Manager is responsible for developing, securing and stewarding our partnerships, with a particular focus on the corporate and higher education spaces. Reporting to and working closely with the CEO, the postholder will lead on relationship‑driven partnership development and account management, ensuring partners experience a professional, values‑aligned and impactful relationship with Brightside.
The postholder will steward these partnerships from initial engagement through to renewal, working closely with the Partnerships Lead to support renewals and identify opportunities for deeper partner engagement. The role will involve researching potential partnerships, securing meetings through outreach and networking, generating proposals, and delivering high‑quality ongoing stewardship to partners. In addition to corporate and higher education partners, the postholder will also steward relationships across government and the third sector.
Please note - this role will require extensive travel to London for partnership meetings, events and networking. Our ideal candidate would therefore be based in London or within commuting distance.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for
Pipeline development
Partnership management and stewardship
Application instructions
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Location: Home based
Hours: Part time - 18 hours
Terms: One-year fixed term contract (with a possibility of extending the role funding allowing)
Salary: FTE £24,750 (actual £11,880)
Pension: NEST Scheme
Annual Leave: 28 days pro rata (inclusive of bank holidays)
Normal working week: 37.5 hours
What we can offer you:
• Flexible, remote working from home.
• A positive and friendly staff culture.
• Annual in-person meet-ups as a team.
• Laptop and Phone as required.
• Option to discuss and set your own regular working hours.
• The opportunity to make a difference to a growing charity and a large, engaged
community.
• Organisation wide shut down at Christmas in addition to your holiday entitlement
ABOUT US
PANS and PANDAS are complex neuro-psychiatric conditions which are frequently
misunderstood and misdiagnosed. PANS PANDAS UK are the only charity in the UK
working to improve outcomes and ensure brighter futures for people affected by PANS and PANDAS.
We provide support and information to families, and work tirelessly to inform medical
practice, raise awareness, engage with medical, social work and educational
professionals, and much more.
We are a small team based at home in various UK locations. We keep in touch frequently online and have a warm, supportive and positive culture.
OVERALL PURPOSE
The Education Training Development Manager will lead the operational development, and delivery of the national education training programme, ensuring it aligns with organisational priorities and emerging national guidance. The role is responsible for the coordination, growth and quality assurance of PANS PANDAS UK’s national CPD training offer for teachers and educational psychologists (EPs), supporting the development and delivery of high‑quality training modules and strengthening partnerships.
The role reports to and works in close collaboration with the PANS PANDAS UK Education Lead, who retains overall ownership, strategic responsibility and final decision‑making authority for the training programme and the wider education strategy.
Central to this role is working collaboratively with the PANS and PANDAS community and the Youth Advisory Board (YAB) to ensure all training is informed by lived experience.
Key Responsibilities
Programme & Content Development
Trainer Recruitment & Capacity Building
Strategic Programme Oversight
Partnership Development & Sector Engagement
Commissioning & Income Support
Quality Assurance & Evaluation
Operational Coordination
Working Environment & Culture
Skills, Knowledge & Experience
Essential
Desirable
Please do not submit your application by email, use the Charity Jobs application process.
Please do not use AI to write your covering letter, we really would much prefer to hear from you in your own words.
Please don't hesitate to ask if you have any questions about the role.
PANS PANDAS UK is the only UK charity supporting children and families living with the neuropsychiatric conditions PANS and PANDAS.
The client requests no contact from agencies or media sales.
Are you someone who can build trusted relationships across sectors, develop sustainable income, and turn strategic opportunities into meaningful impact?
Are you looking for a part-time, senior role where you can shape organisational direction, grow partnerships, and deliver programmes with national and international reach?
The Design in Mental Health Network (DiMHN) is a UK-based charity dedicated to improving mental health outcomes through better design. We are seeking a strategic and entrepreneurial Head of Partnerships & Programmes to play a central role in our next phase of growth.
In this role, success will mean building high-value partnerships, growing sustainable income, and delivering programmes that expand DiMHN’s impact and influence.
