Community leader volunteer roles in east acton, greater london

Join us and help lead change for anyone affected by ME.

Can you help us deliver our mission to improve the lives of all people affected by ME by becoming a new Trustee on our Board?

With the recent launch of the UK Government Delivery Plan for ME/CFS, and some critical research partnerships on the horizon, now is an exciting time to join us and play a pivotal role in our work to secure a better future for people with ME.

As a Trustee, you will have a vital role within Action for ME, establishing a clear and shared vision, setting policies and acting in the best interests of Action for ME and people with ME. We are particularly looking for people who bring: Scientific and/or research expertise; healthcare and/or information, support and advocacy experience; Policy experience at local or national level; Communications and/or marketing expertise.

If you have experience in any of these areas and share our ambition for a better future for people with ME, we want to hear from you.

Trustee - Role Description

Duties of a Trustee are as follows:

• To ensure that Action for ME complies with its Memorandum and Articles of Association,charity law, company law and any other relevant legislation or regulations
• To ensure that Action for ME pursues its charitable objects as defined in its Memorandum of Association
• To ensure Action for ME applies its resources exclusively in pursuance of its objectives
• To contribute actively to the Board of Trustees role in establishing a clear and sharedvision for Action for ME, giving firm strategic direction, setting overall policy, defining goals, setting targets and evaluating performance against the agreed targets
• To act in the interests of Action for ME and for people with ME in general
• To safeguard the good name and values of Action for METo ensure the effective and efficient administration of Action for ME
• To ensure the financial stability of Action for ME
• To protect and manage the property of Action for ME and to ensure the proper investment of charity funds
• To appoint the Chief Executive and to monitor his or her performance and determine his or her remuneration.
• In addition to the above statutory duties of all Trustees, each Trustee should use any specific knowledge or experience they have to help the Board of Trustees reach sound decisions
• To represent Action for ME as appropriate.

Time Commitment:
The time commitment expected of a Trustee is approximately six days per annum, including an AGM, preparing for and attending Board meetings, and involvement in at least one of the sub-committees: Audit, Finance & Fundraising; Public Affairs & Communications; Research; Healthcare Services; or Remunerations & Nominations.

We hold an away day once every two years. Additional time may be required dependent on circumstances/needs. You will receive a full induction and support upon appointment.

We do ask that Trustees make a commitment to at least one, three-year term of office.

Trustee - Person Specification

All Trustees must demonstrate:

• A commitment to the organisation, its cause and demonstrate an understanding of MEand its impact
• A willingness to devote the necessary time and effort Strategic vision Good, independent judgment
• An ability to think creatively
• A willingness to speak their mind
• An understanding and acceptance of the legal duties, responsibilities and liabilities of Trusteeship
• An ability to work effectively as a member of a team
• A willingness to participate in at least one sub-committee, as appropriate
• A commitment to working within Action for ME’s values and principles of working,including Nolan’s ‘Seven Principles of Public Life’:

             a. Selflessness
             b. Integrity
             c. Objectivity
             d. Accountability
             e. Openness
             f. Honesty
             g. Leadership.

• Be willing to sign relevant statutory and other forms (eg for opening bank accounts).

Specific requirements:

While we are open to applications from people who meet the person specification, we regularly review the skills and backgrounds of our Board members and are specifically looking for people who bring:

• Scientific and/or research expertise
• Policy experience at local or national level
• Communications and/or marketing expertise.

How to Apply

If you are interested in becoming a Trustee, please submit:

• Your CV, including all employment/voluntary roles since you left full-time education ensuring any gaps or time out is accounted for and
• A completed ‘Equal opportunities monitoring and information form’ (provided separately)
• A covering letter outlining why you would like to become a Trustee and how you meet the person specification outlined above, including how you meet the specific requirements we are currently looking for.

Please also indicate any reasonable adjustments that you may require to enableus to provide a good recruitment process with you.

You will be informed of the outcome of your application and any potential interviewdates with the Chair, the Chief Executive and another Trustee. We will be invitingpeople for interviews as applications come in and will close recruitment when we fillthe current vacancies.

Equity of access

We strive to ensure equity which includes being as accessible as possible to attract Board members with a diverse range of experience and insight. If you don’t meet the person specification fully, please do consider contacting us for a discussion as youmay be our ideal candidate!

We will consider all requests for reasonable adjustments within the parameters ofensuring Trustees are able to enact their legal responsibilities and accountabilities.