WHAT YOU'LL BE DOING
Reporting to the Chief Executive, you will:
WHO WE'RE LOOKING FOR
We are looking for a strategic, relationship-driven leader who can translate opportunity into impact, income, and influence.
Knowledge and experience
You will bring:
Knowledge of the mental health, healthcare, design, or built environment sectors is welcome, but not essential.
Personal attributes
You will be:
WHAT YOU'LL GET IN RETURN
As part of the team, you will benefit from:
NEXT STEPS
Please see https://bit.ly/DIMHNPartnershipsProgrammes for our Candidate Pack, application instructions and details about the interview process.
The Design in Mental Health Network (DiMHN) is a charity dedicated to improving the design of mental health environments.
The client requests no contact from agencies or media sales.
Are you a creative digital campaigner who can turn powerful stories into content that sparks action, builds movements, and drives change to help save lives and stop economic abuse?
About the role
We are looking for an exceptional candidate to play a central role in the delivery of Surviving Economic Abuse’s new digital engagement strategy by producing high-quality, impactful communications and compelling campaigns to extend our reach and to engage, inform and mobilise our audiences.
You will be responsible for managing and growing our digital presence across social media and ensuring this translates into action through our website and newsletters. This will include creating content tailored to victim-survivors and their family and friends, financial services professionals, policymakers, funders and other stakeholders.
As part of this role, you will help us develop and deliver digital campaigns that amplify our campaigning and policy work, as well as deliver communications to support our fundraising, consultancy and training.
About you
We’re looking for someone with proven experience running social media for a brand, organisation or campaign, with demonstrable results such as audience growth, reach, engagement or conversion. You’ll understand how campaigning and activism work, and how to mobilise supporters from diverse backgrounds to help drive meaningful change.
You’ll be a confident digital campaigner who knows how to make an impact across multiple platforms, especially Instagram, TikTok and other video first channels. You’ll have a strong understanding of trends, formats and algorithms, and know how to use them to create scroll stopping content that motivates people to take action.
This role is ideal for someone with bags of initiative, strong creative instincts, and the ability to turn complex issues into compelling digital content tailored to engage and mobilise different audiences.
If you’re excited by the opportunity to use your creativity, storytelling and digital campaign skills to amplify survivor voices, drive real-world impact and help end economic abuse, we’d love to hear from you.
What we offer
To apply
Please apply via our website.
This post is only open to women applicants, as being a woman is considered a genuine occupational requirement under Schedule 9, Paragraph 1 of the Equality Act 2010.
Applications open from 6 May and close at 11.59pm on 26 May 2026. Interviews will take place week commencing 15 June 2026.
Direct applications only – no agencies please.
Surviving Economic Abuse (SEA) is committed to developing an inclusive team which reflects the diversity of the communities we support. Our culture celebrates diverse voices, and we particularly encourage applications from Black and minoritised applicants and disabled applicants who are under-represented at SEA.
SEA is a Disability Confident Committed, and Kinship Friendly Employer.
The client requests no contact from agencies or media sales.
This is a new role leading on engagement in the Transport for the South East area, playing a vital role in building and strengthening local networks, supporting grassroots campaigning, and ensuring that disabled people’s experiences inform both regional and national influencing work. You’ll organise campaigns and forums, represent Transport for All at events, and work with service providers and councils to make transport fairer and more equitable.
We are a small, committed and disabled-led team working to make sure that disabled people’s voices are heard in politics, the media and beyond. This role is central to ensuring lived experience drives systemic change in London’s transport system.
You must be disabled and live in the South East of England to apply for this role
This role has a genuine occupational requirement of lived experience of disability. This explicitly includes those of us who are Deaf, neurodivergent, chronically ill, have a mental health condition, have age-related impairments, and people with both visible and non-visible impairments. If you do not meet the genuine occupational requirement, your application will not be shortlisted for an interview.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast
Salary: £32,750 per annum
Hours: 35 hours per week
Closing date: Monday 19 May 2026 at midnight
Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026
This is a full time fixed-term position for one year (with possible extension subject to funding).
Who we are looking for
Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum.
The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.
You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.
Experience required
Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse
Experience of leading public affairs delivery in one of more of the devolved nations
Experience in analysing Government policy in-depth and creating policy briefings
Experience of drafting briefings, reports and policy submissions
Experience of communicating across a range of parliamentary and professional stakeholders at all levels
Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment
Experience of organising stakeholder events
About Breakthrough T1D
Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia.
You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1.
Employee benefits
As an employer we offer:
Hybrid working arrangements
Flexible working and will consider compressed hours
Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service
Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment
Season ticket and cycle loan
Pension scheme
Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates
Personalised training to suit your career aspirations and professional development
Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age.
Improving lives today and tomorrow by accelerating life-changing breakthroughs to treat, prevent, and, ultimately, cure T1D and its complications
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This is an exciting opportunity to be part of a passionate, supportive team and to help grow community and events frundraising directly enables Bipolar UK to reach more people, reduce harm, and save lives. You will be trusted to lead, encouraged to innovate, and supported to do your best work.This is a management role focussed on strategic planning, enabling delivery and leading a small team to perform at their best.
Working closely with the Director of Fundraising and alongside the Strategic Partnerships and Trusts teams, you will be responsible for setting clear plans, developing effective fundraising approaches, and ensuring strong systems, processes and supporter experiences are in place to drive sustainable income growth.
You will lead the delivery and development of community fundraising, challenge events, individual giving through community activity, and in-memory fundraising. A key part of the role will be developing a clear and engaging events and fundraising volunteer offer, including an effective induction process that enables volunteers to fundraise confidently on behalf of Bipolar UK.
This role requires a thoughtful, organised and people-centred manager who understands how to balance ambition with compassion in a mental health charity context.
Key Responsibilities
1. Strategic leadership and planning
2. Community and events fundraising delivery
3. Volunteer fundraising offer
4. Digital campaigns and income growth
5. Supporter experience and stewardship
6. Team leadership and organisational contribution
Essential Criteria
Desirable Criteria
Please submit a CV and a cover letter of no more than 2 pages, outlining your suitability for the role and our experience using the essential and desirable criteria.
Our mission is to empower everyone affected by bipolar to live well and fulfil their potential.
The client requests no contact from agencies or media sales.
An exciting opportunity to help turn a new national initiative into reality as it moves from planning into delivery. Over the next year, we will launch a new national Foundation Degree while building the foundations of a wider programme of work. In the initial phase, this role will focus on working locally with partners and participants in one or more locations to support recruitment, onboarding and preparation for launch, while also contributing to the wider programme build-out alongside a national team. As delivery begins, the role will transition into ongoing programme management across a cluster of delivery centres, leading high-quality delivery, participant experience and programme quality, and helping to build strong, sustainable centres over time.
To apply for this role, please submit a cover letter of no more than two pages outlining why you are interested in this role at the Centre for the Children’s Workforce, and how your skills, experience and approach would help you succeed in the role. Please also specify where you are based in the country, and whether you are looking to work full or part time.
Building the workforce that children deserve.
The client requests no contact from agencies or media sales.
Please see attached Recruitment Pack for full job description and person spec for the Senior Programme and Network Lead.
This role leads our work across Birmingham at an exciting moment. We are developing a participatory, community-centred approach to analysing the city's economy, identifying opportunities for change and coordinating alliances to act on them. This means bringing together mixed groups, including grassroots changemakers, researchers, funders and other partners, and facilitating processes that help people make sense of complex information together, find common ground and make decisions about collective priorities. The role requires someone who can hold these processes well: strong facilitation skills, communicating complex ideas accessibly, building trust across groups, sustaining momentum over time and helping diverse coalitions move from analysis to strategy to action.
The Senior Programme and Network Lead will develop and deliver initiatives that support a growing movement for economic justice across the city, with a particular focus on building support and engagement amongst grassroots changemakers and communities experiencing economic injustice. It will manage projects and resources, conduct programme development and delivery, oversee outreach and partnerships, changemaker recruitment and contribute to fundraising, ultimately playing a key role in shaping our regional impact. This position is crucial in coordinating our work across Birmingham and driving meaningful collaboration with local and national stakeholders, in particular working collaboratively with Economic Justice Brum, a long-standing initiative working on local economic systems change.
Working with communities across the UK experiencing economic injustice to reimagine, rebalance, and transform the economy.
The client requests no contact from agencies or media sales.
Lloyds Bank Foundation
Head of Programme Design and Organisational Development
Starting Salary: £66,438 (if London-based); £61,872 (if not London-based)
Contract: Full-time, permanent contract (we are open to conversations about flexibility - so please ask)
Location: Remote role - can be based anywhere in England or Wales with an expectation of frequent travel across England and Wales
About Lloyds Bank Foundation
Lloyds Bank Foundation for England and Wales is an independent charitable foundation, backed by Lloyds Banking Group and the people within it. We want everyone to be in a good place - personally, in a home that’s a good place to live, and in a community that’s a good place to belong.
We play our role by connecting and catalysing community-led change, providing the money, time, tools and connections that build organisations’ capacity and capability, to make people’s lives better and their communities stronger.
We back people and communities across England and Wales, to make that happen, because when you back brilliant people, brilliant things happen. Our communities are full of ambitious, energetic and determined people stepping up to make their neighbours’ lives better and their communities grow stronger. Day in, day out.
About the Role
This is a leadership opportunity to shape how the Foundation designs, delivers and strengthens its programmes across England and Wales.
As Head of Programme Design and Organisational Development, you will lead the Foundation’s approach to programme design, organisational development and volunteering, ensuring everything we do is high quality, evidence-informed and grounded in lived experience.
You will set the standards, frameworks and tools that underpin programme design across the organisation, working closely with Programme Leads to design new programmes and strengthen existing ones. You will also lead our organisational development offer, ensuring charities and partners are supported to become stronger, more resilient and better connected.
Alongside this, you will shape how volunteering contributes to our work, embedding it across programmes and ensuring it supports both community capacity and connection.
You will work across teams and directorates to ensure programme design, organisational development and volunteering are fully aligned and working together to deliver meaningful community-led change.
About You
We’re looking for an experienced and credible leader with a strong background in programme or service design, ideally in complex or multi-partner environments.
You will bring a deep understanding of how organisational development builds capacity and resilience, alongside experience of using evidence and insight to improve programmes and outcomes.
You will be confident developing frameworks, standards and approaches that ensure quality and consistency, while also enabling innovation and learning.
You will be a collaborative and relational leader, with strong partnership skills and the ability to work across internal teams and external organisations. A commitment to diversity, equity, inclusion and belonging is essential.
How to Apply
Please click ‘Apply’ to be redirected to our website, where you can download the Candidate Information Pack and find details of how to apply.
For an informal conversation about the role and application process, please contact our recruitment partner, Atkinson HR via the information in the candidate pack.
Our Commitment to Diversity, Equity and Inclusion
We hold Disability Confident Employer status (Level 2) and are working towards full status by 2027. This means that if you're a disabled applicant and your CV and application answers clearly demonstrate that you meet the essential criteria for the role, we will invite you to interview.
More broadly, we are committed to building a diverse team that reflects the communities and people we work with. We believe that diversity of background, experience and perspective makes us stronger and helps us make better decisions. We actively welcome applications from people who are under-represented in the charity sector, including people from Black, Asian and minoritised ethnic communities, disabled people, and those with experience of the issues our funded charities work to address.
Key Dates
Closing Date: Thursday 28th May 2026
Optional Q&A Session: Wednesday 6th May 2026 at 09:00-10:00
First Interview: Tuesday 9th June 2026
Second Interview: Thursday 18th June 2026
We support small, local and specialist charities across England and Wales.


Salary: £35,668 – £39,005 pro rata
Hours: Part-time (21 hours per week)
Contract: Permanent
Location: Home-based (with regular travel across Brentwood Diocese)
About the role
CAFOD is looking for a Community Participation Coordinator to grow engagement across the Catholic community in Brentwood Diocese.
You’ll inspire and support volunteers, build strong relationships with parishes and clergy, and increase participation in CAFOD’s work to tackle poverty and injustice.
Working as part of a regional team, you’ll help deliver plans that drive volunteer engagement, fundraising, and community action.
Key responsibilities
About you
Additional information
The full job description is available on CAFOD's careers page
CAFOD is a welcoming, supportive workplace committed to a safe, inclusive culture where everyone is respected. CAFOD will make reasonable adjustments at every stage of the recruitment process to ensure candidates with disabilities or individual needs are fully supported.
Safeguarding for Children and Vulnerable Adults
CAFOD recognises the personal dignity and rights of children and vulnerable adults, towards whom it has a special responsibility and a duty of care and respect. CAFOD, and all its staff and volunteers, undertake to do all in our power to create a safe environment for children, young people and vulnerable adults and to prevent their physical, sexual or emotional abuse. CAFOD is committed to acting at all times in the best interests of children and vulnerable adults, seeing these interests as paramount. Any candidate offered a job with CAFOD will be expected to adhere to CAFOD’s Safeguarding policy and sign CAFOD’s Code of Behaviour as an appendix to their contract of employment and agree to conduct themselves in accordance with the provisions of these documents. This post involves contact with children and young people and applicants will be subject to specific checks related to safeguarding issues. The post holder is required to present or obtain a Disclosure from the DBS (Disclosure & Barring Service).
All offers of employment will be subject to satisfactory references, and appropriate screening checks can include criminal records and terrorism finance checks. CAFOD also participates in the Inter Agency Misconduct Disclosure Scheme. In line with this Scheme, we will request information from job applicants’ previous employers about any findings of sexual exploitation, sexual abuse and/or sexual harassment during employment, or incidents under investigation when the applicant left employment. By submitting an application, the job applicant confirms their understanding of, and consent to, these recruitment procedures.
CAFOD is the official Catholic aid agency for England and Wales tackling poverty and injustice across the world.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Volunteer and community involvement is a core part of what we do here at Sands. From Sands United Teams, Support Groups, knitters, Parent Speakers and event volunteer, volunteers are at the heart of Sands delivering peer support, and building a local community for bereaved parents.
Sands Groups are volunteer led, and community driven.
Sands has a vision to grow community-based peer support, community activity and volunteer involvement across the organisation. This requires an investment in enabling, innovation in peer support and volunteer involvement and partnership working.At the heart of this is our Befrienders.
Befrienders are in every Group across the UK and enable online support groups too.
This post is all about developing, delivering and managing our fantastic volunteer befriender programme across Sands. Ensuring that Sands befrienders are enabled to provide warm, supportive, evidence-based and values-driven peer support to bereaved families across the UK.
This maternity cover post will have two key focus areas
- Maintaining key components of the befriender programme, including regular communications and meeting with Befrienders, driving recruitment opportunities, supporting innovation in Befriending and troubleshooting in partnership with volunteers.
- Deliver a fixed timeline project focused on developing the Befriender programme.
Responsibilities
Best practice in peer support and befriender programmes
· To engage, inspire and support existing Sands befrienders, providing a positive volunteer experience from recruitment to saying goodbye
· To identify learning and development opportunities for befrienders and create a culture of continued learning for all Befrienders
Develop and innovate
· Build a data driven understanding of gaps in service and representation, and make promotion and recruitment decisions to support growth for under-represented towns/regions/groups
· Support continuous improvement and accurate delivery of processes in the welcome journey for new befrienders, including in recruitment, on-boarding and off-boarding processes in partnership with the Volunteer Coordinator
· Use the CRM to record accurate information and help make data informed decisions
Internal and external partnerships
· Work with the Engagement Team to ensure Sands befriending is represented in an engaging and positive way across Sands social media and the media
We are here to support everyone touched by pregnancy loss or the death of a baby. Always.


The client requests no contact from agencies or media sales.